Ready for Takeoff!

Posted on July 28, 2023 by Courtney Blewett

It’s that time of the year… travel season! Traveling is an exciting way to broaden your horizons, whether it be a day trip, visiting friends, or exploring a new city. The thought of traveling while having MS may be intimidating, but with plenty of planning and preparation, a fun-filled vacation is at your fingers tips, in spite of MS.

An MS diagnosis does not have to stop you from seeing the destination you’ve always wanted to visit. There are many ways to make traveling with MS less stressful and more accessible. Before traveling, have a conversation with your doctor and talk about any health concerns and how to plan and renew any medications you need to take with you.

If you’re traveling by plane, notify the airline ahead of time if you require a wheelchair or any specific accommodation. The airline can arrange transportation throughout the airport to your gate and can assist with expedited access through security.

When it comes to hotel accommodations, research the hotel ahead of time to ensure they have handicap-accessible rooms and an elevator. Consider booking a room on the ground level if you have limited mobility. Depending on how your medication is stored, confirm with the hotel if the room has a refrigerator so you can store any medications that require refrigeration.

Take time to research and plan your daily activities beforehand. You want to hit all the top sites that interest you and make the most of your trip! Write down the places you would like to visit and ensure these locations are handicap accessible or have elevator access. It’s important to incorporate rest breaks into your agenda so you do not overexert yourself and become fatigued. Don’t forget to hydrate too! Especially in warmer climates, overheating, and dehydration can be risk factors. Pack water bottles, and cooling devices, such as a cooling vest, to prevent overheating.

So, take that vacation you’ve been dreaming of and make it a reality! Don’t let Multiple Sclerosis stop you from traveling. With planning and preparation, anything is possible. At the same time, know your limits and plan accordingly. Enjoy and HAVE FUN!

Travel With MS

Posted on July 26, 2023 by MSAA

By Suzanne Marriott

` Two roads diverged in a wood and I –

I took the one less traveled by,

And that has made all the difference.

Robert Frost, The Road Not Taken

My husband, Michael, had MS, but that didn’t stop us from doing the things we loved, and the most important was travel. The challenge was learning how, not if, we could do it. Of course, we had to make many changes and accommodations in order to maintain this lifestyle.

When Michael was still walking, using his two hiking poles for balance, we bought a small, used RV and traveled up the coast of California, our home state. It was summer and I was free from my job as a teacher. As my husband’s caregiver, I made sure our little home on wheels was well stocked with all the things we would need, including all the paraphernalia that MS required.

But the day we were to leave, it was too hot and Michael realized he couldn’t drive in that heat. So our first accommodation was to embark on our trip in the evening, when it was cooler. As a former truck driver, Michael was used to driving at night, so off we went, enjoying the moonlight and a dearth of traffic.

With advance reservations secured, we stayed in California state parks in the parking areas authorized for persons with disabilities. This meant we were close to the toilet and shower facilities. All states have qualifications for their state parks’ disability status which provides many advantages, such as park-use discounts. For California information can be found at https://www.parks.ca.gov/30959.

There came a time when Michael could no longer walk. His HMO provided him with a power wheelchair, and we bought a used van with hand controls and a wheelchair ramp. Having the van meant that Michael was able to continue driving even as his disability increased. With some seat switching, I could also drive when needed. Soon we begin taking advantage of sightseeing closer to home. Living in the San Francisco Bay Area, this included the wine country, San Francisco itself, and the nearby coast and parklands. Sometimes we made longer trips, staying in motels and inns with accessible rooms. As always, the key was preparation and planning ahead.

For Michael and me, travel was something we refused to give up. The challenge was always figuring out how we could continue doing the things that we loved and what modifications we needed to make. Travel allowed us to continue having joy and fulfillment in our lives. If you’re thinking of travel, remember, it takes determination, creative thinking, and planning ahead. So go for it. And have fun!

