Stories to Inspire: MS Client Swims for MS and More

By Peter Damiri

“I actually hugged my doctor when I found out I had MS,” explained Simone Sanders, 29, of Seaside, California. “After having so many symptoms for so long, I was relieved they found out what was wrong with me and that something could be done to help. But then, I was also frustrated that I had a chronic illness that had no cure.”

Simone struggled with a myriad of unexplained medical issues since her early 20s. Following the onset of several severe exacerbations, she underwent MRI testing and received the official diagnosis of multiple sclerosis.

“I lost my vision, couldn’t walk, and lost my job,” recalled Simone. “I couldn’t drive or go anywhere, wasn’t active, and became very depressed. But I found support from MSAA as well as talking with others who have MS. They pulled me out of my depression and helped me realize that I can accept my diagnosis of MS but do not have to be crippled by it.”

Now married to an Airman First Class in the United States Airforce and looking to start a family, Simone has since regained the majority of her vision and ability to walk, but still struggles with daily fatigue and a variety of periodic MS symptoms. However, rather than focusing on the negative, Simone maintains a powerful fighting spirit as she strives to improve her physical and emotional wellbeing through diet, exercise and a deep, personal commitment to help others with MS.

“I try to be as active as I can, running 5K charity races with my cooling vest from MSAA – which has been a lifesaver. I’m always looking for new ways to help the MS community and was happy to find Swim for MS,” said Simone.

“I had a passion for swimming ever since I was eight-years-old and was really good at it. After my diagnosis, it made sense to go back to swimming and exercising in the water, especially when I had access to a pool. Then when I heard about Swim for MS I said, this really fits with my interests and passion and it’s for a good cause for people like me.”

With the goals of swimming 1,000 laps in three months and raising $1,000 for MSAA, Simone began her Swim for MS challenge in late March. She bases her ambitious goal on her average swim of 10 laps per day, but also recognizes this can fluctuate due to her struggles with fatigue and other MS factors.

“Some days are really bad days and even some weeks are bad, but when I’m in the pool I know that I can push myself to do my best,” said Simone. “The coolness of the water helps keep me from being overheated and I can float to rest when needed.”

Recognizing the benefits she receives from her cool suit, Simone would like to dedicate donations from her Swim for MS fundraiser to help support MSAA’s Cooling Program as well as other vital services. She recently enlisted the support of her mother to help recruit donations from family members and plans to promote her Swim challenge to her new military family as well.

“Even though my goal is to swim 1,000 laps, I feel accomplished no matter how many I finish because in spite of everything I’ve been through, I’m still able to swim,” Simone said. “I tell myself every day to have courage and have faith. Have the courage to get up in the morning and have the faith to get through the day, and do the best you can.”

MSAA would like to thank Simone for granting us this interview, choosing to support the MS community through Swim for MS, and inspiring all of us to stay positive and keep fighting every day. To visit Simone’s webpage and support her Swim for MS challenge, please visit: http://support.mymsaa.org/goto/simoneswim. For more information on aquatic exercise and MS or how to start your own Swim for MS fundraiser, please access www.SwimForMS.org.

Simone Sanders - Copy

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A Day On, Not a Day Off.

Is not this, then, a century worth living in – a day worth serving? And though toil, hard, heavy toil, be the price of life, shall we not, young men and women, gladly work and sacrifice and serve…?” – W.E.B. Dubois, 1898

On Monday, January 18th our nation will once again pause to remember the great Dr. Martin Luther King, a leader and activist most noted for his role in advancing the civil rights movement. This day gives us the opportunity to reflect on his legacy of service and explore what service means to us in this current age.

MLK Day 2016MLK Day is the only federal holiday observed as a national day of service, and celebrated as “a day on, not a day off.” Each year, citizens all across the country honor Dr. King’s memory by participating in acts of service that benefit their community. This Monday, January 18th, we encourage you to help improve lives today for the multiple sclerosis community as your act of service.

We would love to hear how you are spending your Monday. Let us know what fun activities you’ll be doing either here or on our Facebook page.

Need some ideas of how you can be of service to the MS community?

1. Donate your time by creating a fundraising event to benefit MSAA.
2. Participate in Swim for MS.
3. Make a purchase from a company that supports charitable causes.
4. Make a monetary contribution.
5. Sign up for our Street Squad program and begin spreading the word about MSAA.
6. Perform random acts of kindness for someone in your community.

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CANNONBALLLLL!!!

