By Penelope Conway
Before multiple sclerosis came along I was an avid traveler. At different times I even lived and worked In Germany, France, Mexico and Jamaica. I loved getting out and meeting new people, experiencing different customs and enjoying amazing new food.
When my mobility became a struggle, it was then that I realized just how inaccessible so much of the world truly is, both here in America and abroad. You never really think about those things until they affect you personally. Continue reading
By Alene Brennan
Just because you have MS doesn’t mean you can’t have fun in the sun. MS or not, you want to enjoy summer vacations, barbeques and outdoor activities. So how can you achieve this without having the heat triggering or exacerbate your symptoms?
Check out these “accessories” that helped me manage MS during my mission trip to Haiti just one year after my diagnosis. Continue reading
July 4th is almost here! This recipe only takes a few minutes to make and is fantastic to serve to a crowd. This is the perfect summer pasta salad to serve warm or cold too!! Continue reading
By Stacie Prada
In 2014, I visited France for the first time. I went to Sainte-Chapelle at the recommendation of a neighbor who raved I needed to go when I visited Paris. It was incredible. The gothic architecture of the building relies on a web of supporting arcs that creates a pattern like no other I’d seen before in real life. It was awe-inspiring. I’d been told the main floor was beautiful and the upper floor exponentially more incredible.
At the time I recall there was construction and signage indicating only one way to access the upper floor. As I climbed the tightly curved, narrow and steep stairway, I experienced a visceral moment that had me choking back a sudden sob. My thoughts flashed to friends with mobility issues that would not be able to navigate this route. I realized that this is something that someday I will not be able to experience. In that moment I felt profound grief for what I haven’t yet lost – the ability and freedom to go anywhere without my body limiting me. Continue reading
With the end of the longest winter in history outside of Westeros (I see you Game of Thrones Fans) we turn our attention to sunshine and warmer days. And with those warmer days comes vacation season. Not that you are not allowed to take a vacation at other times during the year but the summer months tend to be high points for packing up and taking off to places away from home. But there is something to be said for vacationing right in your own home town. Continue reading
Looking to plan a vacation this summer, but you aren’t certain what your options are? Below are three travel guides available in MSAA’s Lending Library that offer insight into travel ideas and destinations that can accommodate someone with limited mobility:
Can you believe that it’s already June? Time is flying and we’re heading into the summer season full steam ahead. With the way the weather changes it feels like we hardly get a spring season anymore—winter tends to lead right into summer with the blink of an eye. For some folks this time of year marks a busy travel season-making plans for trips and creating itineraries of activities. For those living with disabilities, the idea of planning a trip can be taxing; making sure travel sites are accessible, packing the appropriate necessities, organizing each route to be taken—it can be exhausting before you even head out the door! But it’s important to know that there are different resources available to help you plan your trip, so hopefully you can enjoy the journey as well as the destination.
Recently, the Multiple Sclerosis Association of America proudly published two new publications: the Winter/Spring 2018 Edition of The Motivator, and the 2018 MS Research Update.
This newest edition of The Motivator features the cover story, “Finding Direction When Newly Diagnosed,” which covers a range of topics including MS basics, treatment options, employment issues, government programs, and more.
The 2018 MS Research Update provides a comprehensive overview of study results on many of the approved and experimental disease-modifying therapies for MS, as well as highlights on new directions in MS research.
Read excerpts from these two publications here:
MSAA is very proud to present our 2018-19 Art Showcase – celebrating the work of artists affected by multiple sclerosis (MS).
We have received many wonderful submissions from across the country and are delighted to share their work and their stories with you. Please visit our online gallery to view all of the new submissions.
|Maria Mesologites-Massey – Forest Hills, NY