About MSAA

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization and leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a Helpline with trained specialists; award-winning publications, including, The Motivator; MSAA’s nationally recognized website, featuring educational videos, webinars, and research updates; a mobile phone app, My MS Manager™; safety and mobility equipment products; cooling accessories for heat-sensitive individuals; MRI funding; My MSAA Community, a peer-to-peer online support forum; MS Conversations blog; a clinical trial search tool; podcasts; and more. For additional information, please visit www.mymsaa.org or call (800) 532-7667.

Latest Issue of The Motivator Now Available!

Read about the following topics in MSAA’s latest issue of The Motivator:

Cover Stormotivator winter_spring 2013y:
* The Hidden Symptoms of MS
This article describes some of the hidden symptoms of MS (including pain, fatigue, sleep, cognition, and vision), along with management strategies.
Read the full story

Research News:
* American Academy of Neurology Meeting Highlights
* Tecfidera™ Approved for the Long-Term Treatment of MS
Read the full story

Health and Wellness:
* The Affordable Care Act and You
The Affordable Care Act (ACA) aims to increase the availability and affordability of health insurance for millions of Americans who lack coverage. Beginning in January 2014, this historic initiative will significantly impact a substantial number of individuals with multiple sclerosis and their families.
Read the full story

Already receive a printed copy of The Motivator magazine in the mail? Interested in receiving The Motivator electronically only? Let us know! Please visit support.mymsaa.org/motivatorupdate.

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Swim for MS Update – May 2013

Summer is almost here! Start to plan your summer Swim for MS event today!

Looking for some ideas for your summer Swim for MS, consider these options:
1.    Host a summer pool party for Memorial Day weekend!
2.    Set a goal to swim 500 laps throughout the summer to raise $1,000!
3.    Create a pool volleyball tournament with your friends!
4.    Participate in Swim for MS and pledge to swim 100 laps and improve your fitness by the end of summer!

MSAA’s Special Swim for MS May Prize…is a Modify Watch!
Anyone who registers for Swim for MS will be entered to win a Modify Watch! Modify Watches are interchangeable watches allowing an individual to mix-and-match faces and straps to create the “Mod” that best suits you! Browse the Modify Watches blog for more information on their nonprofit collection and how to purchase a “Together” watch.

Please note: participants must register during the month of May 2013 (5/1/2013 through 5/31/2013) in order to be eligible. The winner will be announced via email in the June 2013 edition of the Swim for MS News e-newsletter.

The May 2013 Winner is…
Missy Franklin Autographed Photo:
Congratulations to Laurieann Hart for raising $1,220 through Swim for MS in the month of April!

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Lesson from a Mom with MS: You’re Stronger Than You Think

By Hannah Cusworh
2013 Swim for MS Participant

You’ve heard of all the banal platitudes like “Never take ‘no’ for an answer,” “If you fall off the horse, get right back up,” and ”When there’s a will, there’s a way” – I’m almost certain my mother coined all of those phrases.

My mother was diagnosed with multiple sclerosis (MS) at a young age when she started losing vision in one of her eyes. Fortunately that symptom subsided and she continued living her life as she intended. Four kids and a few decades later, the disease awoke again with a force to be reckoned with. Our warm summer beach vacations were moved to cool mountain ranges in order to minimize her exhaustion. Our Sunday afternoon bike trails shortened. Our floor-level card games moved to higher ground. Afternoon rests became a daily routine. Our everyday Mom activities had changed forever. At least that’s how I saw it.

My mother, on the other hand, never let that be the case. She never sought out pity from others, she never asked for help. Anything we did before, she’d find the strength to do it in her own new way. She wasn’t going to take “no” for an answer, she got back up on her horse, and she found a way. Yes, her everyday mobility has shifted towards a slightly different way of living, but life hasn’t changed.

While many cases of MS can be much more debilitating than the one my mother battles, I encourage those suffering from this life-changing disease to maintain the strength my mother has shown me. In honor of her continuing battle and as a tribute to her perseverance, this April I took on a personal “Swim for MS” challenge to swim 500 laps and raise $1,000 in 30 days. Sound hard? Not when you have this kind of inspiration.

Read more about Hannah’s Swim for MS on her webpage today!

 

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Highlights from the American Academy of Neurology’s Annual Meeting

The American Academy of Neurology’s (AAN) 65th Annual Meeting took place in San Diego, California in March. This large medical conference presents the latest findings in research and treatments for neurological conditions, including multiple sclerosis (MS). MSAA has compiled important highlights from the meeting in the following article on mymsaa.org: https://www.mymsaa.org/news-msaa/871-aan-highlights-2013

 

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Mother’s Day is Almost Here

Mother’s Day is almost here!

All that I am, or hope to be, I owe to my angel mother. – Abraham Lincoln

Mother’s Day is a wonderful opportunity to honor the special mothers in your life. They could be your own mom, a sister, grandmother, daughter, friend, or co-worker. While these caring individuals deserve to be recognized every day, we can pause and give thanks on this very special day. Honor these special women with a donation to the Multiple Sclerosis Association of America (MSAA). Your donation will enable us to fulfill our mission of improving lives today for the entire MS community. With each donation, you will have the option to send a personalized online card to the person being honored, letting her know of your support of MSAA.

Your gift supports vital services and support such as our toll-free Helpline, equipment distribution, MRI assistance, and more.

“Thank you so much for making such an impact on my summer. I have 4 kids and I have been able to do a lot with them this season because of the cooling vest. Even take them swimming in the humidity. I appreciate your kindness.”
– I. P., North Carolina 

Please make your special Mother’s Day donation today! Improve lives today by honoring the special women in your life.

Happy Mother’s Day!

