Anyone else out there…?

As we’ve just finished a very active MS Awareness Month here at MSAA we wanted to take some time to talk about support networks and positivity for this month’s blog theme. When dealing with an illness like MS, its helps to create and focus on connections to others within the community, to know that one is not alone in what they’re experiencing. From our Ask Me Anything events in March we saw lots of similarities in what others were asking when it came to their MS symptoms and disease course. On MSAA’s Helpline we often receive calls from clients asking ‘Am I the only one who’s experienced this?’ ‘Is this normal for MS?’ ‘Does anyone else have this issue?’ And we consistently find ourselves validating all of these questions and concerns, because the fact is that individuals are not alone, as there are many others out there wondering the same things.

I think the feeling of knowing you’re not alone in a challenging experience can help to quiet the fears, concerns and anxieties that accompany it. Asking if there’s anyone else out there going through the same thing and learning that there is, can make someone feel more validated and less isolated. This is why having a support network is so vital, and not only to connect with during difficult times but also to share good times with as well. It’s comforting to vent, cry or scream in times of strife and have others listen, but it’s also important to relay positive experiences, humorous moments and celebratory occasions with those in your circle. Life will have its ups and downs as these inevitably come with the ride, so sharing in the ups when they do occur can help combat the downs. If you find yourself feeling alone and asking questions just keep in mind that you’re not, and there are others out there asking too.

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April 2018 Artist of the Month: Celebrating the Work of Artists Affected by Multiple Sclerosis

MSAA is very proud to present our 2018-19 Art Showcase – celebrating the work of artists affected by multiple sclerosis (MS).

We have received many wonderful submissions from across the country and are delighted to share their work and their stories with you. Please visit our online gallery to view all of the new submissions.

Bethany Conway – Big Flats, NY
April Rain

About the Artist:
“My diagnosis was nothing more than a blessing as it enabled me to realize I only have one chance at this life. It caused me to take a turn from the dark road I was heading down, come into the light and make better choices for myself. I strive to live with intention and embrace every season of it.”
Read more

Send an eCard

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Primary-Progressive MS Ask Me Anything – A Recap

Last week, MSAA held its third and final Ask Me Anything session of MS Awareness Month 2018!  Focusing on the topic of Primary-Progressive Multiple Sclerosis, MS Expert Steven Bromley, MD spent one hour answering 19 questions from our Facebook followers.

Some of the most popular questions from the AMA with Dr. Bromley include:

  • Is secondary progressive MS treated differently than Primary-Progressive?
  • What is the feedback from any of your patients who have now had their 6 month full dose of Ocrevus (after already having the first 2 half doses 6 months prior)?
  • Why does it hurt so much when I walk?
  • Is B12 injection helpful for MS fatigue?

Find the answers to these questions and many more on MSAA’s Facebook page or on the official transcript.

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