Highlights from the 2015 Annual Meeting of the CMSC

NEWSMSAA has posted a new online article providing highlights from this year’s Consortium of Multiple Sclerosis Centers’ Annual Meeting held in Indianapolis, Indiana in May. MS experts from around the country attended this exciting conference where the latest findings in MS research, treatments, symptom management, and patient care were presented.

Topics highlighted in this article include updates on MS disease-modifying therapies and findings from several cognitive and psychosocial studies. Various lifestyle factors such as diet, nutrition, and exercise are addressed in detail as well. The article also provides information on other topics of interest, such as diversity in multiple sclerosis, caregiver stress, gut microbiome, and more.

Read the full article on highlights from this year’s Consortium of Multiple Sclerosis Centers’ Annual Meeting.

If you missed MSAA’s article summarizing data presented at the American Academy of Neurology’s 2015 Annual Meeting in April, please check it out here.

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MSAA is Moving!

The Multiple Sclerosis Association of America (MSAA) is moving to a new location!

As of Wednesday, June 24, 2015, the address for MSAA’s National Headquarters will be:

375 Kings Highway North

Cherry Hill, New Jersey 08034

Please note that MSAA’s phone number, email address, website URL, fax numbers, and regional office contact information (other than the Northeast Regional office) will all remain the same.

Please update your records with our new address and continue to stay in touch with us!

 

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Highlights from MSAA’s Improving Lives Benefit in Washington, DC

On April 22nd, MSAA held the second annual Improving Lives Benefit at The Pavilion at the Ronald Reagan Building in Washington, DC. It was a wonderful evening filled with good food and fun – all in support of a great cause! The funds raised from the event directly support MSAA’s free, vital programs and services.

Honorees - Doug - Sue

(Pictured from left: MSAA President & CEO Doug Franklin, Honoree Kristen Adams, MSAA Board Chair Sue Rehmus, and Honoree Dr. Randall Schapiro)

This year, two special people were honored as MSAA champions for their accomplishments, commitment, and support of the MS community.

Dr. Randall Schapiro, MS neurologist and member of MSAA’s Healthcare Advisory Council, was honored for his dedication and contributions to the MS community. Among his many notable accomplishments, Dr. Schapiro founded the first comprehensive MS center in 1977, participated in numerous research studies, and helped to develop two MS organizations. Through his years of service, he has come to recognize the importance and impact a “team approach” can have in helping the MS community.

“That’s the way we’re going to make progress. That’s the way we have success in dealing with a difficult disease. So I’m appreciative, very appreciative, of accepting this award on behalf of my team; all of the team; all of the people that have been involved with me and helped me.”

–Dr. Randall Schapiro

Also honored was Emmy award-winning network producer and writer, Kristen Adams. Diagnosed with MS in 2008, Kristen serves as an inspiration to all who hear her story. In early 2014, Kristen played a major role in helping to launch MSAA’s Why I Swim initiative by producing and starring in nationally broadcast videos to inspire others to share their stories.

“I can be a good example. And I know now why that is important and why I continue to do that. And I am deeply grateful to MSAA for allowing me the opportunity to do that. Thank you.”

–Kristen Adams

This year’s Improving Lives Benefit would not have been a success without the support and generosity of our donors. With the help of our supporters, MSAA was able to raise more than $115,000 – which will make a tremendous difference in helping to provide vital programs for so many people affected by MS.

Thank you!

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Wishing You a Safe and Joyous Holiday Season

MSAA_Holiday_Cards8There is still time to share holiday greetings and raise awareness about MSAA! Please visit support.mymsaa.org/holidaycards to send a holiday or New Year’s eCard to everyone on your list!

PLEASE NOTE:  MSAA’s offices will be closed Wednesday, December 24th, through Sunday, December 28th. 

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High Performing Charity

by Kimberly Goodrich, CFRE, Senior Director of Development

In our continued quest to show our donors the impact of their support, the Multiple Sclerosis Association of America (MSAA) has been working with the various charity watchdogs to ensure that we are doing our best to communicate that we are worthy of your donations, and that we are working to meet our mission. The most prominent charity watchdogs (GuideStar and Charity Navigator) are working to update and enhance their rating systems to focus less on ratios and more on the impact an organization is having on those who need its services.