Cajun Cannonballs - FB 2Swim for MS participant Joshua Piro and the Cajun Cannonballs have done a fundraiser every Fourth of July to raise awareness of MS and funds for MSAA’s programs and services. This year, MSAA invites you to join the fun and get cannonballing this holiday weekend in support of the MS community. So grab your friends and family and Cannonball for MS! Submit your pictures by using #SwimForMS on social media and you could win some cool Swim for MS gear. Please visit SwimForMS.org/Support to register today.

Even if you’re not a fan of the water, there is still a way you can get involved and help improve lives today with MSAA. We’re looking for enthusiastic, passionate people like you to join our Street Squad!  Street Squad members work to spread the word about the Swim for MS fundraiser and raise awareness for MS.

Street_Squad_button

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Splash for Multiple Sclerosis on Memorial Day

This Memorial Day, MSAA invites you to join our team and help us make the BIGGEST splash yet! Whether you’re a swim enthusiast or just enjoy the water, there are numerous ways you can participate and be a part of MSAA’s Splash for MS Memorial Day Team.

Here’s how YOU can participate:

  1. Register on MSAA’s Splash for MS Memorial Day Team today and get your Swim for MS swag to show off while you’re having fun in the sun.
  2. Make a donation to the event! Click here to make a donation toward our goal.
  3. Already registered to Swim for MS? Email us at swim@mymsaa.org and we’ll add you to MSAA’s Splash for MS Memorial Day Team.
  4. Tweet, Instagram, or Post a picture of you and your friends and family making a splash on Memorial Day! We will be posting pictures of team members showing their support for the MS community all across the country so don’t forget to check out MSAA on all your favorite social media platforms! #SwimForMS #MemorialDaySplash
  5. Don’t have a pool? No problem! Get in on the fun at your nearest beach, river, or even your backyard Slip ‘N Slide! Take a dive, swim laps, dip your toes in the water, or just float your way through Memorial Day.
  6. Any Pool, Any Time, Any Way you Swim for MS helps Improve Lives Today!
  7. The first 10 people to register by May 15th will receive a very cool Swim for MS carry-all cooler chair!

The great thing about this event is that you can choose how you’d like to participate – swim laps, makes some waves in the ocean, or run through the sprinklers with the kids! Click here to register today!

 

Don’t forget that Swim for MS is a year-round fundraiser. Even if you can’t participate this month, any time is the right time to dive into action to show your support for the MS community. Any pool, any time – the choice is yours!

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MS Awareness Month: A Chance to Make a Difference!

By: Meagan Freeman

Every March, we have the opportunity to share our own stories and participate actively in spreading awareness about multiple sclerosis. The possibilities are endless, ranging from the MSAA “Swim for MS” fundraiser, MS biking events, MS walks, read-a-thons for our children in schools, and any other activity that might assist in spreading knowledge about our illness. This disease continues to be poorly understood by many, and it is still considered rare, with an incidence of 1 in 1000 in the US currently. The need for awareness has never been greater, and we can all have a hand in educating others. If we each take on the task of sharing information with those around us, knowledge can spread like wildfire.

Many patients find that they are unable to participate in these activities to support MS awareness. Many fundraisers are physical, such as running, walking, biking, and swimming events. Sometimes, the thought of participating in an event like these can be daunting for those with physical disabilities. Some patients might think, “How can I possibly participate in these?” There are a myriad of options for those who may not have the ability to actually take part in a physical event, however.

Fundraising while a family member or friend completes the physical part of the event is a wonderful option. I have had several friends participate in local MS “muckfest” and running events, while I took on the task of raising donations. I helped advertise and share information, while my runner friend completed the event. We managed to raise $2000 together last year alone. No amount of money raised is too little, and no one should feel like they cannot make an impact.

Another option is to spread awareness through blogging, speaking and writing. My personal contribution to MS awareness continues to be my blog. I started this blog with the goal of sharing my own personal experiences with MS in order to educate, and to ensure that no patient ever feels isolated or alone. The simple act of sharing your story may have a greater impact than you ever imagined. The thought of helping others simply by sharing your story is incredible! You never know who needs to hear your experience at that very moment.

Whether you choose to donate to an MS organization such as MSAA, to participate in an MS event, or simply share knowledge and educate through writing or speaking, you can make a difference. If every MS patient takes on the challenge of increasing awareness about our illness, we are capable of making sweeping changes. Let’s work together during the month of March (and beyond,) to increase knowledge, share our stories, and have a personal impact on finding the eventual cure for multiple sclerosis.

*Meagan Freeman was diagnosed with RRMS in 2009, at the age of 34, in the midst of her graduate education. She is a Family Nurse Practitioner in Northern California, and is raising her 6 children (ranging from 6–17 years of age) with her husband, Wayne. She has been involved in healthcare since the age of 19, working as an Emergency Medical Technician, an Emergency Room RN, and now a Nurse Practitioner. Writing has always been her passion, and she is now able to spend more time blogging and raising MS awareness. She guest blogs for Race to Erase MS, Modern Day MS, and now MSAA. Please visit her at: http://www.motherhoodandmultiplesclerosis.com.

