Greetings from the Midwest Region!

By: Marie LeGrand

Greetings from the Midwest Region! I am the newest member of the team and as the Regional Director have had the pleasure of meeting so many wonderful people and formed great relationships during the last few months.

As a healthcare leader, my journey has taken me to unexpected places and provided me the opportunity to enhance client and patient satisfaction; by creating and implementing services that promote healthy behaviors, and designing plans around health program expansion and extension. Before joining MSAA, I developed disease prevention programs and monitored the effects within community settings. I worked collaboratively with other nonprofit organizations; in increasing HIV awareness and prevention within underserved communities and high-risk groups in the city of Chicago. Through program development, health promotion, partnership building, and research & development, I created culturally sensitive and educational materials on key health issues.

As the Midwest Regional Director, I will work with MSAA in creating awareness and providing education, programs and services to individuals living with MS and their families. I have had the privilege of speaking and listening to the touching stories of individuals, who have started support groups and fundraising events that encourage others to stay positive and involved while finding ways in which to overcome the challenges of MS. Through them, I am empowered and excited every time I am asked about my profession and the work that MSAA does nationwide for the MS community. I am also pleased when my guests come up to me at the end of a program and proclaim how happy they are with the quality of work that we consistently do for them and their families. For many, it is an opportunity to meet new friends and create connections that will last a lifetime. For others, it is a time to laugh and share stories of encouragement and perseverance as well as giving tips on how to live life fabulously with MS!

In the next few months, I plan to reach out to those living in rural communities and small towns working with expert clinicians and health practitioners in the field to answer questions that many have pertaining to their health. Oftentimes, it is a very scary experience to speak with clinical staff or a physician. The programs are an open forum for many to address issues that are left unanswered in a friendly and inviting environment allowing them to discuss pertinent topics that affect daily living. I have a few educational programs that I am excited about, which covers a variety of topics such as, “The African American MS Patient Experience”, “Multiple Sclerosis in Women”, and “Adherence Matters”. I hope through these programs, many will become more knowledgeable about their MS.

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Beat the Heat this Summer

Spring has sprung, or so they say; and while the first day of spring brought some cold weather and snow to some parts of the country, others are starting to think about the warm weather months. It is known that individuals with multiple sclerosis (MS) can be affected by the heat. The slightest increase in body temperature can intensify MS symptoms.

For those with this type of heat sensitivity, the spring and summer months can be a challenge. While family and friends start planning outdoor events and activities, individuals with heat sensitivity question what they will do all summer long.

Cooling products are designed to be used during these warmer months. Ice pack style cooling products allow an individual to place specially designed ice packs into a garment that is worn on the body. Through cooling technology, the body is provided with a safe cooling temperature that helps to reduce overheating.

MSAA offers a program for those who are income eligible to provide these ice pack style cooling products and accessories. For more information regarding this program, please visit the MSAA website at http://mymsaa.org/msaa-help/cooling/.

For those who may not be eligible for assistance through the MSAA program, the manufactures of these cooling items provide products and accessories that can be purchased. Visit Polar Products and Steele Body Cooling, and remember to let them know that MSAA referred you. There may be a discount offer available!

rsz_coolfit_kate

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March 2015 Artist of the Month: Celebrating the Work of Artists Affected by Multiple Sclerosis

All-New Artists for MSAA’s 2015 Art Showcase

MSAA Art Showcase 2015

As part of MS Awareness Month, MSAA is very proud to present our 2015 Art Showcase – celebrating the work of artists affected by MS.

We have received many wonderful submissions from across the country and are delighted to share their work and their stories with you. Please visit our online gallery to view all of the new submissions.

As in the past, we will highlight an Artist of the Month throughout the year and share their artwork and their story.

