MS Conversations Named One of the Best MS Blogs

Last week, our friends at Healthline published their list of the best multiple sclerosis blogs for 2017, which includes MS Conversations!  Every year, Healthline compiles a list of the best blogs for the MS community based on the information provided and the personal stories shared throughout the year.

MSAA is thrilled to be included on this list, and we would like to thank all of our contributing writers and our guest bloggers, who share their powerful and unique perspectives on living with multiple sclerosis with us every month!

Check out the full list of winners on Healthline’s website.

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Peach Milkshake – Recipe of the Month

This peach milkshake recipe has just a few ingredients and is perfect for sipping on summer nights. It would be a perfect treat for the Memorial Day weekend too. Who doesn’t like a milkshake!

I like to keep my blender right out on the counter so making a milkshake is an easy thing to do.

Ingredients

  • 1 (15 ounce) can sliced peaches, drained
  • 4 scoops vanilla ice cream
  • 2 cups vanilla soy milk, or 1% milk
  • 1/4 cup orange juice
  • Splash of vanilla
  • Dash of cinnamon

Instructions

In a blender, combine peaches, ice cream, soy milk and orange juice. Blend until smooth. Pour into glasses and top with whipped cream.

Enjoy!

 

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What are you doing to cope?

If you can believe it, we are already in the month of May! 2017 has been steadily moving along and this month we are looking into the topic of coping. Everyone has their own versions and ideas about how they best cope with, and through, stressful or difficult situations. For years professionals have presented, written about, fine-tuned and zenned over the most positive ways that we can cope. While not every example will work best for every person it’s always great to have some ideas in your back pocket when the need arises. There is nothing wrong with testing a few out to see which ones do not work for you and which ones are your go-to when counting to 10 just does not cut it anymore. You can try:

  • Cooking or Baking
  • Scheduling some time off and stick to it
  • Spend some time with young children or animals (both tend to be care free and some of that may rub off on you during your time with them)
  • Create something artistic (this can be any number of mediums such as music, clay, paint, found objects, writing, photography and the like)
  • Visualization, Meditation. Group or Individual Therapy
  • Physical Activity (this too can be any number of things; swimming, dance, yoga, stretching, sex…yep, you read that right…a bike ride or walk)
  • Give of yourself to organizations you are interested in. Volunteering can not only  help you, but also others
  • Explore something in your area that you haven’t before
  • Get some more sleep
  • Seek out speaking with friends or family and expressing your emotions

We all know that we have some negative coping mechanisms that may help for a short period of time in the moment but still leave us a bit in the lurch. Seeking out more positive ways in which to cope, these or others may help us to set up a more positive pattern to help deal with a negative situation. We’d like to hear some of your positive coping skills or ideas that you’d like to share. Take a moment to check out our thread on My MSAA Community.

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When You Have MS, You Can’t Live Without…

Recently, our friends at Healthline.com asked a question to individuals with MS:

When you have MS, what is the ONE thing you cannot live without?

Healthline collected responses from various bloggers and MS community members to compose an article of the many ways people with MS are able to overcome challenges thanks to their strong support systems. Take a look at the ways these individuals stay motivated during tough times, and what helps them remain positive in the face of adversity. Some examples include family, friends, the outdoors, wheelchairs, and even MSAA! Read more examples here. What is something you can’t live without since your diagnosis?

P.S. – You may recognize a few names – MSAA clients Cathy, Sara, and Simone from our Changing Lives Monday to Sunday video offered their insight to Healthline as well!

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Consider a Staycation!

Wow, can you believe it’s already May? Time feels like it’s flying by and we’ll be headed into the summer months before you know it! Many people spend time traveling and taking trips during the summertime, usually because kids have off from school and different attractions set-up shop and thrive during these warmer months. But many people aren’t able to travel abroad or from state to state for various reasons at times; so you may have to get a little more creative about how to spend these vacation days.

