Beat The Heat

Posted on June 16, 2023 by Teena Palathanam

Summer is back with a bang and who does not want to have a little fun when the sun is all out and magnificent. Whether you are mowing the lawn, hiking a trail or bird watching, the heat can be harsh at times and it is good to figure out the best approach to tackle the heat. Especially for individuals with heat sensitive MS, the higher temperatures can trigger flare ups and exacerbations. Besides cranking up the AC, here are some cool and practical ways to beat the summer heat:

Cooling Accessories: Cooling accessories like vests, hats, scarves can be very useful for outdoor as well as indoor activities. Using neck, wrist and ankle coolers act quicker as the blood vessels in this area are in closer proximity to the skin thereby cooling the body at a much faster rate.

Cool drinks: The most important way to prevent dehydration is to hydrate. It is recommended to drink around eight cups of water every day. Always keep a bottle of water or any other preferred drink near you. If you want it to be cooler, add crushed ice to your drink or beverage.

Fans: Usage of ceiling fans, pedestal or tower fans can blow the hot air out and let the cool air in. Another easier and cost-effective alternative would be to open the windows on both sides of the house that will allow cross ventilation thereby bringing in the fresh breeze and cooling the house faster.

Swim: If you have access to a community pool near you, that’s the place to be. Besides, being a great physical activity, it can help to build muscle endurance and strength. You can even visit the local YMCA near you that will give you access to the pool.

Take a shower: A cold shower can be refreshing and can immediately lower the body temperature.

Wear the right colors: Stay away from darker colored clothing as they tend to retain more heat. Instead, opt for lighter summery shades like pink, blue, peach, pastels etc. Loose fitting cotton clothes can help you cool better.

Most importantly, do not forget to wear sunscreen while going outside. This summer whatever you plan on doing, I hope that you have one filled with sunshine and good times.

Summer Heat and Changing Goals

Posted on June 14, 2023 by MSAA

By Stacie Prada

Each day, week, weekend, season, and year, I like to think about what my goals are. What will I want to accomplish? When it’s over, will I have a sense of fulfillment for the choices I made and how I spent time?

Each season or time of year has a different set of inherent challenges that aging and multiple sclerosis make more challenging. Spring and autumn consistently trigger fatigue and body malfunctioning for me. I blame the weather changes and obligation surges.

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Be Proud of Yourself

Posted on June 9, 2023 by Dana Carney

By Dana Mietus

Every summer, a familiar pattern emerges. The weather warms up after months of being indoors, and I find myself anticipating exciting summer events and vowing to make the most of each one. Particularly in the month of June, when Pride celebrations are in full swing weekend after weekend.

Yet, every summer, I find myself overwhelmed by these events that I think should excite me. The adrenaline crash from giving up on plans leaves me feeling tired, guilty… and oddly relieved?

Let’s be candid. Summer can be hot, humid, demanding, busy, and downright exhausting. So why do I look forward to it every year? The truth is that some of my favorite memories took place in the summertime. How is this possible when it now fills me with dread?

The answer lies in managing my own expectations.

I tend to view every summer plan and event as mandatory, believing my presence is necessary for the summer to be a “success.” But when did summer become a graded experience? My fondest summer memories come from organic moments spent outdoors with loved ones—no special events, no strict schedules, and no expectations.

Ironically, my attempts to recreate those moments by overloading my schedule with events have led to my inevitable overwhelm and disappointment.

Take Pride, for instance. I’ve yet to attend my local pride parade, which would lead me to fear that I was missing out on a crucial yearly event and that I was guilty of not showing up for my own community.

But let’s consider a few things:

I’m susceptible to heat and easily overwhelmed by crowds…so of course it may not be the best idea for me to attend a parade in the summer heat. No wonder just the thought of attending makes me fatigued.

Why didn’t I connect these dots sooner? And what’s the solution?

Here’s an idea I’m going to try and implement:

First, reflect on what genuinely brings you joy and why. This could be as general as spending time with friends or being outdoors. Or you can apply it specifically to an upcoming event. For instance, I might have an easier time in crowds if it is in a different setting I enjoy, such as concerts or sports events.

Next, objectively list some factors that hinder your enjoyment of these events. In my case, it’s the heat, crowds, and difficulties accessing restrooms or parking. These are all things that might make me apprehensive about attending an event.

Plan accordingly or consider trying something new. How can I lessen my apprehension? Would taking an Uber help to alleviate the stress of finding parking or getting into a scorching hot car after an outdoor event? Maybe I can locate a nearby restaurant or café to cool down and have access to a restroom afterward. Instead of attending a pride parade, I could explore a pride-themed event at my local bookstore or library.