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March is MS Awareness Month

MSAwareness2015

 (right-click this image and save it to your computer to use on social media)

MSAA recognizes March as MS Awareness Month. Throughout the month, we encourage everyone to increase their knowledge, understanding, and support of individuals whose lives are affected by multiple sclerosis. MSAA is a great place to start to learn more about MS and you can discover the many ways we improve lives today through our vital programs and services.

MSAA offers the following ways to learn and support the MS community this month and throughout the year:

  • With 39 titles and growing, our MSi Video Library contains educational videos and webinars on a variety of topics specifically focused on the MS community.
  • In addition to MSAA’s award-winning magazine, The Motivator, we also offer many publications to educate the community including the recently published booklet, Improving Lives Today! A Guide to MSAA’s Programs and Services.
  • Throughout the year, MSAA hosts educational events for people with MS and their care partners – check out our Calendar of Events to find upcoming programs happening in your area.
  • MSAA’s Art Showcase highlights the amazing artwork created by talented individuals with MS. You can even send an eCard to family and friends featuring the artwork of your favorite artist to help raise awareness about MS.

Interested in helping the MS community?

  • Register today for Swim for MS and help raise awareness and funds that directly support the MS community! Getting started is as easy as 1-2-3! Check out MSAA’s Swim for MS video.
  • Help us spread MS awareness by using MSAA’s “March is MS Awareness Month” badge (located at the top of this page) as the profile picture on all of your social media platforms. Don’t forget to use the hashtag #MSAwareness in your posts!

Thank you for all of your efforts to help spread the word and raise awareness about MS during MS Awareness Month! We greatly appreciate your continued support of our vital mission of improving lives today for the entire MS community.

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Flying High!

by Kimberly Goodrich, CFRE, Senior Director of Development

Justin Yuhaze

Our local NHL team, the Philadelphia Flyers, is known for its recognition of those who give of themselves to their community. Their Flyers Hometown Hero program was developed to recognize organizations and individuals that make a positive difference in the lives of others. The Flyers award each Hometown Hero with two tickets to a Flyers game, a personalized Flyers jersey and recognition on the scoreboard during the game. Last night’s game against the Columbus Blue Jackets recognized South Jersey resident Justin Yuhaze for his contributions to MSAA and the MS community.

Justin was recently diagnosed with multiple sclerosis himself, an event that left him with the realization that he didn’t know much about MS. Immediately, he began educating himself about every aspect of MS. “I didn’t know much about MS at this point, but I stopped in at MSAA in Cherry Hill, NJ and they were able to provide me with books, magazines, and told me about an upcoming lecture on the history of medical treatments for MS,” says Justin.

Then Justin decided to participate in MSAA’s Swim for MS fundraising initiative, where he dove into action to help raise awareness and funds to support individuals, like him, who are living with MS. Justin and his wife Julie joined volunteers all across the country who have created their own swim challenge while recruiting online donations to support the vital programs and services offered by MSAA. Justin and his family surpassed their goal, adding to the more than $320,000 that has been raised through Swim for MS.

“We swam all over South Jersey in pools, lakes, and the ocean. Together we swam over 13 miles. By swimming, we can raise awareness about this incurable disease, and provide help to those who need it most. Our fundraising efforts can provide cooling vests, wheelchairs, fund MRI’s, and educational programs and services.”

Thank you Justin for being a part of Swim for MS and supporting our many vital services. Thank you Philadelphia Flyers for recognizing one of the many heroes who give back to their communities! Go Flyers!

To read more about Justin and his Swim for MS challenge or to make a donation, please visit his Swim for MS webpage.

*About Kimberly

I am the Senior Director of Development at MSAA and have worked in the nonprofit arena for over 15 years. I love reading, running, theatre and the Green Bay Packers. I volunteer with the Disabled American Veterans teaching outdoor sports like skiing and kayaking to injured veterans and find that I receive much more from them than I am able to give. 

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Monday is a Day of Service

by Kimberly Goodrich, CFRE, Senior Director of Development

In 1994, Congress declared the federal holiday honoring Dr. Martin Luther King to be a day of service. Each year, citizens all across the country honor Dr. King’s memory by participating in acts of service that benefit their community. This Monday, January 19th, we encourage you to help improve lives today for the multiple sclerosis community as your act of service.

MLK 2015

Start volunteering today!

Need some ideas to help the MS community?

