Look Forward to Something

Posted on October 11, 2024 by MSAA

By Stacie Prada

Fall where I live means shorter days, less sunlight, more rain, and colder weather. I realized after my Multiple sclerosis diagnosis, that seasonal shifts to spring and fall are times when I’m more susceptible to MS exacerbations. I used to worry about it, and it’s taken a lot of effort to feel more confident approaching seasonal changes.

My usual approach is:

When things are tough, take inventory of what’s tough, what will help, and what’s helped before; and
Look forward to something.

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Self-Care on the Wings of a Goldfinch

Posted on September 30, 2024 by Kate

I’ve already written this blog post once and I’ve decided to scrap it. This is a page one rewrite. My initial post was preemptive. I was writing about something I had yet to experience and now I’m on the other side. Isn’t it funny how much we can project onto something that is yet to be? Better to live in the present, but what a challenge that is for me.

Our topic this month is self-care, and my ultimate self-care starts with a 20-year desire and ends in a goldfinch. On Friday the 13^th I got a tattoo of a goldfinch on my forearm. It’s not my first tattoo and probably won’t be my last, but this little guy is the most meaningful to date. The goldfinch is a symbol of finding happiness in challenging times. It is seen as protective, devoted, persistent, and carries good fortune on its wings. What more could you ask for in a little cheerleader when you’re living with MS? It may seem strange that I consider this new addition to my skin as self-care, but I can’t honestly think of a more direct way to honor and treat myself.

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Fear of Falling With MS

Posted on September 23, 2024 by MultipleSclerosis.net

A concern for many people with multiple sclerosis (MS) is the fear of falling. Loss of balance with this disease makes falling a common problem. But many find that slowing down, walking carefully, and learning to get up safely after a fall can be helpful.¹

MulipleSclerosis.net recently published an article that highlighted some of these trials. Given the reaction it received, it clearly resonated with lots of people! Here are some of the themes that people shared in response to the article.

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Digital Detox: How to Unplug and Prioritize Your Wellbeing

Posted on September 13, 2024 by Claudia Chavez

Is it just me, or does it seem like everything is digital nowadays? Whether I’m scheduling an appointment online, texting a friend, or ordering groceries, it feels like our world has become a virtual reality, with my phone as a constant companion. While technology offers undeniable convenience and benefits, it can negatively impact our emotional and physical well-being. A digital detox—a break from technology—can help us reconnect with our bodies, thoughts, feelings, and loved ones in a more meaningful way.

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Prioritizing Self-Care

Posted on September 11, 2024 by Courtney Blewett

September is National Self-Care Awareness Month, a time dedicated to recognizing the importance of taking care of yourself. In a world that’s constantly on the go, it’s easy to overlook our own needs in the rush to meet deadlines, care for others, and manage daily responsibilities. However, self-care is not selfish – it’s essential for maintaining mental, emotional, and physical well-being.

Self-care looks different for everyone. For me, my favorite form of self-care is going for a walk while listening to a podcast or audio book. Whether I’m winding down after a long day or just taking a break, the combination of fresh air and engaging content always help me recharge! It’s a simple way to create space for myself and reset my mind.

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Team MSAA and runDisney Participant Highlight: Ashlei Brown

Posted on September 9, 2024 by Dana Carney

Four years ago, Ashlei Brown ran her first endurance event as part of Team MSAA. The view was about as good as it could get – EPCOT.

In July, Ashlei shared her struggles with a severe MS flare that she experienced in 2020.

“2020 I was in the biggest episode of my life, hardly able to walk. I was stressed about moving my family across state lines from Florida to Tennessee into unfamiliar territory with no extended family to lean on… in the middle of COVID. My MS is completely under control now, thanks to the amazing people at @VUMChealth.

I think it’s time to run again for @MSassociation”

We wanted to hear more about Ashlei’s journey with Team MSAA, and what inspired her to run again at Disney.

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Embracing The Vacation

Posted on August 23, 2024 by Teena Palathanam

Travelling with MS can be overwhelming, especially if you are travelling to a new destination. Not knowing where the restrooms are or having a place to relax when your legs give way can cause a lot of anxiety for individuals with MS. The unpredictability that comes with MS adds to the stress. Although unexpected hiccups can happen to anyone, planning your itinerary ahead of time will eliminate a great deal of anxiety. Below are some tips to keep in mind when you are planning for a vacation:

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How MS Messes with Speech

Posted on August 19, 2024 by MultipleSclerosis.net

One frustrating symptom of multiple sclerosis (MS) is the cognitive impact. Those of us with MS often struggle with memory, recall, and speech. When words vanish, we get creative in communicating!

MultipleSclerosis.net posted the following prompt to the community:

“MS can mess with our word recall and speech function, making remembering the names of people, places, and things difficult. If only there was 1 word for it all. We want to know, what would your word be? Example: ‘Can you please hand me the _____ over there?’ Philadelphia natives might throw the word ‘jawn’ in there!”

There was a lot of engagement with this topic!

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Team MSAA and runDisney Participant Highlight: Tiffany McCahill

Posted on August 15, 2024 by Dana Carney

Completing a 10k endurance event last year wasn’t enough for Team MSAA participant Tiffany McCahill. She’s doing it again, but this time raising the bar and taking on the half marathon!

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Staycation Tips and Tricks: Relax, Explore, and Enjoy Your Own Backyard

Posted on August 9, 2024 by Claudia Chavez

Staycations, or vacations spent at home or nearby, can be both enjoyable and cost-effective. While they are often perceived as lacking adventure or being boring, this is far from the truth. Staycations can offer unique experiences full of discovery and exploration. A well-planned staycation can be convenient, creative, and can save both stress and money.

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