The word “staycation” is an expression that has increased usage within the past 10 years or so as a way to describe a vacation spent at home—spending time seeing local attractions, participating in activities close to home, or just hanging out in the backyard. What constantly amazes me is how many beautiful and remarkable sights so many people have right in their own cities! The world is filled with many extraordinary attractions and wonders, but sometimes it’s nice to be able to start at home with learning and appreciating what’s nearby. From parks and forests to museums and historical landmarks, there can be new things to explore and experience right near home. Traveling can be great, but a staycation can be just as satisfying. A staycation can also reduce stress because you don’t have to deal with long distance travel and spending excessive amounts of money; it may be more relaxing to just lay low and plan day trips and activities at your own leisure.

If you’re going to commit to a staycation, one of the most important things to do is to unplug. This means that if you are employed, disconnect from your email, and do not go into work just because you’re close to home! If you participate in daily groups or activities that you want to take a break from, this is the time to do just that. If you want to stray from your day to day and do something different, this is your opportunity. It’s tempting to stay connected because you’re not truly ‘away’ on a vacation elsewhere, but it’s still YOUR vacation, and you deserve this time as much as anyone. If you want to make other guidelines for your staycation like not using any electronics at all or not communicating to certain folks, that’s completely up to you! After all, it’s your time to do what you wish, and if your wish is for a restful staycation, then sit back and enjoy it!!

Have you ever had a staycation? What were some things you did to enjoy your time?

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The Motivator: Winter/Spring 2017

Introducing MSAA’s newest edition of The Motivator, available now in both printed and digital versions!

Read about the following topics in the new Winter/Spring 2017 issue of The Motivator:

  • Cover Story:
    Disease Effects and Needs of Minority Populations with MS
    New findings on diagnosis, symptoms, disease course, treatment response, and access to care are among the many issues presented in this article.
  • Up Front:
    MSAA’s President and CEO Gina Ross Murdoch talks about new Board members, successful fundraisers, and exciting initiatives.
  • Research News:
    Details are given on Ocrevus™ (ocrelizumab), the first disease-modifying therapy to be approved for both relapsing forms of MS as well as primary-progressive MS.
  • Program Notes:
    MSAA’s MRI Access Fund is now fully restored and in full swing, providing much-needed MRI scans to individuals who otherwise could not afford this vital testing.
  • Stories to Inspire:
    Read about an individual’s recovery from severe depression and her newfound happiness.

Don’t Forget!
The new Winter/Spring 2017 issue of The Motivator is also available as a digital edition, providing: easy, interactive, online viewing; access from your desktop, tablet, or mobile device; and special features that include a search field, font-size preferences, and more!

*The Motivator is MSAA’s award-winning magazine provided to the MS community and to our generous supporters.

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Let’s Hear It for the Volunteers!

This week is officially marked as National Volunteer Week. Volunteers are so necessary for many organizations including ours. For this post we wanted to introduce you to some of our amazing volunteers here at MSAA.

Charles Backlin known around our office as Chuck has been volunteering with MSAA for 11 years in our home office.  After retiring from the US Military Chuck was in search of something close to home that he could get involved with when he came across MSAA.  Chuck has been volunteering since he was young, taking part in Boy Scouts and the Ground Observer Core in Junior High “We needed eyes on the ground in area’s where we were watching for potential threats from Russia. We would go out and observe the area and report places that were suspect to be evaluated by a fighter system.” From this early exposure to being part of a volunteer group Chuck was able to experience not only being a part of a group and working toward a common goal but also serving others. When asked what he would say to potential volunteers he stated “They need to get out and do for other people. It’s important.”

Barbara Gershenoff volunteers with our lending library helping clients get resources and connected to writings focused on living with MS, spurred on by having a friend who was diagnosed with MS years prior.  She also takes part in special events such as our annual Golf Tournament . For the past one and a half years Barb has come in to work with the team at MSAA to continue to connect with clients across the US and help raise funds so that we can continue to provide our programs and services to clients. Barb is a retired school teacher from New York who when she and her family moved to NJ was looking for a worthwhile organization to get connected with, googled local volunteer opportunities and came across MSAA. When I asked Barb what she likes most about volunteering she said without hesitation “I love the people here [at MSAA]. I’ve gotten to know them and this place [MSAA] feels like home. And there is of course the fact that I get to help people who really need help.”

