Responding To Comments That I Need To… (Fill In the Blank Here)

By: Stacie Prada

It personally bothers me when I read online articles telling people “What every person needs to do…”and presenting it as fact. They don’t know me, and what may work for the masses may not be appropriate for me.

A simple example of this is kale. Kale is very nutritious, has a lot of health benefits, and I feel good when I eat it. People with hypothyroidism or taking blood thinners need to avoid kale. What’s good for many people is not good for every individual.

It’s common for me to explain to people suggesting I take immune boosting products why I don’t. People think that because they’re successful avoiding or recovering from colds by taking immune boosting products that I should take them too. I’ll nicely explain that I take a disease modifying drug to suppress my immune system because it works too well. While I want to maximize my health, intentionally trying to trigger my immune system to start fighting isn’t good for me. I also explain that eating foods with anti-inflammatory properties does work well for me. We’re all different.

So while it bothers me to have someone tell me they have the answer to my problems, I respond to it the same way as if they’ve just made a suggestion. I’ll honestly let them know whether I’ve already tried it, I’m doing it now, I’ve tried it and it didn’t work for me, or that I’ll look into it. I have a mental list of things I want to try but am not ready to do yet. Some of them like doing yoga and seeing a naturopath took me years before I was ready to try them. When I did, they were a huge benefit to me and I wished I’d tried them sooner. I followed up with the person who’d made a suggestion and thanked her. I let her know I’d finally done it and loved it.

Response Tool Box: I like to think of communication as a toolbox with tools that we use regularly and others that don’t come as naturally. Sometimes we use our standard tool and it works great. Other times it takes three or four tries with different tools before we convey our message. I’ve found that the following methods have worked in response to comments that make me uncomfortable, that seem hurtful, or that I’m not up for answering in the moment:

  • The blow off: If a comment is too ridiculous or mean and you don’t want to address it at all: pretend you didn’t hear it. Focus on something or someone else and continue the conversation.
  • Incredulous silence: If you want them to know it was inappropriate or hurtful, a paused look of shock can work. And move on to something else.
  • Honesty: Say their comment is hurtful or too personal for your comfort level and you’d rather not discuss it. And move on to another topic.
  • The improvisational approach: Consider the comment as valid, build on it to the ridiculous and humorous conclusion, and laugh it off. It works best if your response really is funny and doesn’t embarrass the person who made the initial comment.
  • Find an advocate: Turn to a friendly face in the group and ask what they think about the topic through eye contact or explicit words.
  • Connect: Find the kernel of accuracy in what they’re saying, and comment on how that is true before explaining more about your experience.
  • Insight: Someone has said something completely foreign to anything you’ve thought before. Say that’s interesting and you’re going to think about it.
  • The delayed response: Sometimes a comment sticks in my head long after the conversation is done. I allow myself permission to bring it up later after I’ve thought about it. There’s no time limit to letting someone know that something they said made an impression on you.
  • Reschedule: If my energy is low or the event isn’t really conducive for the conversation and I really would like to discuss it another time, I’ll tell them.
  • Defer: There is a lot of information on the web about this topic, and I’m still learning all the time. I know some terrific websites and articles that can explain it much better than I can. If you’re interested in them, I’m happy to send them to you.
  • Question: See if you understand their questions accurately. Ask them if your understanding of their question is correct. Ask them to tell you more about why they’re asking. Sometimes people ask leading questions because they want to tell you something. Let them.

*Stacie Prada was diagnosed with RRMS in 2008 at the age of 38. Her blog, “Keep Doing What You’re Doing” is a compilation of inspiration, exploration, and practical tips for living with Multiple Sclerosis while living a full, productive, and healthy life with a positive perspective. It includes musings on things that help her adapt, cope and rejoice in this adventure on earth. Please visit her at http://stacieprada.blogspot.com/

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As a national nonprofit organization, the Multiple Sclerosis Association of America is a leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a toll-free Helpline; award-winning publications including a magazine, The Motivator; website featuring educational videos and research updates; S.E.A.R.C.H.™ program to assist the MS community with learning about different treatment choices; a mobile phone app, My MS Manager™; a resource database, My MS Resource Locator; equipment distribution ranging from grab bars to wheelchairs; cooling accessories for heat-sensitive individuals; educational events and activities; MRI funding and insurance advocacy; and more. For additional information, please visit http://www.mymsaa.org or call (800) 532-7667.

Comments

  • Mary Garrison says:

    New to MS.. just turned 40 and had absolutely no knowledge of what MS is, but as of last week.. doctor says MRI shows signs that I have it. I have been doing what I can to try to walk normal ish and the hard realization is I don’t have the strength in my left arm to lift much and after the littlest of things, I feel drained and dizzy quickly. I have heard that these things often go in patterns and will subside for a period of time before returning. How long does it usually take to get back to normal for a bit?

    • Samantha Schech says:

      Hi Mary! Thank you for reaching out. Recovery after an MS relapse can look different from person to person, have you discussed your concerns with your doctor? Sometimes a referral to a Physical Therapist is helpful, they can work with you to possibly regain strength. Please feel free to reach out to our Helpline as well at 1-800-532-7667 ext. 154, for more information and support. Take care.

      -Samantha

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