Navigating Relationships and Friendships When Living with MS

Living with MS brings many unexpected changes. While much focus is placed on physical symptoms, one of the biggest impacts of MS can be on our social circles. Relationships, marriages, and friendships might undergo a massive shift after a diagnosis, though everyone’s journey looks different.

People from the MS community have shared their raw, realistic, and hopeful experiences regarding how multiple sclerosis has reshaped their connections with others. Their stories show both the potential hardships and the relationship wins of navigating these shifts.

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The 6 C’s of Mental Toughness and Resilience

By Dr. Eva Jackson

One of the most meaningful quotes I have read this year is, “Nothing amazing happens inside our comfort zone.” When you first hear that tests confirm a diagnosis of multiple sclerosis, your reaction may be shock, confusion, or disbelief. These are normal responses to news that can change the course of your life.

Over the past few years, I have spoken with many other MS warriors about the day they were diagnosed. Those diagnosed early often describe the experience differently from those diagnosed in later stages. I am among those who received a late diagnosis. Looking back, I realize my emotions followed a pattern similar to Elisabeth Kübler-Ross’s 1969 theory, the “Five Stages of Grief.” While the experience of living with MS is distinct, it often echoes a comparable emotional journey. I describe that journey as the 6 C’s of Mental Toughness and Resilience.

The 6 C’s are Coping, Courage, Care, Connection, Community, and Compassion. Here is a brief look at each stage.

The Stages of Mental Toughness and Resilience

Coping – This stage often carries you through the emotions commonly associated with grief, from denial and anger to eventual acceptance. For some, this process may be brief; for others, it may take much longer. I spent much of this stage feeling angry after investing significant time, money, and energy searching for answers. Even so, I remain grateful for the care team that helped guide me through the process and supported me along the way.

Courage – For many people, asking for help requires real courage. Using an assistive device or relying on others for support can also be difficult steps to take. Courage means weighing the risks and choosing what best protects your health and safety. As difficult as it may feel, using a walker, cane, or scooter can be a powerful act of strength rather than a sign of weakness.

Care – MS requires ongoing care and consistent attention. Keeping a health journal can help you prepare for appointments and communicate more effectively with your care team. Because many people with MS experience cognitive and memory challenges, having written notes can be especially valuable.

Connection – Connection reflects the relationships you maintain with family and friends. Strong, genuine bonds can make a meaningful difference throughout this journey. Support from the people closest to you can provide both stability and encouragement when you need it most.

Community – If you have not joined a support group, I strongly encourage you to consider it. Your MS community can offer meaningful relationships, practical resources, and a sense of belonging. No one should have to navigate this journey alone.

Compassion – The final stage of mental toughness and resilience is developing the compassion, knowledge, and clarity to support someone else living with MS. At this stage, your experience can become a source of strength and encouragement for others.

As an MS warrior, I hope everyone can move through these stages of mental toughness and resilience with strength, confidence, and hope.

About Dr. Eva Jackon:

Hello. My name is Dr. Eva Jackson, and I am currently a guest blogger for MSAA. I completed a Doctorate in Management, Organizational Development and Change at Colorado Technical University in Denver, Colorado. My academic background also includes a Master of Science in Leadership and a Bachelor of Art in Social Services from Belhaven College in Jackson, Mississippi. I have previously co-owned an event planning, catering, and decorating business called NikLiz Designs with my husband of 31 years Tim Jackson. After being diagnosed with MS, my career path changed, but I continue to provide management consulting services. In addition, I participate in crafting activities and volunteer as a Peer Connections Leader and an MS activist for the National MS Society.

Grounded In Faith & Truth

By Samuel Fitch

When people hear the phrase “mental health,” they often think of major life changes, complicated routines, or dramatic breakthroughs. My experience has been much simpler.

For me, strong mental health is often built through small habits repeated consistently; habits that help me stay grounded before the demands of the day begin competing for my attention.

Living with multiple sclerosis has taught me how quickly your mind can drift if you’re not intentional. Some days bring fatigue. Other days bring stiffness or frustration. And if I’m not careful, my mind can start running toward questions about the future that don’t have answers yet.

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Maybe You’re Already Doing It… 

By Angel Blair

I think it goes without saying how important one’s overall health is. Though when we talk about health and wellness, we often just think of the physical aspects. But a crucial part of our well-being relies on mental health and wellness too, and these can unfortunately get overlooked at times. When thinking about wellness plans and regimens, mental health may not be considered a top priority or major piece of the puzzle. But it should, as mental wellness is just as important as other parts of our health system. 

Nurturing mental health needs can be challenging at times, but there are ways to help improve it that may already be done in your day-to-day. It doesn’t always have to be a grand act or monumental feat that’s accomplished, but rather small gestures or behaviors done daily to foster good mental health. If I find myself overwhelmed or stressed, there are a few go-to acts that I engage in to center myself and to help refocus. 

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Life Beyond the Relapse: Real Stories of Living with SPMS

If you are living with secondary progressive multiple sclerosis (SPMS), you know that life feels different from how it used to be. For years, you might have lived in the RRMS world, waiting for an attack, treating it, and mostly bouncing back. But SPMS changes the rules. It’s less about the sudden storms and more about a slow, steady tide.