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Four Days Left

As April comes to a close, so does MSAA’s partnership with Modify Watches. In a previous post we announced for the month of April MSAA is the beneficiary of Modify Watches’ “Together” watch.

Modify will be donating $20 to MSAA for EVERY “Together” watch sold during April (even for members of their Mod of the Month Club who are receiving a 20% discount). If you would like to purchase a Together Watch to support MSAA visit Modify’s Non-Profit Collection.

modify watch
 

 

Please share with your friends and family today! Support  MSAA  today with the Modify “Together” watch!

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Do you have questions about how the health insurance reform law (ACA) will impact you?

The Affordable Care Act (ACA), which was passed by congress in 2010 is making some very big changes to the entire insurance industry including both public and private insurance policies. Many large scale changes are taking effect beginning in January 2014. Beginning on October 1, 2013 you will be able to  begin to shop for insurance policies in the new  Health Insurance Marketplace.

Recently, MSAA has added a new section to the website on the ACA and the changes that are coming. Please take some time to become familiar with this new insurance landscape. If you have specific questions about insurance, please contact MSAA’s Helpline at (800) 532-7667, extension  154 or email msquestions@mymsaa.org.

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A New Perspective on the “TO DO” List:

There is an old adage about a woman looking in the mirror before she goes out and removing one piece of jewelry. Another maxim is the one–in, one–out rule, which is when an individual brings a new item home, one item must be removed.  What do both of these having in common?  They help us when we have too much “stuff”, which can result in clutter in a person’s life.

Taking this idea one step further, many people find that they commit themselves to too many activities or tasks.  Does it really have to be work, and family, and friends, and exercise, etc. (not to mention and MS)?  For most people all of the “ANDS” become impossible to manage at some point.

Learning to say “no” and find your own personal limits is a lot like the tip about removing one item of jewelry. Sometimes we get into the mindset that more is better, until we are forced to learn that less can sometimes be just as good. Now obviously, there are many things which are non-negotiable and you can’t choose to say “no” to those.  So maybe focus on the ones in life you can say “no” to.

Take a look at your schedule for the week, or even just the day. Look at all the things you promised yourself to do and then see if there is maybe even just one thing you can take out.  If you did would it give you more time to enjoy or appreciate (or even just deal with) everything else you have going on?

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Swim for MS Updates – April 2013

MSAA is excited to share several updates on Swim for MS.

National Volunteer Week and Global Youth Service Day

Are you looking for a way to get involved with a great cause or receive volunteer hours? National Volunteer Week is April 21-27 and Global Youth Service Day is April 26-28! The theme this year is Celebrating People in Action.

How You Can Get Involved

During National Volunteer Week or Global Youth Service Day, take the pledge to Swim for MS and spread awareness in your community! Here are some ideas:

  • Pledge to swim 100 laps or jump 250 cannonballs and raise $250.
  • Pledge to distribute 50 Swim for MS brochures in your community*.
  • Pledge to ask 10 local stores to post a Swim for MS flyer on their window or on a wall*.
  • Contact your local community pool and set up a one-day Swim for MS event, such as pool volleyball, a team relay race, or a pool party.

*If you will be distributing flyers or posters, please submit this form. MSAA will contact you within 24 hours.

Pura Vida Bracelets

MSAA has partnered with Pura Vida Bracelets for MS Awareness! For each bracelet purchased, Pura Vida will donate $1 to MSAA. To get your Pura Vida Bracelet, please visit this link.

CaféPress

Swim for MS has a CaféPress site! Here, you can spread awareness by purchasing a Swim for MS hat, backpack, sticker, car magnet, and more! To view our Swim for MS shop, please go to CafePress.com/SwimForMS!

MSAA’s Partnership with Fitter and Faster

The Multiple Sclerosis Association of America (MSAA) is pleased to announce its new partnership with Fitter and Faster Swim Tour to help promote Swim for MS. Fitter and Faster Swim Tour (FFT) organizes and plans professionally managed swim clinics across the United States to teach and inspire swimmers of all ages and skill levels.

Serving as a distribution sponsor for Swim for MS, FFT will promote it partnership with MSAA to all those who attend their 2013 national clinic tour through flyers and onsite announcements, include the Swim for MS name on each participant’s identification wristband and post ongoing updates on Swim for MS activities to Facebook and Twitter.

And the April Winners are…

Missy Franklin Autographed Photo:
Congratulations to Jacob for raising $1,485 through Swim for MS in the month of March!

Disney One-Day Park Hopper Passes:
Congratulations Matt and Hannah for winning two Disney one-day park hopper passes!

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Medications…How do I know what to pick?

With the recent approval of Tecfidera, individuals with relapsing forms of MS now have 10 different disease modifying therapy (DMT) options to discuss with their physicians. Having choices and options for treatment is a good thing; however, having choices brings challenges as well.

Now there are not just a few factors to consider when working with your physician to determine the most appropriate treatment choice. Instead of a few options you will be asked to consider a number of different factors in relation to each medication (creating the potential for major headaches).

Some of the most obvious choices are in relation to mode of administration (injection, IV infusion, or oral), while other considerations include efficacy, safety profiles, and risks associated with each medication. Combining all these factors and more can seem like a daunting task.

As a result, MSAA designed S.E.A.R.C.H.™ as a tool to help you navigate the complex process of selecting an MS DMT medication. The framework allows you to organize information about these medications and gets you thinking about which questions and concerns are most important for you when selecting a medication. Having a clear picture of questions to ask can also help facilitate and improve discussions with your treating physician around medication options.

So, if you are considering a new or different medication, let MSAA help you S.E.A.R.C.H.  for the right therapy for you! You can find the S.E.A.R.C.H. information on MSAA’s website, www.mymsaa.org, or call (800) 532-7667 and ask to speak to a Client Consultant.

 

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