Time To Go

Posted on July 26, 2023 by Teena Palathanam

It is that time of the year when people are enjoying the summer by traveling and exploring different destinations. Fatigue, bathroom issues, and walking difficulties are a few of the many challenges individuals with MS tend to encounter while traveling. Having MS should not deter you from traveling, it just means that your travel might need a little more detailed preparation and planning. It is important to note that individuals with disabilities have rights that are protected by the Americans with Disabilities Act (ADA) which prohibits discrimination and makes sure that accommodations are provided to such individuals whenever needed. Here are some tips to keep in mind that will make your travel experience relaxing and hassle-free:

Carry necessary medical paperwork: It is important to have a doctor’s note that details your MS diagnosis. Get all your prescriptions filled in by the neurologist. Carry medicines in daily pillboxes. Also, keep the contact information for your doctors saved on your phone in case you need to reach them in an event of an emergency.

Cooling products: Cooling vests, hats, pillows, and scarves are great to carry especially while traveling to places where the weather can fail to cooperate.

Rent mobility equipment: Mobility equipment like rollators, scooters, wheelchairs, walking aids, etc. can easily be rented. Renting equipment will avoid the hassle of carrying heavy gear. In many states, you can also have mobility equipment delivered right to your doorstep.

Air travel: While traveling by air, ask for wheelchair assistance while boarding and deplaning. Take advantage of early boarding procedures and seating accommodations. Use elevators and travelators (moving walkways) in the airports whenever possible.

Go with a travel buddy: Having a reliable travel partner can make your travel stress free. It will give you peace of mind just to know there is someone to give you a helping hand whenever you need one.

Seize every opportunity that comes your way and do not let MS stop you from experiencing the joy of travelling. There will always be some unexpected hiccups along the way but planning your travel ahead and knowing your rights will ensure that you have an unforgettable and memorable time.

Traveling with Health Issues

Posted on July 25, 2023 by MSAA

By Stacie Prada

My definition of travel has changed as my Multiple Sclerosis symptoms have progressed. Travel used to be trips that included overnight travel, and even one night away from home might not have qualified as “real” travel. Now travel includes going places for periods that disrupt my daily routines, and that means day trips solidly allow. Travel includes going anywhere outside of my normal routine. It demands having health issues considered and accommodated to ensure I have fun, meet my body’s needs, and don’t stress too much.

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Plan, Prepare, and Enjoy the Trip!

Posted on July 14, 2023 by Claudia Chavez

Are you planning a trip soon? Sure, getting to the destination is beautiful and all but what about all the planning that goes into the trip? Between the research, packing, reservations, and cost, traveling can be exhausting. Nothing beats an amazing vacation, but how do we make sure we are prepared for it all?

If you are anything like me, you will most definitely forget to pack something (and end up looking like a tornado tossing around the luggage to find it). Traveling with MS can be easy when you are prepared and have a contingency plan.

Here are some tips that can make your trip run as smoothly as possible.

Depending on your destination and needs, it may be a great idea to request a doctor’s note listing your medications and any specific medical needs you need accommodations for.
Bring the necessary storage devices, such as a cooler for injections, a needle clipping device, and storage must-haves.
Consider your medication dates if you take a DMT. For example, work around your infusion date.
Call the hotel in advance to verify the hotel has a refrigerator in the hotel room, or request a refrigerator for your room if you have medication that requires refrigeration.
Bring a list of your providers’ contact information just in case.
Bring extra medication in case you accidentally misplace it or damage it.
If you are traveling by air, you may contact the Transportation Security Administration (TSA) for additional information and to familiarize yourself with the Air Carrier Access Act (ACAA) that protects against discrimination.
Find MS support when traveling abroad by visiting the Multiple Sclerosis International Federation directory.

Knowing what to expect when traveling can ease your worries. Multiple Sclerosis doesn’t have to weigh you down. Don’t let anything stop you from taking that dream vacation you have always wanted. Plan, prepare, and enjoy the trip!

Travel Essentials

Posted on July 12, 2023 by Diana Cruz

Ahh summer-time. The (arguably) enjoyable weather brings about endless possibilities for outings, adventure, and quality time with friends and family. For many, the summer months indicate vacation and travel arrangements to sunny, tropical destinations. As appealing and worthwhile as a good getaway may be, these plans can also lead to uninterrupted thoughts about what to pack, what needs to get done, what to budget, feelings of guilt for leaving behind responsibilities, and an endless list of anticipated items. However, what many of us don’t think of packing is our well-being. Ensuring you are feeling your best self and are preparing in a way that will care for your mental health is just as essential as any other travel equipment.

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