Advice from the Community: Awaiting an MS Diagnosis

Waiting is the hardest part. For anyone who thinks they may have MS and is undergoing testing, awaiting results can be scary and downright hard to deal with.

To learn more about how to cope during this challenging time, we reached out on the MultipleSclerosis.net Facebook page and asked: “What advice would you give to someone who is going through the testing and diagnostic process but has yet to receive a confirmed diagnosis?”

Almost 90 members of the multiple sclerosis community shared their hope and experience. Here is what they said. Continue reading

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I Don’t Have Problems Keeping Busy, I Have Problems Staying Focused

Staying Focused

By Penelope Conway

I don’t seem to have problems keeping busy. There is always something that needs to get done around the house. It’s trying to find the energy to get things done that seems to hinder me. Having physical therapy, occupational therapy, and speech therapy appointments each week at home has this way of Continue reading

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10 DOs and DON’Ts of Keeping Busy

By Doug Ankerman

If you are a homebody like me, the current stay at home directives are no big deal. Keep busy on the other hand can at times be as challenging as finding a pen that works when needing to take a message. That’s why I offer you these “10 DOs and DON’Ts of Keeping Busy.” Continue reading

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Busy as a Bee

By Scott Cremeans

We need to use every possible way to shield ourselves from the detrimental impacts of boredom. Here are some key ways to armor ourselves from the aggressive onslaught from the apathy of life. It is difficult not to be tempted by the siren song of the couch and the hypnotic flicker of the TV. The following tips may seem foolish and utterly superfluous but could help you find ways to keep busy and even boost your overall wellness.

When considering things to do to avoid Continue reading

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Finding Calm

By Lauren Kovacs

Minus some bad ideas, let’s cope with being stuck. Exploring new things can eat up time, no calories. I know the fridge and I are now best  friends.

Try to find ways to keep busy. Read, put yourself in a “show hole” by watching something or do some yoga.

I take my scooter out and one of my sons walks with me around our neighborhood. Fresh air and Vitamin D does a body good. Soon it will be hot enough Continue reading

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Living the Best I Can in a Changed World

By Stacie Prada

My goal is to not just make it through this pandemic, but to enjoy this time. I don’t want to wait for things beyond my control to change to be able to be happy, have fun, and be fulfilled.

If I wait for someday, I’ll miss now, and now may last a while. It’s unsettling to live with uncertainty and be required to change my normal routines. A lot of my routines have evolved over a long period of time to help keep me living as well as I do with multiple sclerosis. Uncertainty is a Continue reading

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Keeping Positive in Challenging Times

Keeping Positive in Challenging TimesHope is made for the day that tries your understanding, when your blessings can’t be counted and the sky has changed to darkness.

By Penelope Conway

Living with multiple sclerosis can be challenging. Add the required social distancing and it can make life a bit more complicated and interesting. My groceries are now delivered to my front door making it a bit more challenging to put everything away on my own, my doctors appointments are taking place on the phone keeping me on my toes to remember everything we need to talk about, physical therapy is Continue reading

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Being an M&M

By Doug Ankerman

They call THESE challenging times, huh?

Well they don’t know squat about those of us with multiple sclerosis!

They don’t know challenging until they button a shirt with MS “fumble fingers.”

They don’t know challenging until they enter a place with a door that opens out—while sitting in a wheelchair. Continue reading

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Keep the Piles Small and Reach Out in This Challenging Time

By Stacie Prada

It’s tough right now living through a pandemic. I assume I’ll live through it, but many will not. I appreciate hearing from people who are having a hard time, because I’m glad they’re expressing themselves. I think the silent ones are sometimes the ones to worry about most.

When I think of everything I need to figure out, solve and do, it’s overwhelming: work while adapting to a state of emergency, isolate physically, help others in need, maintain Continue reading

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Pink Sparkles with Unicorns – Finding Connection

By Lauren Kovacs

Well here we are forced to be hermits with this virus going around. While embracing our inner hermit is just part of some MSers lives already, it is different when your inner hermit is forced to be a hermit. Having a choice to be a hermit is now not our choice.

In light of this, connections and support are essential. Sanity is imperative. Online or phone connections are all the rage. Face-to-face is Continue reading

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