We looked at stories and forum posts from people walking this same path. Here is what they say life with SPMS is really like, in their own words.

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Protecting My Peace: Small Habits That Help Me Navigate Life with MS

By Nicole Robinson

Living with multiple sclerosis has taught me a lot, especially when it comes to protecting my mental and emotional well-being. 

When I was first diagnosed, I didn’t have it all together. There were moments of confusion, frustration, and a lot of questions about what my life would look like moving forward. While I still don’t have all the answers, I’ve learned that small intentional habits can make a big difference in how I show up each day. 

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The Power of Holistic Wellness for Individuals Living with Multiple Sclerosis

By Dr. Eva Jackson

Holistic wellness plays a critical role in improving the quality of life for individuals affected by multiple sclerosis (MS). This approach, recognized and studied by numerous organizations, focuses on treating the whole person rather than addressing symptoms in isolation.

When I was first introduced to life with MS, my care team did not clearly explain the importance of whole-person care. Yet, despite this lack of explanation, that is exactly the model they implemented. Soon after my diagnosis, a comprehensive and coordinated plan was developed to manage my symptoms. My care team included a neuro-ophthalmologist, urologist, MS specialist, sleep medicine specialist, and a physical therapist specializing in multiple sclerosis. At the time, this fast-paced, multidisciplinary approach felt overwhelming. In retrospect, I deeply appreciate how effectively each provider worked together. This coordinated care exemplifies the essence of holistic wellness and addressing physical, emotional, and functional needs simultaneously.

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Taking Ownership: My Journey Toward Better Mental and Physical Wellness

By Samuel Fitch

There comes a point where continuing the same patterns will only lead you further away from the life you actually want to live. For me, that moment wasn’t dramatic. It was quiet, but undeniable. Between living with multiple sclerosis, navigating the sudden loss of my mom, and recognizing that my overall health was trending in the wrong direction, something had to change.

Not eventually. Not when it was convenient. Now.

For a long time, I operated the way many people do—focused on responsibilities, pushing through fatigue, and accepting certain limitations as “just the way things are.” Over time, the signs became harder to ignore. Low energy. Brain fog. Poor cardiovascular health. A general sense that I wasn’t operating at the level I knew I was capable of.

Then a simple but heavy realization settled in. I still have a lot of life left to live. That thought forced a question I couldn’t avoid—am I doing what’s necessary to be here for it?

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Well Well Wellness 

By Angel Blair

When it comes to wellness and how we take care of our minds and bodies, there’s definitely some leeway as to what works for each person and what type of wellness is being referred to. If we’re being honest, I was never a big fan of physical exercise and fitness for myself. Not that I don’t think it’s important, because it truly is. I just never had enough drive or motivation to stick to a particular exercise regimen. I don’t take physical wellness for granted or disregard it in any way. It just took me some time to realize that physical wellness is merely one cog that makes up the wellness machine. 

Mental and emotional wellness are two other vital pieces in the realm, and I found that these are the ones I can get on board with. Without knowledge of it, I was fostering these facets of wellness with things that I do in my day-to-day. And they’re things that I enjoy, go figure! They may not be obvious examples of wellness but that’s the great part about this theory. It can look so different and represent various things to people. There’s no “right” way to achieve wellness goals. What matters is that they support your body’s needs and promote good health. 

I’ve always enjoyed writing, ever since I was young. It helps me to process things and allows me a space to be creative and honest. I also love to read. This activity provides a quiet restfulness and a chance to slow things down. The other surprising endeavor that I found nurtures my personal wellness is cleaning. I know, it sounds odd and a bit atypical compared to other wellness activities. But there’s something familiar and relaxing about it. I like the feeling of accomplishment it provides, and it also lets me jam out to my favorite music. 

Maybe these activities wouldn’t work for you, or maybe they would. You may already have certain routines or tasks that bring you joy, positive physical effects, or a sense of purpose and accomplishment. But you may not have realized that these satisfying ventures are concurrently supporting your personal wellness too. Perhaps because you thought wellness had to look a certain way. What a pleasant surprise! 

About Angel:

My name is Angel Blair, I am a mom to beautiful twin girls and hold degrees in counseling from schools outside of the Philadelphia area. I’ve worked with the MS community in the past, and am grateful for the opportunities I’ve had in helping others. I enjoy spending time with my family, writing, reading, and traveling.

Bittersweet Advocacy

By Stacie Prada

I’m proud to advocate on behalf of multiple sclerosis issues, and I aim to normalize discussing human health experiences without shame. If we live long enough, almost all of us will experience big health issues, and learning from others is a huge help for navigating them.

I’ve participated in Bike MS, Meat Fight, Walk MS, and self-help group leadership. I write openly about my MS experience, I contribute regularly to MSAA’s blog MS Conversations, and I let my community, colleagues, and legislators know that I have MS. I’m happy to answer questions and have spoken to newly diagnosed people and family members quite a few times over the years. If I’m the only person they know with MS and they would like to chat, I’m there for them. They’ll have a unique MS experience, and I want to support them in their journey. I’m eager to encourage kinship, help where I can, and remove any cloak of shame regarding health issues.

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