I Thought I Had Lost My Smile

Anxiety

By Penelope Conway

Added stress for a person with multiple sclerosis is not ideal. Life is already challenging enough, but the added stress makes everything a gazillion times worse. Anxiety easily sets in. You get less sleep, more headaches, your appetite can be either non-existent or you want to eat everything in your cupboard, everybody gets on your nerves with stupid things like just saying hi to you in the morning, weakness increases, you notice the ringing in your ears more, and pain is through the roof. All the little symptoms you used to just accept are now Continue reading

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You Are Not Alone – Anxiety and Depression in MS

By Doug Ankerman

It is not easy.

Of all symptoms one can experience with multiple sclerosis, I find anxiety and depression to be the most challenging.

For foot drop — I wear an AFO. Heat tolerance — I put on a cooling vest. Balance issues — I use a rollator. But for anxiety and depression, there is no aid. No clunky piece of equipment to help you through. Continue reading

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What People with MS Wish You Knew About MS Pain

A woman doubles over and squints in pain, holding her stomach and her back. The background shows the enlarged, abstracted outline of lightning bolts.

Pain can be one of the most challenging things in life to deal with. However, for people with MS, pain is often part of daily life.

While September was Pain Awareness Month, it is important to continue the conversation about the connection between pain and MS. To learn more about the impact of this connection, we asked community members to share their experiences and Continue reading

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Resources for Mental and Emotional Wellness

Anxiety and depression are among the most common symptoms associated with multiple sclerosis. It can be challenging trying to navigate through life with a disease that affects both your body and your emotions. In this blog, I’d like to share some helpful resources for mental and emotional wellness. I want you to know that if you find yourself battling anxiety and depression, there are resources available to help you manage and improve your mental and emotional wellness.  Continue reading

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Learning About Anxiety

By Stacie Prada

I get anxious, but I never considered I might have anxiety. I’ve heard people talk about how it feels to have panic attacks, and I know I haven’t experienced one. I thought of anxiety as something constant and debilitating. I do yoga, I laugh, I’m active, and I’m productive.  Having a diagnosis of anxiety doesn’t fit in with how I view myself.

But when I research anxiety, I realize that what may not be paralyzing for me could still fall perfectly under the anxiety umbrella.

Anxiety

Grinding teeth, nausea, headaches, problems sleeping Continue reading

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Zephyr

By Chernise Joseph (Zivvy)

Anxiety. I’m full of that right now.

It’s pretty common, but it still feels like something you’d see in a horror movie: it sneaks up on you, there’s some loud, dramatic cue of music, and then suddenly whatever else you’re doing feels irrelevant because now you have to run from It.

Tonight, I sat outside with my friends and watched the tree canopies above us get caught up in the wind. It’s a cool, breezy night Continue reading

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Autumn Mock-Tail Recipe

We are officially in the fall season, and as the weather cools down, our taste buds start to crave certain festive drinks. We are not talking pumpkin spice – although I can appreciate a good fall pumpkin spice anything.

Why not try a Mock-Tail. I love this Mock-Tail recipe because it reminds me of Autumn. It has all the colors I love to see outside this time of year.

Ingredients Continue reading

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Medicare Open Enrollment 2021

We’ve entered that time of year again when insurance changes and decisions are upon us. And during what has been a very challenging and different, (to say the least), year, these decisions are more crucial than ever.

Medicare open enrollment begins tomorrow, October 15th, and will last until December 7th. During this time period, individuals can review their current Medicare plan and make changes if needed. You do not need to sign up for Medicare each year but reviewing your plan and making adjustments and changes as needed to make sure your healthcare needs are met, is essential.