Presenting MSAA’s Artist of the Month for March

We are very excited to present the inaugural Artist of the Month for the 2015 Art Showcase…

March Artist of the Month:
Lisa Yeager – Thousand Oaks, CA

 Lisa Yeager - One Touch

About the Artist:
“In 1990, I was an art director, part-time college student, and more, when I encountered blurred vision and fatigue. I assumed it was due to my busy lifestyle. Three years later, the symptoms returned. Days before my wedding, I had my first MRI. This was the  wedding present that I wanted to return. Through tears, I replied that MS had picked the wrong girl!

Today, my family and I enjoy sailing, music, and traveling. I have taken martial arts and improv comedy plus saxophone lessons. I volunteer and visit others with MS. I live each day quoting another … ‘I may have MS but MS doesn’t have me.'”
Read more

Be inspired – please send an online card featuring artwork by MS artist Lisa Yeager and spread awareness of MS and MSAA.

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National Love Your Pet Day

photo

In honor of National Love Your Pet Day, the “unofficial” national holiday set aside to give extra attention to and pamper your pet that you love every day. This is a good day to focus on the special relationship that you have with your pets.

Having a pet has proven to provide many physical as well as mental benefits. Therapeutically, a pet can lower blood pressure and have a calming effect over an individual, which can lead to diminishing some pain symptoms. Pets also encourage communication (who doesn’t talk to their pet), as well as provide support and comfort.

When feeling anxious or nervous about a new situation, perhaps lean to your pet for support. A pet is a perfect soundboard for thoughts and feelings and even better, they can’t talk back! Maybe there is an uncomfortable topic you wish to discuss with a loved one, try practicing speaking out loud to your pet exactly what you wish to say. The extra practice in expressing your thoughts can provide confidence and re-assurance in the situation.

While your pets can’t role play the situation back with you, having practiced saying a thought or feeling may help alleviate some of the anxiety around the situation. It may also provide you with the opportunity to hear how your words would sound to another person. Have you ever made a comment and then realized ‘that wasn’t what I meant to say.’ Practicing beforehand allows you to make changes to ensure that your message is properly received.

In what ways is your pet a support to you?

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Flying High!

by Kimberly Goodrich, CFRE, Senior Director of Development

Justin Yuhaze

Our local NHL team, the Philadelphia Flyers, is known for its recognition of those who give of themselves to their community. Their Flyers Hometown Hero program was developed to recognize organizations and individuals that make a positive difference in the lives of others. The Flyers award each Hometown Hero with two tickets to a Flyers game, a personalized Flyers jersey and recognition on the scoreboard during the game. Last night’s game against the Columbus Blue Jackets recognized South Jersey resident Justin Yuhaze for his contributions to MSAA and the MS community.

Justin was recently diagnosed with multiple sclerosis himself, an event that left him with the realization that he didn’t know much about MS. Immediately, he began educating himself about every aspect of MS. “I didn’t know much about MS at this point, but I stopped in at MSAA in Cherry Hill, NJ and they were able to provide me with books, magazines, and told me about an upcoming lecture on the history of medical treatments for MS,” says Justin.

Then Justin decided to participate in MSAA’s Swim for MS fundraising initiative, where he dove into action to help raise awareness and funds to support individuals, like him, who are living with MS. Justin and his wife Julie joined volunteers all across the country who have created their own swim challenge while recruiting online donations to support the vital programs and services offered by MSAA. Justin and his family surpassed their goal, adding to the more than $320,000 that has been raised through Swim for MS.

“We swam all over South Jersey in pools, lakes, and the ocean. Together we swam over 13 miles. By swimming, we can raise awareness about this incurable disease, and provide help to those who need it most. Our fundraising efforts can provide cooling vests, wheelchairs, fund MRI’s, and educational programs and services.”

Thank you Justin for being a part of Swim for MS and supporting our many vital services. Thank you Philadelphia Flyers for recognizing one of the many heroes who give back to their communities! Go Flyers!

To read more about Justin and his Swim for MS challenge or to make a donation, please visit his Swim for MS webpage.

*About Kimberly

I am the Senior Director of Development at MSAA and have worked in the nonprofit arena for over 15 years. I love reading, running, theatre and the Green Bay Packers. I volunteer with the Disabled American Veterans teaching outdoor sports like skiing and kayaking to injured veterans and find that I receive much more from them than I am able to give. 