America’s Charities is also recognizing those charities that meet the top standards of the different watchdog agencies through their High Performing Charities Initiative. This new program recognizes those nonprofits that have reached the highest levels of accountability, transparency and impact as set by the leading charity rating agencies.

MSAA is proud to announce that we have been recognized as a High Performing Charity by America’s Charities. To earn this distinction we have reached the highest levels as determined by each of the charity rating agencies.

1. We are a member of the BBB Wise Giving Alliance having met all 20 Standards for Charity Accountability in the areas of governance and oversight, measuring effectiveness, finances, fundraising, and informational materials.

2. We have achieved Gold level status with GuideStar for our commitment to transparency. This site also includes our current impact goals and progress toward those goals.

3. Charity Navigator has awarded MSAA with a three star rating based on their assessment of how efficiently we use resources to fulfill our mission, how well we have sustained our programs and services over time and our level of commitment to being accountable and transparent.

Last year your support led directly to helping more people improve their lives. Our toll-free Helpline assisted 6% more people compared to the previous year. We provided ongoing MRI assistance to 9% more people, and diagnostic MRI assistance to 70% more people than the year before. Thank you for being a part of the conversation over the last year and helping us to refine how we communicate our impact. And thank you for trusting MSAA to turn your support into services that directly improve the lives of those living with MS.

Support from our donors is always appreciated! If you would like to donate to MSAA, you may do so here.

 *About Kimberly

I am the Senior Director of Development at MSAA and have worked in the nonprofit arena for over 15 years. I love reading, running, theatre and the Green Bay Packers. I volunteer with the Disabled American Veterans teaching outdoor sports like skiing and kayaking to injured veterans and find that I receive much more from them than I am able to give.

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End of Year Reflections

There’s a song lyric that says “It’s hard to remember we’re alive for the first time. It’s hard to remember, it’s hard to remember, we’re alive for the last time” (Modest Mouse). This poignant sentiment sums up a lot about our daily lives.

When you’re in the thick of your day-to-day routine it is easy to become bored or stagnant. When you are struggling with something it can be reflexive to focus only on the challenges and obstacles in your way as opposed to the strength and persistence required to make it through.

It’s easy to get caught up in just another day and forget about the wonder and marvel of life, and all the precious moments that you get to experience. True, not all moments are wonderful, but when you lose the spark of hope and wonder you lose something bigger and not just your inner philosopher.

First, cut yourself some slack, nobody gets everything right. Reflect and recognize that each day is a new one. If you are so inspired you can chose to think that with each day comes opportunity and choice. We may not be able to control everything but we can control some things.

Second, remember that no one’s life is endless. When reflecting on your own precious life you may find that there are opportunities and adventures you want to undertake. As 2014 winds down think about the journeys (metaphorical and physical) that you want to take and write them down. Some people might call it a bucket list, you may never get to all of them but you can keep trying and remembering.

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Holidays Past

The holidays are a time where people come together to celebrate the joy of the season, to honor past holiday traditions or to create new ones for generations to come. Holidays of the past can foster different types of memories – fond ones, funny ones, and those, “I still can’t believe that happened!” moments. For me, the holidays were always a hectic time, where you never quite knew what was going to happen. I do hold some fond moments about old traditions in our family, and though they may seem odd to others, every family is different and has their own ways of celebrating.

In my family, Christmas Eve was the night our extended family would get together to celebrate the holiday and exchange gifts through a Pollyanna. But the gift exchange and celebrating couldn’t happen until midnight, when it was really the start of Christmas day. As a child this was agony, as half of us would fall asleep before the countdown to midnight even began, and the rest of us were so tired that when it did come time to open presents and rejoice, we didn’t really appreciate the tradition at that late hour. However, this still remains a heartwarming memory for me, because for some reason or other throughout the years, this tradition is no longer. As more children were born into the family and members didn’t want to travel home so late, gifts are now exchanged at leisure, with no countdown or anticipation as years past. It’s still a nice tradition, but it’s different, and now we take time to reminisce about those past holiday memories and look back with joy.

Each holiday season brings varied traditions, moments, and feelings that are unique to each person and family celebrating the occasion. And even though things may change through the years, making holidays different from ones that came before, there are still memories to be made and joy to experience.

What are some of your holiday memories?