Some new changes to note for the 2021 coverage year include lower premium costs and increased benefits and plan options for Medicare Advantage recipients. Premiums will be at their lowest rate since 2007, and extra telehealth and supplemental benefits, such as in-home support, will be offered as well. But it’s important to review out-of-pocket costs with these plans, even though premiums could be low, as well as making sure your providers are in the coverage network. These plans are very localized as well, so review what options are offered in your specific area/zip code for coverage. *Medicare Advantage plans are a type of Medicare health plan offered by a private company that contracts with Medicare to provide Part A and B benefits.

Medicare beneficiaries who have a Medicare Advantage plan or Part D plan should receive paperwork called “Evidence of Coverage” or “Annual Notice of Change” letters from your health plan showing coverage outlines and any changes that will occur. It’s very important to review these materials to make sure of any changes in the plan’s costs, providers, benefits, drug formularies, etc. so that if something is changing with your plan, you are aware of it and can make changes to your coverage if needed. These plans can change their benefits so it’s crucial to review your policy and any upcoming changes.

According to Medicare, you can make the following changes during the open enrollment period:

Also, if you are not satisfied with your Medicare Advantage Plan, you can disenroll from that plan and join Original Medicare during the Medicare Advantage Disenrollment Period. This disenrollment period is open from January 1st to February 14th of each year.

The Medicare website offers a Medicare Plan Finder where you can search for and compare health plans, benefits, coverage and estimated costs. You can also contact Medicare directly at 1-800-MEDICARE (1-800-633-4227) for information and questions.

You can also receive assistance and guidance in choosing coverage through your State Health Insurance Assistance Program (SHIP). This resource provides one-on-one insurance counseling and support regarding Medicare benefits. Visit https://www.shiptacenter.org/ to find your local office.

MSAA’s My Health Insurance Guide is a helpful source for the MS community to find more information about insurance options and resources, in addition to the Medicare Planning and Multiple Sclerosis brochure that helps to outline important parts and questions about Medicare coverage.

This is an important time to review your plan’s policy and make changes if needed to ensure that you have the appropriate coverage for your healthcare needs.

 

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Take the Time to Feed Your Creative Self

By Maria Sammartino

Art has always been a part of my life and who I am. Growing up we didn’t have the luxury of “just watching TV.” My grandparents were both artists and made sure when we were with them, we either had a pen, crayon, paint, knitting needles, or crochet hook in our hands. Thankfully for us, they made sure our hands were always busy and we were creating something.

My grandmother was Continue reading

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Yes, it’s common with MS, and you are not alone

On the MSAA helpline we are often asked the question if depression and anxiety are common with MS. Those diagnosed and/or their loved ones reach out wondering about these symptoms and if others experience them too. The answer is yes. These symptoms can be very common with MS and are experienced by many with the disease. Questions about why and how, are ones still being researched to this day. And in a year like we’ve had, will probably be highlighted even more so moving forward.

There are many factors that connect these symptoms to MS and the disease course. MS can affect parts of the brain that help to control and regulate emotions and behaviors. Side effects of medications, other symptoms, and changes in the body due to MS can also contribute to depression and anxiety. And let’s not forget the general life stressors and daily changes encountered all the time.

Learning that depression and anxiety are common with MS and happens to others can help to alleviate some of the stress and burden felt when questioning the symptoms. And though that doesn’t always necessarily make it easier to cope with or manage, finding validation and support are definitely helpful keys. The first step is talking about it. Finding someone trusted to confide in and disclose what you’re feeling is an action you owe yourself to take. There may be things that are out of your control when it comes to MS. But your ability and strength to share what you’re feeling is not lost.

If you’re experiencing symptoms of depression or anxiety, or even if you’re really not sure what it is that you’re feeling, talk to your doctor. Be open and honest about what’s going on. If you or others around you have concerns or questions, bring them up. And if you feel embarrassed or ashamed to talk about symptoms with certain people in your life, then choose that one person you know will listen without judgment and that you would trust. Whether that’s a medical professional or starting the conversation with someone close to you. Do yourself that justice and reach out for support. There are many ways that depression and anxiety can be treated and managed, and you deserve to have it be so.

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