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Loving Yourself First

What is love? Webster’s dictionary defines love as “a feeling of strong or constant affection for a person”. After a day like Valentine’s Day, it is hard not to question the concept of love. Perhaps you are in a long term relationship, maybe you have yet to find love, or have just ended a relationship. By definition, love doesn’t solely rely on a relation with another person, it can define the feeling you have for yourself as well.

Truly loving yourself and having the respect for the person that you have become can be a challenge for some. Uncontrollable events occur in life that may change the way that one perceives themselves. Perhaps there are goals or outcomes that seem unmet, or feelings that are unresolved. Coming to a place of understanding and acceptance of the uncontrollable events and embracing the change they may have created is the first step in loving who you are as a person.

By accepting the changes that have occurred, you allow yourself to move forward without any self-doubts or negative thoughts. But this too is a process. One does not wake up one morning and choose to accept the many years of life’s up and downs. Daily affirmations or positive thoughts about your self can be an effective way to practice self-love and acceptance. You can create your own, or utilize one of the many that can be found in books or online.

The Law of Attraction states, “like attracts like”, meaning, what you put out into the world, is what you attract. If you feel positively about yourself and love yourself, you will attract that same level of positive energy in another. When you don’t like yourself, or don’t feel yourself worthy of love, it can be difficult for someone to find that in you as well.

The change to a place of self-acceptance and love cannot occur overnight. If you feel as though you need additional support or help in removing the self-doubts or negative thoughts, a counselor may be able to assist in getting to the root of those feelings. Everyone has a right to be accepted and loved, personally and by others. If possible, seek help from a support group or counselor. It is never too late to make a change.

“The turning point in the process of growing up is when you discover the core of strength within you that survives all hurt” –Max Lerner

References:
http://www.merriam-webster.com/dictionary/love

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February 2015 Artist of the Month: Celebrating the Work of Artists Affected by Multiple Sclerosis

MSAA’s Next Art Showcase for 2015

Thank you to all of the artists who were part of last year’s Art Showcase for artists with multiple sclerosis. The wonderful artwork and personal stories have been inspirational to many who have visited our online gallery and who have sent and received online art cards, celebrating the lives and talents of people living with MS.

MSAA will soon debut the 2015 Art Showcase in March as part of MS Awareness Month. So, get ready for some new artwork and stories to enjoy! As before, each month we will share with you an Artist of the Month with a new online card that you can send to friends and family to spread awareness of MS, while showcasing the wonderful talents displayed by artists with MS.

You still have time for one more look at last year’s collection! Then, get ready to enjoy the many new works to be featured in MSAA’s 2015 Art Showcase!

Presenting MSAA’s Artist of the Month for February

MSAA is very proud to present our 2014 Art Showcase – celebrating the work of artists affected by MS.

We have received many wonderful submissions from across the country and are delighted to share their work and their stories with you. Please visit our online gallery to view all of the new submissions.

February Artist of the Month:
Tammy Jennings – Monterey, CA

 Tammy Jennings - Flowers Pots 2

About the Artist:

“My name is Tammy Jennings and I live in picturesque Monterey, California. I am a 54-year-old, single woman, and I have been living with multiple sclerosis since 1996; I was 37 when diagnosed. I worked full-time until December 2006 when I had to “retire” as the unpleasant “side-effects” of my MS became too much to handle in a work environment.

As a result of having more free time and at the suggestion of my cousin, I started painting. It has been a wonderful outlet. The inspiration for the paintings submitted were spring and the beautiful flowers blooming everywhere.”

Read more

Be inspired – please send an online card featuring artwork by MS artist Tammy Jennings and spread awareness of MS and MSAA.

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January 2015 Artist of the Month: Celebrating the Work of Artists Affected by Multiple Sclerosis

MSAA is very proud to present our 2014 Art Showcase – celebrating the work of artists affected by MS.