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Insurance Enrollment and the MS Community

While the 2014 year slowly comes to an end and individuals start to make their end of year plans, there are still two important dates to keep in mind in regards to open enrollment for health insurance. For those who are uninsured, or who possibly want to make some changes to a pre-existing Medicare plan, open enrollment allows individuals to make changes without penalty.

Medicare open enrollment ends Sunday, December 7th. Up until this date, changes can be made allowing an individual to switch from Original Medicare to a Medicare Advantage Plan, or vice versa. A switch from one Medicare Advantage Plan to another Medicare Advantage Plan or to a plan that offers different drug coverage can be made as well. This is especially important to the MS community as medications can often change. If the doctor prescribes a medication that is not covered under a drug formulary, other drug coverage options can be explored that may be more suited to your prescription needs. To explore options, contact Medicare directly at (800) 633-4227 or visit www.medicare.gov.

For more complex issues with Medicare, the Medicare Rights Center offers a helpline to answer your questions about insurance choices as well as Medicare rights and protections. You can reach the Medicare Rights Center at 1-800-333-4114 or visit www.medicarerights.org.

The Open Enrollment Period for individuals eligible to enroll in the Marketplace for a Qualified Health Plan for coverage starting in 2015 is now through February 15, 2015. Individuals can enroll in a plan in the Marketplace by visiting www.healthcare.gov, or by calling (800) 318-2596. These plans are available to those who are uninsured, losing insurance, or who would like to make a change to their existing plan. If you purchased a plan in the previous Open Enrollment period and were not happy with that plan, now is the time to review other options and make a switch if available.

For more information regarding insurance, MSAA’s My Health Insurance Guide is aimed at assisting the MS community with understanding the many details surrounding today’s health insurance options.

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Lasting Holiday Memories

Having just polished off the leftover bird from the table, cranberry sauce and stuffing galore, you may be experiencing a sigh of relief or even a moment of anticipation as further holiday and end-of-year festivities abound.

Whether you had a pleasant or taxing Thanksgiving, you probably are not thinking about what creates a lasting holiday memory, but inevitably as the season progresses you may just think back on past holiday seasons and some of the stand-out moments which are meaningful to you. Over time, sometimes even the mishaps and anxieties which were so troublesome to you at the time may even win out for most re-counted and favored memories.

For example, I’ll never forget the Thanksgiving my dog snatched a turkey leg right off my nephew’s plate (why he had a giant turkey leg, I have no idea). I chased the dog around the dining room and battled for it. When I finally broke his hold on the greasy turkey leg, riotous laughter erupted around the table.  At the moment he stole the food, my thought was, “Oh no, he ruined Thanksgiving,” but the reality was there was plenty of food to go around and everyone delighted in some comic relief. A few years later, and it has become a story we re-count when we talk about all being together and what we are thankful for (which does, in fact, include our dog).

Lasting Holiday Memories

So as the year winds down and you anticipate even more hoopla, remember that even the crazy, wild, and hectic moments can turn into those lasting, laughter-filled, or meaningful moments. Events may not turn out exactly as planned, but the love, support, and laughter of those that surround us and support us are what the holidays are all about.

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Happy Thanksgiving to the MS Community from MSAA!

The votes are in and we have a new MSAA Thanksgiving Card winner! The competition was a close one, but our big winner is…

Happy Thanksgiving

Pumpkin Floral Arrangement!

Coming in a close second place were cards showing a puppy and a kitten, a candle centerpiece, and a festive candy turkey with two small pumpkins. Sadly, our determined and colorful turkey was also defeated, but we’re sure he at least ruffled a few feathers in the process!

We would like to thank the more than 1,200 people who took part in this year’s fun election to select MSAA’s official Thanksgiving Card for 2014! MSAA’s winning online card “Pumpkin Floral Arrangement” is now available for you to select and send electronically to everyone you know. And since the other candidates received many votes as well, MSAA is offering all six cards for you to send!

Send a Thanksgiving eCard

This is a great way to send Thanksgiving greetings, while showing your support of MSAA, a leading resource for the entire MS community, improving lives today through vital services and support. At this time of giving thanks, we also want to express our sincere gratitude to the many individuals who have so generously contributed to support our vital mission.

Please note that MSAA’s offices are closed for the Thanksgiving holiday on Thursday, November 27th and Friday, November 28th. 

From all of us here at MSAA, please enjoy a safe and happy Thanksgiving!

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