How does MSAA improve lives for the multiple sclerosis community?

Last week, we shared an infographic with our supporters showing just a few of the ways MSAA improves lives for the multiple sclerosis community. Today, we wanted to post that infographic again in case you missed it.

But we wanted to start by posing a question: What, exactly, is a “good” charity?* 

There has been a lot of talk recently about good charities and bad charities. News reports have focused on charities that do little, if anything, to help alleviate social issues…and on companies who profit from the increasing need for funding to ensure missions are fulfilled. The nonprofit world is buzzing with words like “expensive ratios,” “ratings,” and “overhead.” The result: We are now taking a new look at what being a good charity really means.

How does MSAA improve lives?

                    How can your donation improve a life today?

As an organization, MSAA welcomes this conversation. We believe in using our resources efficiently to best serve the needs of the MS community. We have worked hard over the years to streamline our processes and improve our program delivery.

In addition to the wealth of information and support MSAA provides, for those who would be unable to afford equipment or MRI scans on their own, MSAA’s programs make a tangible difference in day-to-day quality of life. This is attested to time and time again in the unsolicited tesmionials of our clients.

*Excerpt from “Thoughts about Giving” in MSAA’s magazine The Motivator (Summer/Fall 2013)

Also made possible through the help of our supporters…

1,040,554 visits for vital information through our website

About 215,000 MSAA publications distributed to provide information and support

66,596 views of our 36 on-demand video programs

7,174 new downloads for MSAA’s smartphone app, “My MS Manager”

Donate now and improve a life today. 

You, too, can improve a life today.

“Thank you so much for getting back to me so soon! After over two years of waiting and being passed off [by other organizations], my MRI is scheduled for a couple of hours from now! Thank you!” – Jordan R. from Colorado. 

Improve a life today for someone like Jordan. 

The Multiple Sclerosis Association of America is a leading resource for the entire MS community, improving lives today through vital services and support. 

Improving Lives Today!

 

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Talking with Friends and Family about Multiple Sclerosis & its Symptoms

For this month, we focused our blog around managing MS.  Some helpful tips were provided and the one that sticks out to me was about “asking for help”.  Understanding your limits and what you are able to accomplish in a day is a great way to conserve your energy and focus on what is important.  Often times it is important to involve those around you, but navigating the “how to” is a challenge.

For those who struggle with the symptoms of MS that may not be visible (i.e. fatigue, pain, and cognitive changes), the hidden symptoms of MS, asking for help from a friend or loved one can often be a daunting task.  We frequently hear and read stories from individuals who feel guilty asking for help, because they don’t feel that they “look” sick.  They fear they will be judged in asking for help.

It may be helpful, before you tell everyone about your MS symptoms to think; does this person play a significant role in my life? And, can I rely on them in the future if I need help?  If the answer to both of these questions is yes, then it is time to put on your teacher hat and educate those identified helpers about what types of symptoms you experience and what they may look, or sound like, for you.  MSAA’s The Motivator Winter/Spring 2013 edition discusses may of the hidden symptoms of MS: http://www.mymsaa.org/publications/motivator/winter-spring13/.  This publication can be shared with friends and loved ones to further provide education and information.

Not every person with MS experiences symptoms in the same way, so providing information as to how MS looks and feels to you is very important.  With more understanding and better education, we can hope to reduce the stigma around the hidden symptoms of MS and promote a more positive experience for both yourself and your loved ones.

Please share your experiences, have you had to educate your friends and loved ones about the symptoms of MS?  What has worked for you?

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Latest Issue of The Motivator Now Available!

Read about the following topics in MSAA’s latest issue of The Motivator:

Cover Stormotivator winter_spring 2013y:
* The Hidden Symptoms of MS
This article describes some of the hidden symptoms of MS (including pain, fatigue, sleep, cognition, and vision), along with management strategies.
Read the full story

Research News:
* American Academy of Neurology Meeting Highlights
* Tecfidera™ Approved for the Long-Term Treatment of MS
Read the full story

Health and Wellness:
* The Affordable Care Act and You
The Affordable Care Act (ACA) aims to increase the availability and affordability of health insurance for millions of Americans who lack coverage. Beginning in January 2014, this historic initiative will significantly impact a substantial number of individuals with multiple sclerosis and their families.
Read the full story

Already receive a printed copy of The Motivator magazine in the mail? Interested in receiving The Motivator electronically only? Let us know! Please visit support.mymsaa.org/motivatorupdate.

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MSAA’s MS Research Update

MSAA's Research Update 2013MSAA’s MS Research Update is a comprehensive overview of research findings on the FDA-approved disease-modifying therapies, as well as many experimental treatments.

This 2013 edition of MSAA’s MS Research Update is the first to be printed as a stand-alone issue, reflecting the diversity and scope of research progress in MS. This information is based on a wide range of sources, including the extensive journal literature on MS and its management, a review of ongoing clinical trials, and papers presented at major national and international conferences.

Read MSAA’s latest MS Research Update.

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Read MSAA’s latest issue of The Motivator

Cover for Summer-Fall 2012 issue of The MotivatorThe latest issue of MSAA’s magazine, The Motivator, is out now – read it online, download a version to your computer, or order a copy today.

Included in the online issue:

* Cover Story – The Evolution of MS Diagnosis, Treatment, and Care

* Research News – Aubagio® approval and other research updates

* Health and Wellness – The benefits of aquatic therapy and exercise

…Plus, extra “Ask the Doctor” answers, not included in the printed magazine!

*********************

The Evolution of MS Diagnosis, Treatment, and Care:

From the mid-1800s to the late 1900s, diagnostic criteria and therapies were fraught with uncertainty – and required more than a century of trial and error to reach today’s high level of success. Seventeen MS specialists are quoted, giving details about the most important contributions in MS history.

Read the full story

Research News:

Read about the recent FDA-approval of Aubagio® (teriflunomide), as well as updates on DMF (dimethyl fumarate) and Lemtrada™ (alemtuzumab), both submitted for FDA approval.

Read the full story

Health and Wellness:

Aquatic therapy and aquatic exercise are described, along with the benefits that they offer to individuals with MS.

Read the full story

The Motivator is MSAA’s award-winning magazine provided to the MS community and to our generous supporters.

Read the latest issue of The Motivator

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