Announcing MSAA’s New Online Aquatic Center

Online Aquatic Center

MSAA is pleased to unveil the Swim for MS online Aquatic Center at SwimForMS.org – an exciting new resource for individuals with MS and healthcare professionals.

Swimming and other forms of water-based exercise have well-established health benefits for many fitness levels. For people diagnosed with MS, the cooling and buoyant properties of water can create an ideal exercise environment allowing for movements that may not be possible on land, while keeping them from overheating. Research suggests that the benefits of water-based exercise for individuals with MS include improved flexibility, muscle strength, mobility function, psychological well-being, and overall quality of life.

The Swim for MS online Aquatic Center features resources developed to help you learn more about aquatic exercise, including the following sections:

• About Aquatic Exercise and MS – Comprehensive information about the benefits of aquatic exercise and how water-based activities can be adapted to fit all levels of ability Tip Sheetand types of MS
• Aquatic Resources – Tips and suggestions on how to begin an aquatic exercise program and where to find a pool in your area
• Multimedia Center – Inspirational videos of people living with MS who incorporate swimming and aquatic classes into their healthy lifestyle plan
• For Healthcare Professionals – Research findings and supportive information on aquatic exercise and MS for neurologists, physical therapists, rehab specialists, and aquatic fitness instructors

To learn more about aquatic exercise and MS, please visit our new online Aquatic Center at SwimForMS.org!

The Swim for MS online Aquatic Center has been developed through a collaborative sponsorship with Genzyme, a Sanofi company.

pool

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March is MS Awareness Month

The Multiple Sclerosis Association of America (MSAA) recognizes March as MS Awareness Month. Throughout the month, MSAA is raising awareness and improving lives today!

March MS Awareness Month calendar Graphic

MS Awareness Month is a great opportunity for everyone to learn more about multiple sclerosis and discover all the services and support MSAA offers. 

MSAA offers the following ways to learn and support the MS community:

  • Visit our website, mymsaa.org, which provides easy access to vital information, resources, and tools from your desktop, mobile phone, or tablet.
  • View any of our educational videos and webinars in our MSi Video Library ranging in topic from MS symptom management to understanding Medicare, and much more.
  • Read one of our publications, including MSAA’s award-winning magazine, The Motivator, and the recently published MS Research Update with the latest latest findings in MS treatments and research.
  • Attend one of MSAA’s educational events for people with MS and care partners – check our Calendar of Events to find upcoming programs happening in your area.
  • Check out MSAA’s 2014 Art Showcase, featuring creative and beautiful artwork by individuals with MS.

Help to spread MS awareness by using MSAA’s “March is MS Awareness Month” badge as your social media profile picture (right-click the image below, save it to your computer, then use it on your Facebook, Twitter, Google+, or LinkedIn account profile pictures). 

Also remember to use the hashtag #MSAwareness in your social media posts.

MSAA_month_badge3

We look forward to everyone learning more about MS during MS Awareness Month. And we greatly appreciate your continued support of our vital mission of improving lives today for the entire MS community.

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Self-Advocacy for People with Multiple Sclerosis

Different thoughts may come to mind when you hear the word ‘advocacy.’ Some may not be familiar with the term or others may have a very vivid description of what the word means to them. Advocacy can be defined as active support, pleading or arguing in favor of something or for some type of cause. Individuals advocate for themselves in different ways, sometimes without the knowledge that they’re engaging in self-advocacy. When you visit your doctor and ask questions, this is a form of self-advocacy. You are supporting your healthcare by requesting more information to make the best informed decisions you can regarding your care. Some individuals have others assist them with this task at times; family members, friends and caregivers have been known to advocate for care when involved in the healthcare process. Sometimes it’s helpful to have another voice or set of ears advocating for your health needs when interacting with your medical team, and there can be different forms of this advocacy presented.

