About MSAA

As a national nonprofit organization, the Multiple Sclerosis Association of America is a leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a toll-free Helpline; award-winning publications including a magazine, The Motivator; website featuring educational videos and research updates; S.E.A.R.C.H.™ program to assist the MS community with learning about different treatment choices; a mobile phone app, My MS Manager™; a resource database, My MS Resource Locator; equipment distribution ranging from grab bars to wheelchairs; cooling accessories for heat-sensitive individuals; educational events and activities; MRI funding and insurance advocacy; and more. For additional information, please visit http://www.mymsaa.org or call (800) 532-7667.

Combat Stress – Relaxation Strategies from MSAA

Dealing with stress is often a challenge, even when we are not living through a pandemic. While stress is a natural reaction for the body to feel, too much stress for too long can cause harm. For anyone with a chronic health concern, such as multiple sclerosis, sustained stress can lead to worsening MS symptoms. Whether needing relief from emotional or physical stress, finding ways to relax is an important part of any wellness care. MSAA offers a number of resources to help combat stress. Here are a few of our most recent programs highlighting wellness: Continue reading

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Relax, Chill

By Lauren Kovacs

This, unfortunately, is a battle most MS folks fight daily. I do. Each situation requires a custom battle to fight stress. We have to adapt. Change our warrior armor based on the battle ahead.

I find a day might be needed to access the situation, if multiple days of Continue reading

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Abracadabra

By Doug Ankerman

Nothing up my sleeve! It is magic I tell ya!

Magic how a disease like multiple sclerosis works from the inside-out. Hiding your symptoms from those around you.

MS uses deceptive tricks to mask your illness, prompting some to ask the dreaded, cringe-worthy question… Continue reading

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What the MS?

By Scott Cremeans

One of the most significant issues with multiple sclerosis is the many hidden symptoms that lead to accusatory statements. The invisibility of these MS issues means that many times others do not see, perceive, or believe that they even exist. The two primarily posed comments are you do not look sick; you must be fine or, I know someone with MS, and they do not complain like that. These statements drive MSers insane and can cause us to stand our ground in defense vociferously.

I have been a member of several local MS support groups and currently Continue reading

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Hidden and Invisible Problems with Multiple Sclerosis

Explaining Hidden and Invisible Symptoms of Multiple Sclerosis

By Penelope Conway

How do you explain the hidden and invisible problems with multiple sclerosis?

Every week when the nurse comes to my house I’m always asked the same questions. Am I experiencing any pain? What kind of pain? How does it feel? How’s my appetite? Bowel movements? Swallowing troubles? Breathing? It takes the entire visit to explain everything. Pain shifts moment by moment from Continue reading

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Shh, I have a secret

By Lauren Kovacs

Those secret symptoms wreak havoc and party hard in our body. They high five each other as they go to torture some part of us. I swear there is some kind of party in my left arm involving fire.

It is not a calm “kumbaya” bonfire. It is more like a concert with pyrotechnics and lava. Every night the burning visits me, like a ghost. It sneaks up on me. It lights my Continue reading

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Knowledge of MS Progression is its Own Invisible Symptom

By Stacie Prada

Many health conditions and symptoms are never seen by others and remain unknown to the people in our lives until we talk about them. Even then, what our friends and family members see and what we tell them don’t match. The disparity between how we look and how we feel makes it hard for others to believe it’s as much of an issue as we say.

Some of my invisible symptoms are widely shared by many people with multiple sclerosis. There’s fatigue, Continue reading

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Invisible but VERY Real: Heat Intolerance

By Alene Brennan

It’s been four years since I was diagnosed with Relapsing-Remitting MS.

I remember the doctor asking me if I had a sensitivity to heat in that appointment.

YES!

Finally, I got validation for Continue reading

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Meet the Board – Michael Lubben

MSAA strives to be a leading resource for the MS community by improving lives today through vital services and support – and we could not accomplish this without the help of our volunteer board members. MSAA’s Board of Directors is comprised of accomplished professionals from across the country who volunteer their time to further MSAA’s mission. With our ongoing series, Meet the Board, we hope to introduce you to our wonderful volunteer board members!

This month, MSAA is proud to highlight our newest board member Michael Lubben. Continue reading

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Summer: Once My Favorite Time of Year, But Not So Much Anymore

Summer with Multiple Sclerosis

By Penelope Conway

What can I say? Summertime is hot, muggy, sweltering, and sweaty. It used to be my favorite time of year for concerts in the park, trips to Six Flags to enjoy water rides and death defying trams that sent you into another universe altogether, cookouts, vacations, open windows with cool breezes blowing, family time, and relaxing by the pool. Continue reading

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