1. Donate your time by creating a fundraising event to benefit MSAA.
2. Participate in Swim for MS.
3. Make a purchase from a company that supports charitable causes.
4. Make a monetary contribution.
5. Sign up for our Street Squad program and begin spreading the word about MSAA.
6. Perform random acts of kindness for someone in your community.

We would love to hear how you are spending your Monday. Let us know what fun activities you’ll be doing either here or on our Facebook page.

MLK Day infographic

*About Kimberly

I am the Senior Director of Development at MSAA and have worked in the nonprofit arena for over 15 years. I love reading, running, theatre and the Green Bay Packers. I volunteer with the Disabled American Veterans teaching outdoor sports like skiing and kayaking to injured veterans and find that I receive much more from them than I am able to give.

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Swim for MS: Give me a T-E-A-M!

With the start of the new school year and a new swim team season, MSAA’s Swim for MS has seen tremendous support. All over the country, swim teams are working together raising money to improve the lives of those living with MS.

Swim for MS encourages volunteers to create their own challenge, such as swimming laps or set distances over a chosen period of time while collecting donations for their personal fundraising goal. These challenges can be done individually or through group swims by teams of young and old alike. The NCMP Aquagirls, a Girls’ High School Swim Team from Iowa, created an event that would push them into swim shape early while creating awareness and raising funds. Their team captain, Rachel, challenged the team to swimming 50,000 total laps during the month of September. They collected pledges in August and September to raise over $1,000 for Swim for MS.

NCMP Aquagirls

NCMP Aquagirls

Lexie and team

Lexie & Team at her Swim for MS event

Volunteers also raise funds through a variety of unique one-day events such as pool parties, water-volleyball tournaments, and cannonball challenges. Unlike more traditional MS fundraising activities, Swim for MS allows individuals with MS at any stage in their journey – from the recently diagnosed to those with limited mobility – to benefit from water exercise and assist in raising donated funds for a vital cause. Lexi and her Swim for MS Team participated in a one day Swim for MS event held at her high school in Indianapolis and raised over $2,800 in September.

Just because October, November, and December are filled with back-to-back holiday parties, doesn’t mean you can’t organize a successful fundraiser! Stay on top of your game by encouraging a team effort for this fun event. Gather your Swim Team for a fundraising event everyone can do together. Show your school spirit by having a friendly competition between team colors, pick a side, and swim your heart out. Winning team gets bragging rights for the swim season!

On our SwimForMS.org website, you can read the profiles of some of our swimmers. They can inspire you and give you great ideas for your own Swim for MS challenge. We would like to thank everyone who has or will participate in Swim for MS!

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6 Ways to Support the Multiple Sclerosis Community

Looking for some creative ways to support individuals living with multiple sclerosis (MS)? In the following list, we’ll show you six different ways you can help MSAA improve lives today—without breaking the bank.

AmazonSmile

1. AmazonSmile— AmazonSmile is a great way to support the multiple sclerosis community without spending extra money. Simply select the Multiple Sclerosis Association of America as your charity of choice, and Amazon will donate 0.5% of the price of your eligible purchase to MSAA! Click here to learn more or to make a purchase.

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2. eBay Giving Works— Do you have some things lying around the house that you’d love to sell on eBay? If so, you can choose to donate a portion of your sales to MSAA. Visit eBay’s Giving Works website to learn more.

3. Counter Punch Wine— Calling all wine lovers! Purchase wine bottles by using MSAA’s promotional code and receive a 10% discount! The best part? MSAA will also receive 10% of your purchase—helping us to continue improving lives today for people living with MS. Please visit www.counterpunchwines.com and enter the promo code: MSAA

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4. CafePress— Get all your MSAA and Swim for MS swag here. Everything from bags and water bottles to t-shirts and bracelets make great gifts. Check out the full inventory.

*We’re sure you’ll love our shirts, but we can’t promise you’ll look this cute wearing them.

5. PuraVida Bracelets— Help us raise awareness of multiple sclerosis by purchasing an MSAA bracelet from PuraVida. $1 of each bracelet purchased will go directly to MSAA. Visit PuraVida’s site to learn more.

6. Host a Pool Party—  Now that summer’s here, invite your friends and family to the pool and have a Swim for MS themed pool party! Provide games, snacks, music, and ask for donations at the door. Your only pool party requirements for this easy event are fun & sun! Email swim@mymsaa.org to start planning your event.

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However you choose to show your support for the MS community, MSAA would like to wish you and yours a safe and enjoyable summer. If you or a loved one struggle with MS symptoms during the summer heat, please visit our website to learn more about MSAA’s Cooling Program or call MSAA’s Helpline at (800) 532-7667 ext. 154.

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