The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis (MS). MSAA provides ongoing support and direct services to individuals with MS and the people close to them. MSAA also serves to promote greater understanding of the needs and challenges of those who face physical obstacles.
MSAA offers a variety of programs and services in all 50 states: Helpline consultations, equipment distribution, MRI diagnostic funding, resource assistance, and public awareness campaigns. MSAA also provides valuable information on the disease and symptom management through its award-winning literature and educational videos.
Founded in 1970, MSAA’s philosophy and effort have focused on enriching the quality of day-to-day living for everyone affected by MS. The organization helps each individual on a personal level and relies on volunteers and support from the general public – MSAA does not receive any government funding.
Working to break down barriers (physical, emotional, and social) and build up hope for those who are physically challenged, MSAA is governed by a national Board of Directors who are leaders in business and community affairs across the United States . Through their combined experience with MS, medicine, business, and government, these individuals are able to provide increased understanding and support for MSAA’s staff and programs. A professional Healthcare Advisory Council representing significant leadership, knowledge, and expertise in the fields of neurology, nursing, and physical therapy also provides strategic support and guidance on health-related issues.
Regionally MSAA has professional directors in field offices supporting national programs and leading educational events. They raise awareness through these conferences and workshops. Through such events as well as an online networking program, MSAA brings people together. Combined with other vital services and ongoing updates to provide breaking news on research and treatments, MSAA strives to be a first resource for everyone in the MS community.
MSAA is a leader in the MS Coalition effort and is a member of the Health First division of America ‘s Charities. MSAA qualifies to use the Better Business Bureau standards and the HONcode certification for trustworthy health information online.
Hi, I would like to have feedback from other people with multiple sclerosis
I have not been diagnosed with ms def. I have an impressive amount of lesions alot shaped like ms, but there are alot not shaped. Neuro has me getting secong opinion. My insurance co just denied me for the cadasyl test. Is there anything i can do? can i get more info on cadasyl?
Rachel,
Thank you for your comments. The disease of MS can be very challenging to diagnose, as there are many factors that need to be taken into account to determine whether the disease is present. For more information you can contact the MSAA Helpline at (800) 532-7667, x 154 to discuss the MS diagnostic process further.
ty. i need help too. im 47, and cannot work anymore.
my neck needs surgery, and im in worse shape than my family knows. so frightening, and sad.
Thank you for reaching out Shannon, I’m very sorry to hear about the challenging situation you’re experiencing, you do not have to go through it alone. You can reach out and communicate with others living with MS through the My MSAA Community online forum, if you’re comfortable, as this is an online peer support forum for those affected by MS, https://mymsaa.org/msaa-community/my-msaa-community-forum. You can also email MSquestions@mymsaa.org for further assistance. Thank you for reaching out and take care.
Hi, my friend Lucinda(artist of the month) told me about this site and that maybe you can help.
My husband lost his job a week before Christmas, so we have no insurance. I was diagnosed about 7 years ago, but have not had the money to go back to the dr. I am feeling really sick and need help. What can I do?
Hi Dianna,
Thank you for reaching out to the MSAA with your inquiry. Please contact our Client Services team at MSquestions@mymsaa.org or by calling the helpline at 1-800-532-7667 ext. 154 for further assistance. Thank you.
I have been working for same company for over 30 years in healthcare. Was diagnosed two an a half years ago with MS and lung cancer. Now my job is cutting me to part time without benefits. I know it is because I am highest paid but they are saying its because one boss is retiring. They have over 20 docs, four locations so one will not make a difference. They also want me to sign that they can put me wherever they choose. One office is further from home and huge. Would not be able to get around there without stopping. Any thoughts? I have contacted an attorney just waiting to hear from him.
Thank you for reaching out to the MSAA. We felt as though a more personalized response was appropriate for your inquiry and will be sending an e-mail to you with additional resources. If needed in the future, please feel free to reach out to our helpline at MSquestions@mymsaa.org or 1-800-532-7667 ext. 154.
I was diagnosed with rr MS last month and am wanting some feedback on experiences regarding side effects of different medications from people who have tried them or are on them.
Thank you for reaching out Jill, I’m sorry to hear about your diagnosis and am glad you’ve reached out to the MSAA for information and support. If you’re seeking some feedback from others with MS who have had certain treatment experiences, you may want to check out My MSAA Community, the MSAA’s online peer to peer forum where you can connect with others who have MS to discuss different experiences and obtain some feedback and support about MS. You can find more information about the community on our website here, https://mymsaa.org/msaa-community/my-msaa-community-forum. Hopefully by connecting to others you can receive more answers soon. Please feel free to reach out to the MSAA Helpline for information or resources if needed too, phone (800) 532-7667, ext. 154. Take care and best of luck to you.
Not being confined to a wheelchair!
I am 82 years of age and have Primary Progressive MS. I do not use a wheelchair or a walker. I am functional with a few limitations. I walk an average of 25,000 steps a week. This is due to receiving 2 infusions of Octavius and, most important, I use walking sticks. Anyone using walking sticks must have them adjusted to their height so when they hold them’ both arms are at 45 degrees. I was diagnosed with PPMS at the age of 78. Just wanted to share my situation with other MS persons and pray it helps them.
The heat of any kind leaves me pretty much incapacitated. Very weak can’t talk at all or walk. It’s extremely scary.
As much as I use to love to take hot showers, bath and be in the heat. I can’t no longer.
I totally feel ya with the heat! I was diagnosed 3 years ago, when I was 29. But I’ve had it since 25 atleast. My mother also has ms. We can’t even handle 5 minutes of heat! I take slightly warm shower, house is always at 66 degrees, etc. It effects my optic neuritis and everything you described! I miss the hot tub and sunny beaches ⛱️