Ah, the double-edged sword of summer. We welcome the sun and curse the heat. Just the change of season can wake the MS dragon. The MS dragon is fierce. Just do your best and always be prepared.
That can mean very different things for each individual. I have found some tactics for the summer battle. Aside from Continue reading
Minus some bad ideas, let’s cope with being stuck. Exploring new things can eat up time, no calories. I know the fridge and I are now best friends.
Try to find ways to keep busy. Read, put yourself in a “show hole” by watching something or do some yoga.
I take my scooter out and one of my sons walks with me around our neighborhood. Fresh air and Vitamin D does a body good. Soon it will be hot enough Continue reading
Well here we are forced to be hermits with this virus going around. While embracing our inner hermit is just part of some MSers lives already, it is different when your inner hermit is forced to be a hermit. Having a choice to be a hermit is now not our choice.
In light of this, connections and support are essential. Sanity is imperative. Online or phone connections are all the rage. Face-to-face is Continue reading
If you are like me, I try. Everyday is new. We have a “new me” daily. Some days we are the broken car in the garage and some days we are a strong engine.
On days your engine won’t turn over, don’t beat yourself up. We all have bad days. Some have really bad days. Try to hold on to something. Chocolate is meaty, but it makes things better.
I have had days that Continue reading
We all want a “new me” in 2020. Most MSers got a lump of coal from Santa when it came to MS. Fear not. We are warriors. Everyday for us is new.
Instead of making big New Year’s resolutions that are too big and often ridiculous, make small attainable ones. Do stuff you can do. Don’t try stuff you know you can’t do. New Year’s is daily for us.
Say it with me, “small.” I often Continue reading
Another MS enemy can be dealing with holiday traditions and family. Keep some, ditch some, and create some. MS is a big nasty gift. Pick through the mess for things you like.
When our kids were young, matching Christmas Eve PJs were a must. News flash, teens boys don’t like that. I still Continue reading
Wow, hard to be thankful when MS is a greedy robber. MS has taken so much from us MS folks. The line of…”it could be worse” is never, ever to cross anyone’s lips.
That being said, it is important to find things daily to be thankful for. No matter how small. From those who are in pain and bedridden to the newly diagnosed. Bedridden folks might be thankful for sheets. Others might be thankful for being able to still walk.
Find anything. There are days when Continue reading
Mental wellness is often overlooked by MS folks and those around us. I am not saying for others to walk on eggshells, but mindfulness is something we all need to remember. Mental wellness is trying and knowing when to seek assistance.
The saying, “… if you have nothing nice to say…” This goes for negative self-speech too. Try to speak words of affirmation to yourself. Be your own cheerleader. Try at least.
Having been a Continue reading
I have a love-hate relationship with back to school. Personally, I hate school supply shopping. I direct from my wheelchair, but I still hate it. It is frustrating and energy sucking.
The high schoolers are fairly easy now. They know what they want and some teachers do have their students get particular things. Mostly, it is hands off; however, I still have one that needs a list. He is also on a year round schedule.
Orchestrating the school supply trips can be no fun, when you have Continue reading
That’s funny, relax with MS. Like being drawn and quartered is relaxing. It is possible, I think, to kick back. We often hear about not relaxing and it’s negative effects. Easier said than done. I know.
For me, I relax by trying several things. First, don’t beat yourself up. MS stinks for us all. Just acknowledge that fact. Distraction is a great way to relax.
I admit to putting myself in a “show-hole” frequently. I fall into those Continue reading