MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. We share these artists’ inspiring stories and beautiful artwork with you each month as our Artist of the Month. We celebrate AnnaMarie Prono as the October Artist of the Month this month. AnnaMarie is from Forest Hills, NY.Continue reading
Summer is over and the kids are all back at school. It is easy to get overwhelmed and anxious while trying to manage the school routines and dealing with the daily challenges of MS. It is best to be organized so that you have time to recover when symptoms worsen and take a toll on you during school days. Here are some ideas to make your life easier if you have school-going children:Continue reading
By Stacie Prada
When the kids return to school, traffic patterns change and I may follow the school bus on my morning commute to work. There are fewer tourists in my town and fewer colleagues away on vacation. Stores and ad campaigns feature school supplies and products useful for students going back to school. “Back to School” season is a terrific annual reminder that learning doesn’t end after finishing school. I consider how much lifelong learning I’ve done and hope to attempt, the possibilities grow, and I’m motivated to plan more.Continue reading
Going back to school is filled with excitement, and possibly fear. Depending on what grade or level of schooling you’re about to enter. I know the feelings of starting a new school year but have not yet experienced it from a parent’s perspective, until now. And boy, is it tough.
As I pack up my little girl to go to her first day of daycare, I can’t help but think to myself how is she going to feel without me? Will she think I abandoned her? Will she know that I am coming back? I know every parent has a feeling of extreme guilt when dropping their child off at a place that is unknown and possibly scary to them, even if it is in their best interest. Here are a couple things I did to calm myself down, stay present, keep my thoughts organized, and most importantly STAY POSITIVE.Continue reading
Featuring Barry A. Hendin, MD
Question: Both pseudobulbar affect and bipolar disorder can have emotional highs and lows. Can you discuss the differences between the two conditions?Continue reading
Emergencies occur daily, and they can range from mild inconvenience to life-shattering events. There is tons of information available for being prepared for emergencies. Lists of what to include in emergency kits are thorough and excellent for helping each of us have what we need in case of emergency. Pages dedicated to people who are medically vulnerable and disabled are wonderful for listing what to consider for ourselves and those we care for.Continue reading
Individuals living with MS face a lot of uncertainty. Coping with the unpredictability of MS can affect one’s quality of life. There may be times when you might be going through a relapse or flare up and you may experience MS-related symptoms. It is good to equip yourself to handle such emergencies. Here are some things to keep in mind that will help you to have control over such situations and put your mind at ease:
Emergency information: Have contact information of family, friends, and health care providers whom you can call in the event of an emergency. Keep a list of all medications with their dosages and a copy of your medical history in an accessible area in your home.Continue reading
Emergencies are sudden and uncontrollable. They can’t always be prevented, but having a plan to tackle them head-on can make a difference in the outcome. It is easy to forget the most well-known information in times of crisis. There are many ways to prepare for an unexpected situation, and creating a plan that is tailored to your specific needs is crucial. Let’s talk about different ways to prepare.
Keeping our medical records easily accessible in case of an emergency is vital but carrying them all the time can be impractical. The Rocky Mountain Multiple Sclerosis Center offers customized Multiple Sclerosis Identification Cards to individuals living with MS nationally. This card lists vital information, including the individual’s name, address, and emergency contact on one side and common MS symptoms on the back. This card may be useful in an emergency, as it can easily be stored in your wallet, your car, or your luggage and accessed in case of an emergency.
Keeping your emergency contact information at hand can also be done using your phone. You can set an emergency contact and list medical conditions through the Medical ID feature on your iPhone. This can help first responders access lifesaving medical information from the lock screen without needing your passcode. There are also options for other smartphones, such as Android.
For those of us with children, pets, and other loved ones we care for, an emergency can disrupt our schedules and impact those we love. Having a plan can ensure that they are taken care of while we are taking care of ourselves. Keep a record of your children’s school, teachers, extracurricular activities, and schedules. Provide a key to a trusted friend or relative to access your home if needed. Have the necessary supplies for your pets for a couple of weeks and make them easily accessible for friends and family who may be helping care for them.
Keep a packed bag with your essentials if you leave your home rapidly and unexpectedly. Keeping a sealed bag with a change of clothes, medication, and personal supplies may come in handy if you don’t have time to pack or your loved one needs to meet you at the hospital. I like including a comfort item that can bring me peace and comfort at a time of crisis, like a picture of a loved one or a small stuffed animal that has sentimental meaning.
For those who may need additional support at home, a medical alert system may provide the necessary protection to ensure someone responds in case of an emergency. These systems allow an individual to activate a device or press a button in the event of an emergency, and they are especially beneficial for those who live alone or have mobility difficulties.
Emergency planning is all about preparing for and responding to emergencies. Communicating with our loved ones about our needs and discussing their availability and willingness to help is vital to creating a reliable plan. Unexpected situations can be scary, but emergency preparedness can provide peace of mind knowing there is a plan for you and your loved ones.
By Suzanne Marriott
Living with MS can be challenging, but planning for an emergency while dealing with MS can be overwhelming, and sometimes “The best-laid plans of mice and men often go awry,” to loosely translate Robert Burn’s poetic admonition. That’s what happened to us when I thought I had planned for every contingency and possible emergency before we headed off on a trip from our San Francisco Bay Area home to San Diego for a little R&R.
I remember it like it was yesterday. It was 11:27 AM on a Saturday morning. I asked my Husband if he wanted to have a bagel for breakfast. I opened my mouth, and the words would not come out as much as I tried. It was one big stutter. Oddly enough, I did not think much of it. Looking back now, that was a not-so-smart thing to do on my part. I went on with my day as per usual. I went to the grocery store, and when I went to the cashier to check out, I reached for my wallet, and I could not grip it. I was so embarrassed as change spilled all over the floor. I had experienced this before when I was first diagnosed, but it was on the right side of my body, not on the left. I managed to get out of the store and into my car loading up a small number of groceries that I had with just the right side of my body.Continue reading