Here are some ways the MSAA can help you remain an advocate in your healthcare:

  • My MS Manager™:  a mobile-phone application to track disease activity, store         medical information, generate reports, and assist individuals with their treatment      plan
  • MSAA’s S.E.A.R.C.H.™ Program:  tools to help individuals with learning about the approved long-term treatments for MS, along with questions to discuss with the patient’s medical team
  • My MS Resource Locator: an MS-specific, online database offering targeted information and unique support services, including detailed guides

What are some ways you advocate for your care?

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How does MSAA improve lives for the multiple sclerosis community?

Last week, we shared an infographic with our supporters showing just a few of the ways MSAA improves lives for the multiple sclerosis community. Today, we wanted to post that infographic again in case you missed it.

But we wanted to start by posing a question: What, exactly, is a “good” charity?* 

There has been a lot of talk recently about good charities and bad charities. News reports have focused on charities that do little, if anything, to help alleviate social issues…and on companies who profit from the increasing need for funding to ensure missions are fulfilled. The nonprofit world is buzzing with words like “expensive ratios,” “ratings,” and “overhead.” The result: We are now taking a new look at what being a good charity really means.

How does MSAA improve lives?

                    How can your donation improve a life today?

As an organization, MSAA welcomes this conversation. We believe in using our resources efficiently to best serve the needs of the MS community. We have worked hard over the years to streamline our processes and improve our program delivery.

In addition to the wealth of information and support MSAA provides, for those who would be unable to afford equipment or MRI scans on their own, MSAA’s programs make a tangible difference in day-to-day quality of life. This is attested to time and time again in the unsolicited tesmionials of our clients.

*Excerpt from “Thoughts about Giving” in MSAA’s magazine The Motivator (Summer/Fall 2013)

Also made possible through the help of our supporters…

1,040,554 visits for vital information through our website

About 215,000 MSAA publications distributed to provide information and support

66,596 views of our 36 on-demand video programs

7,174 new downloads for MSAA’s smartphone app, “My MS Manager”

Donate now and improve a life today. 

You, too, can improve a life today.

“Thank you so much for getting back to me so soon! After over two years of waiting and being passed off [by other organizations], my MRI is scheduled for a couple of hours from now! Thank you!” – Jordan R. from Colorado. 

Improve a life today for someone like Jordan. 

The Multiple Sclerosis Association of America is a leading resource for the entire MS community, improving lives today through vital services and support. 

Improving Lives Today!

 

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MSAA’s MS Research Update

MSAA's Research Update 2013MSAA’s MS Research Update is a comprehensive overview of research findings on the FDA-approved disease-modifying therapies, as well as many experimental treatments.

This 2013 edition of MSAA’s MS Research Update is the first to be printed as a stand-alone issue, reflecting the diversity and scope of research progress in MS. This information is based on a wide range of sources, including the extensive journal literature on MS and its management, a review of ongoing clinical trials, and papers presented at major national and international conferences.

Read MSAA’s latest MS Research Update.

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Read MSAA’s latest issue of The Motivator

Cover for Summer-Fall 2012 issue of The MotivatorThe latest issue of MSAA’s magazine, The Motivator, is out now – read it online, download a version to your computer, or order a copy today.

Included in the online issue:

* Cover Story – The Evolution of MS Diagnosis, Treatment, and Care

* Research News – Aubagio® approval and other research updates

* Health and Wellness – The benefits of aquatic therapy and exercise

…Plus, extra “Ask the Doctor” answers, not included in the printed magazine!

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The Evolution of MS Diagnosis, Treatment, and Care:

From the mid-1800s to the late 1900s, diagnostic criteria and therapies were fraught with uncertainty – and required more than a century of trial and error to reach today’s high level of success. Seventeen MS specialists are quoted, giving details about the most important contributions in MS history.

Read the full story

Research News:

Read about the recent FDA-approval of Aubagio® (teriflunomide), as well as updates on DMF (dimethyl fumarate) and Lemtrada™ (alemtuzumab), both submitted for FDA approval.

Read the full story

Health and Wellness:

Aquatic therapy and aquatic exercise are described, along with the benefits that they offer to individuals with MS.

Read the full story

The Motivator is MSAA’s award-winning magazine provided to the MS community and to our generous supporters.

Read the latest issue of The Motivator

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