Lastly, take a moment to rest, recuperate, and most importantly, be proud of yourself for prioritizing and caring for your needs. If you’re anything like me, this may be easier said than done. So let me say it to both of us this time:

I’m proud of you.

It’s Cool to Be Cool

Posted on June 5, 2023 by Emily

The summer months are chock-full of fun activities, and most of these activities are outside. For those living with MS, being outdoors for an extended period of time can be taxing on both the body and mind. I have a list of things that I do in the summer months to stay calm, COOL, and collected when being outdoors, so I too can enjoy these fun activities with everyone else.

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Hope Angel – June 2023 Artist of the Month

Posted on June 1, 2023 by Emily

MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Hope Angel as the June Artist of the Month. Hope is from Seattle, WA.

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Our Needs as Loved-One and Caregivers

Posted on May 30, 2023 by MSAA

By: Suzanne Marriott

I remember when my therapist reminded me that my husband was often in survival. She was referring to the most basic of human needs as defined by Abraham Maslow in his Hierarchy of Needs.

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MS and Mental Health

Posted on May 25, 2023 by Courtney Merker

Whether you live with a chronic illness or not, there are many reasons why people struggle with mental health. Facing the complexities of life and other stressful factors, the line between feeling down and having depression can often become blurry. Even if you’re not clinically depressed, it is normal to feel low occasionally, but this doesn’t make it any easier. Especially when living with Multiple Sclerosis, this condition may complicate things even further.

Multiple Sclerosis affects everyone differently. Although symptoms vary from person to person, it’s common to experience difficulty walking, weakness, numbness, and tingling. Without a doubt, these physical symptoms are challenging. However, emotional challenges and mental health struggles can be just as, if not more, debilitating.

Fortunately, mental health awareness has come a long way in recent decades which has resulted in more research about the role mental health plays in our well-being and how to address it. Maintaining your mental health while living with MS can be managed through coping strategies. Here are a few ways to improve your mental health and emotional well-being:

Don’t overexert yourself. Be kind to yourself and have grace. Listen to your body and do what your body can handle.
Consider therapy. Engaging in therapy can be an effective way to recognize your emotions and feelings and evaluate them to better help you.
Focus on life outside of MS. It’s essential to remember that MS does not define you. You are so much more than your diagnosis! Focus on your goals, projects, and fun plans. Take a step back from the demands of MS and nurture your mental health.
Prioritize movement and exercise. Exercise has abundant benefits for the mind, body, and soul. A few activities can include chair yoga, walking, bicycling, or swimming. Find a hobby that you enjoy and that you can physically and emotionally partake in.
Locate a local support group for MS patients.

Multiple Sclerosis is a challenging diagnosis that can pose mental health impacts on individuals. It’s essential to recognize when you’re feeling down or just not yourself. Make self-care a vital part of your daily routine. There may be times when self-care techniques are not enough. In this case, it’s essential to seek professional help and speak with your doctor. Do not be afraid to ask for help if you are having a difficult time. It is not a sign of weakness, but rather a sign of strength to know when you need help.

Empowering Your Mental Health

Posted on May 19, 2023 by Teena Palathanam

The importance of mental health is often understated and MS being a highly unpredictable disease can come with its own challenges. There is a stigma associated with mental health which is why many find it difficult to talk about the rollercoaster of emotions they might be experiencing, especially if one is going through MS. Building a support system is crucial to one’s mental health as they are the ones who will stick by your side through thick and thin. Building support takes time, patience, and effort. Here are some ways to take control of your mental health:

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Growing Pains

Posted on May 17, 2023 by Diana Cruz

By: Diana Cruz

Being diagnosed with a medical condition, especially at a young age, can take on an unfathomable toll. Physical, mental, and emotional aspects of yourself that haven’t even fully developed are now forcibly taking on the additional role of simultaneously fighting, healing, and growing. As someone who was diagnosed with an autoimmune disorder as a child, and displayed symptoms even earlier on in life, it was difficult for me to understand what was going on with my body. The non-stop infections, the continuous weakness that increased with weekly blood tests and frequent operations, and the never-ending dizziness at an age where I was supposed to be the most energetic left me feeling inexplicably different than the kids around me.

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Recipe of the Month: Keto Cookie Dough Bombs

Posted on May 15, 2023 by Melissa Young

If you are looking for a low-carb, keto-friendly recipe, look no further. These quick and easy bombs are delightful! They’re simple to make with cream cheese, peanut butter, vanilla, sugar substitute, and chocolate chips. Mix everything together and store in the freezer.

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