A new diagnosis of multiple sclerosis (MS) can be overwhelming, with the potential to disrupt nearly every aspect of our lives, including our career and financial stability. MS symptoms vary widely from person to person, so each individual’s experience can be unique. A new diagnosis marks the beginning of a period of learning, adjusting, and navigating changes. While health becomes the central focus, it’s important to recognize that many other aspects of life are also affected. Concerns about career, job stability, and financial security often arise as we try to find balance in this new and uncertain reality.
When it comes to our well-being, knowledge is power. Learning about our rights and advocating for ourselves is essential. The Americans with Disabilities Act (ADA) is a federal civil rights law that protects people with disabilities from discrimination and ensures equal access and opportunities in areas such as employment, public services, and transportation. The ADA’s website and information line are available for those seeking information about their rights, including employment protections and reasonable accommodations.
MS is a condition that can cause physical and cognitive challenges, which may affect a person’s ability to work at full capacity. While MS symptoms can interfere with daily activities, there are treatment options and assistive technologies that can help manage these challenges. Many individuals with MS are able to continue working by managing their symptoms and requesting accommodations as needed. These accommodations might include a more accessible office, a workspace closer to the bathroom, or a flexible schedule to accommodate medical appointments and sick days.
Disclosing your MS diagnosis is a personal choice; however, requesting accommodations requires that you identify your needs due to a disability. You’ll need to explain how your disability interferes with your job functions and how the requested accommodation will enable you to continue performing your duties. For additional support, the Job Accommodation Network (JAN) provides free, expert, and confidential guidance on workplace accommodations and disability employment challenges.
Building a support system, both at home and at work, is crucial—especially when you are newly diagnosed. At work, support might look like a supervisor who understands your challenges, colleagues who offer reassurance, or a mentor who can guide you through your professional journey. Family, friends, and healthcare providers who are supportive also help manage MS more effectively, and connecting with others who have MS can offer a sense of community and empowerment. Many organizations and online forums provide resources, peer support, and advice on navigating life and work with MS, such as MSAA’s Community Online Forum.
Understanding your rights, advocating for your needs, and building a strong support network are vital to creating an environment where both your career and health can flourish. While a new MS diagnosis can be daunting, knowledge and support can help you cope with the discomfort and uncertainty of MS.
