Contact Us

Email us at msaa@mymsaa.org.

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19 thoughts on “Contact Us

  1. My daughter has a friend who has been recently had an MRI after having continued migraine headaches. She was diagnosed with remitting recurring type of MS and will be treated right away with interferon (she is insistent it doesn’t go by any other name). I have had PPMS since 2003. I also am a nurse and am well read on MS. I have never heard of Remitting Recurring MS. Can you help me? Does she have the name wrong?

    Thank You

    • Thank you for your comment. There are several types of MS classified throughout the research. The most common types include Relapsing Remitting, Secondary-Progressive, Primary-Progressive, and Progressive-Relapsing MS. Other types of MS exist as well, though not as common as the previously mentioned forms. At this time, there is no type categorized as Remitting Recurring MS. It is possible that the name was perceived incorrectly. For more information on the types of MS, visit the MSAA website at http://mymsaa.org/about-ms/overview/#TypesofMS. You can also contact the MSAA Client Services team for additional information by emailing MSquestions@mymsaa.org, or call our Helpline at 1-800-532-7667 x 154.

  2. My neuron told me to come here to talk with someone about wanting to stop using tysabri in a live conversation. I cant seem to find the place. Please let me know what I’m doing wrong.

    • Thank you for your comment. To speak with someone fromt he MSAA helpline please call 1-800-532-7667 x 154 to connect with a Client Services Consultant.

  3. Hi, I was dx with relapsing remitting ms in 2001. I am 49 yrs old and ever since then everything that goes wrong with me is blamed on the ms. I also had 2 heart attacks in 2003 and they even blamed that on ms! I know certain things are related to ms like fatigue and spasticity,etc,,, Now I really don’t know what to think or do anymore! Any advice?? Thanks.

  4. Ive got kind of a goofy question that you guys might be able to help me with. I was diagnosed about 11 years ago and after doing some research into my family history I have found out that in the past 6 generations I have been the only person on my mother or fathers side that has ever been diagnosed or had any kind of symptoms of M.S. Could there be any work or enviromental conditions that I have been exposed to that would have triggured my condition?

    • Thank you for your question. The definitive reason why people develop MS is still unknown. Most researchers believe it is combination of genetic susceptibility and some type of environmental trigger which cause a person to develop MS. You can read more about the theories in the Possible Causes of MS section on our website: http://mymsaa.org/about-ms/overview/#Causes. Many people find that they are the only person in their family line with MS, while others may have more than one family member affected. If you would like to further discuss your concerns please reach out to MSAA’s Helpline at MSquestions@mymsaa.org or (800) 532-7667, ext. 154.

  5. My 42 year old daughter has MS. She has 3 children which keeps her outside a lot in the summer. We have heard there is a cooling vest for MS patients. Where does one go to get this vest and how much does it cost and is there any help with the purchase of this vest?

    • Thank you for your question. The MSAA has a Cooling Equipment Distribution Program which offers cooling vests and other accessories to individuals with MS. There is an application to complete for the program with eligibility requirements. For more information on this program and to download the program application, see the MSAA website at http://mymsaa.org/msaa-help/cooling/. If you have any questions please reach out to MSAA’s Helpline at MSquestions@mymsaa.org or (800) 532-7667, ext. 154.

  6. Hi …
    I had ms since 8 years ….I wanna come to usa …
    I wish you help me of consulting doctors…I wanna know
    What new in treating this disease ….
    thanks any way

  7. I started Tecfidera when it was first allowed here in the U.S. and I have now no side effects from this MS pill instead of shot other than slightly elevated LFT’s. Do you think I might have to go back to injectios?

    • Thank you for your comment. Medication decisions and their side effects need to be carefully discussed with your treating physician. You and your physician together should be able to determine whether a change in your treatment course is needed. If you want to discuss this matter further please contact our Helpline at 1-800-532-7667 x 154.

  8. I have 3 sons 56, 53, 46 that M S…How rare is this that 3 brothers in one family have M S..I need all the information you can give me…..And all the up to date research at this time…Thank You….

    • Thank you for reaching out with your inquiries. Though the disease of MS is not known to be hereditary, the risk of susceptibility can increase if a family member has MS. For first-degree relatives, this risk increases to about 3-4%. Because the disease is so unique and unpredictable, it can vary as to how it can present. For more information regarding family genetics and MS, see the Motivator article on the MSAA website at http://www.mymsaa.org/publications/motivator/winter-spring11/cover-story. For more information you can also contact the MSAA Helpline at (800) 532-7667, x154. Thank you.

  9. Hello. I am making an inquiry in regards to MS. I have been diagnosed with MS, and would like to make contact with fellow sufferers of MS. Is there chat lines available, as I would appreciate support. Thank you.

    Regards,

    Roscoe

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