We have received many wonderful submissions from across the country and are delighted to share their work and their stories with you. Please visit our online gallery to view all of the new submissions.

January Artist of the Month:
Bob Donner – Apple Valley, MN

 Bob Donner - Aurora Campfire

About the Artist:

“I think you have MS, the doctor said to my wife and me, and then promptly left the room. We stared at each other, wondering ‘What the heck is MS?’ Of course we’d heard of MS, but to us it was only a charitable cause with no personal connection. Since that day in June 2008 we have learned so much, probably way too much, about MS.

Being forced into ‘medical retirement’ gave me the time to discover I had an artistic side. Due to its constant availability, a computer screen became my canvas. I may be confined to a wheelchair, but my art has opened up a new world to me – a world of color and shapes and shading. It has forced me to look at everything with ‘new”eyes. As limiting as my disability is, I can’t help but be grateful for what it has given me.”

Read more

Be inspired – please send an online card featuring artwork by MS artist Bob Donner and spread awareness of MS and MSAA.

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How Small Changes Can Make a Big Difference in the New Year

By: Matt Cavallo

While most people are planning for their New Year’s resolutions, many of us with multiple sclerosis are just trying to feel normal again after all the holiday activities. The problem with the holidays is that they take us out of our normal routines and create financial and emotional stress. When we go outside of our normal routine or have increased stress, we unknowingly put ourselves at risk for an MS exacerbation, or relapse.

Last year I blogged, “Tips for Avoiding a Post-Holiday Multiple Sclerosis Flare”, which can be read by clicking here. Those tips include: developing a financial plan, changing eating habits, exercising, getting back on your schedule and setting attainable goals. You can enjoy the holidays, but it is critical to have a plan to get back on track.

Most times my tips come from lessons I’ve learned the hard way. Instead of taking my own advice last year I tried to be super dad and ran myself ragged. I spent the next couple of months trying to recover from the MS fatigue, was unable to take off the extra holiday weight and had to buy new pants with a stretchy waist band.

You see, you don’t have to wait until the New Year for a do-over. Resolutions can start at any time. Mine was to ditch the stretchy pants. I made sure to start working towards it before the holiday season began. I also made a couple of smart decisions along the way.

I took extra time off to make sure that I wasn’t stressed with last minute running around. Taking care of the gifts ahead of time also softened the financial stress of the season, because the costs were spread out. We didn’t stray too much from our regular diet, but did allow some holiday goodies. I also made sure to take extra time to rest. Taking the time off to spend with my family allowed me to be super dad and catch up on rest.

With all of the planning I did ahead of time, I am much less stressed and fatigued than last year. I am also down a couple of pounds and can ditch the stretchy pants. I’m still not exactly where I want to be yet, but I am working on it. A pleasant side effect of implementing a resolution before the New Year is that I actually believe that I have some attainable goals that I can stick to.

What I learned is that I don’t need a holiday to commit to feeling better. I cannot control what MS does to me, but I can control other things like fitting into my pants. Making small changes can have a big impact on how you feel or how fatigued you are. What little changes are you going to make in 2015?

Thank you for your continued readership and support. Wishing you and yours a happy, healthy New Year!

*Matt Cavallo was diagnosed with multiple sclerosis in 2005. Matt is an MS blogger, author, patient advocate, and motivational speaker. Matt also has his Master’s degree in Public Health Administration. Matt is the proud father of his two sons, loving husband to his wife, Jocelyn, and best friend to his dog, Teddy. Originally from the Boston suburbs, Matt currently resides in Arizona with his family. To learn more about Matt, please visit him at : http://mattcavallo.com/blog/

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Wishing You a Safe and Joyous Holiday Season

MSAA_Holiday_Cards8There is still time to share holiday greetings and raise awareness about MSAA! Please visit support.mymsaa.org/holidaycards to send a holiday or New Year’s eCard to everyone on your list!

PLEASE NOTE:  MSAA’s offices will be closed Wednesday, December 24th, through Sunday, December 28th. 

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