Nada Baydoun has volunteered with our MSAA Social Media Street Squad since the summer of 2015. “I signed up to volunteer with MSAA because when I researched, I loved what I saw on the website. I was also encouraged to volunteer with MSAA due to the excellent reviews and comments on Facebook from people suffering from MS.” As part of our Street Squad team, Nada and hundreds of other volunteers help MSAA spread the word about new developments and available resources to the MS Community thru platforms such as Twitter, Facebook and Instagram. “I like that I feel that I am spreading awareness about MS. Many of my Facebook friends have messaged me privately asking me about my MSAA posts and wanting to learn more about MS. I also like that the posts [from mymsaa.org] offer practical and helpful information to those suffering from MS.”

Each of our volunteers and all of the amazing volunteers who have partnered with us at MSAA over the years are a vital part of what we are able to do for the entire MS Community. They help us to spread the word and make our programs possible; they are our ambassadors to communities and some of our greatest supporters. Thank You So Much to everyone who currently does or has ever volunteered with MSAA. You are not only part of our MSAA family but we also couldn’t do what we do without you.  A big Thank You also to Chuck, Barb and Nada who let me get to know them a little better while writing this post, you all are the best!

If you have any interest in volunteering with MSAA, check out our Volunteer page on our website or contact us at volunteer@mymsaa.org.

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Why Self-Care?

Self Care by it’s very definition is “Care of the self without medical or other professional consultation” (or at least that is what Dictionary.com says). The very act of one caring for oneself would seem would be natural and come without thought. Then why is it so incredibly hard for individuals to practice self-care? We spend hours, weeks and years of our lives making time to care for others, putting others needs first and making to sure to be there for those around us who call. And while I’m sure this is incredibly helpful to the friends, neighbors, coworkers and loved ones who we give our time to, we often suffer in the name of others.

Please don’t get me wrong, helping family, volunteering for organizations, being there for friends and coworkers is valuable and vital to building good community and connection, but taking the time for self is vital to you. Often, and I’m probably not alone in this, I feel selfish and self-centered when I turn down working at a community event, changing plans to help a friend move or asking someone else to take something off my plate. But it’s important to remember that “an empty cup has nothing to pour out.”  So if you are depleted, running on empty, feeling emotionally or physically fatigued, not only will you personally feel the weight of it but possibly the interactions you have with others will also be impacted.

What is self-care? That looks different for every person. I enjoy a cup of coffee in the quiet of the morning on my back steps, going to the movies first thing Saturday morning when I’m the only person there and taking my favorite playlist with my DSLR camera and getting lost exploring my city on a beautiful day. Yours may be similar but it may also be completely different.

I’m a fan of podcasts and educational talks. If you have not heard of them, give TedTalks a try. They have a section on the importance of Self-care. And if you don’t want to take my word for why placing an emphasis on self-care is so important, give them a listen as they give ideas, tips and why behind the what of self-care. Listening to their talks may just be an act of self-care in itself 🙂

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Springtime Strawberry Salsa

The springtime is here and I begin to crave juicy and delicious fruits.   Fresh strawberry salsa is the perfect springtime treat.  This quick and fresh recipe can be served as an appetizer, snack, or dessert. You can also add peaches or mango too.

Ingredients:

  • 1 pint fresh strawberries, diced
  • ¾ cup cilantro, chopped
  • 1 jalapeno, seeded and diced
  • 3 tablespoons of lime juice
  • ½ red onion, diced
  • Pinch of salt and pepper

Instructions:

  1. Put all ingredients in a bowl and carefully mix together
  2. Refrigerator until ready to serve
  3. Serve with cinnamon pita chips or tortilla chips

Are you ready for some juicy seasonal fruit this spring season, too?

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MSAA Closed – Friday 4/14

Please note that MSAA will be closed on Friday, April 14, 2017.

We will be back in the office on Monday, April 17, 2017 at 8:30 am.

Enjoy the spring weather!

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