Community Views: Do MRIs Tell the Whole Story?

An MRI machine sits in the bottom right hand corner of the frame. There are 3 question marks flying out of the machine with one that has a "no" symbol on it.

For many people living with multiple sclerosis (MS), the relationship with magnetic resonance imaging (MRI) is complicated. This imaging tool can be helpful in determining how quickly the disease is progressing in the nervous system, but can also give complicated results.

We turned to our community members to learn more about your experience with MRIs. We asked Continue reading

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Safety Precautions Can Be Extra Challenging for Those with MS

Living through the COVID-19 pandemic is difficult for everyone. However, it is certainly more challenging and stressful for anyone with a health complication, especially MS. In particular, quarantine and some safety precautions come with unique challenges for those with MS.

To hear more about how the MS community is handling COVID-19 protective measures, we asked our Facebook community: “What safety precautions have you found to be the most challenging with MS?”

More than 100 community members weighed in. Here is what you had to say. Continue reading

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MS and Self-Care During the Quarantine

A woman as a potted plant watering herself to grow healthy

For most people, living through the quarantine is one of the most challenging and unnerving experiences ever. And yet, it can also be a time of boredom, as many are kept away from the places of everyday routines, from gyms to community pools.

To not just make it through but thrive during this time requires a heightened attention to self-care.

To hear more about how those in the multiple sclerosis community are handling Continue reading

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Advice from the Community: Awaiting an MS Diagnosis

Waiting is the hardest part. For anyone who thinks they may have MS and is undergoing testing, awaiting results can be scary and downright hard to deal with.

To learn more about how to cope during this challenging time, we reached out on the MultipleSclerosis.net Facebook page and asked: “What advice would you give to someone who is going through the testing and diagnostic process but has yet to receive a confirmed diagnosis?”

Almost 90 members of the multiple sclerosis community shared their hope and experience. Here is what they said. Continue reading

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The Biggest MS Triggers

Blue hand pushing away black web of strings representing stress

In the early days after diagnosis, MS triggers are often a mystery. However, many find that the more time they have lived with MS, the more they know exactly what makes their symptoms worse.

To hear about some personal experiences with MS, we reached out on the MultipleSclerosis.net Facebook page. We asked the community to Continue reading

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How Multiple Sclerosis Affects Sleep and Dreams

Dreams are a wildcard—whether you are living with MS or not. For some, dreams are an escape from the physical limitations of life with multiple sclerosis. Others experience something different when they go to bed. Good or bad, the dreams and nightmares tend to have one thing in common: They are extremely vivid.

To find out more about these experiences, we reached out Continue reading

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Multiple Sclerosis and Headaches

In his story “Does Multiple Sclerosis Cause Headaches?” posted on MutiplesSclerosis.net, author Matt Allen explores the correlation between MS and migraines. As someone with MS and also a migraine sufferer, he took notice as more and more attention was paid in the media to the possible correlation.

In his story, he cites a 2017 study that found that headaches are experienced by 78 percent of people newly diagnosed with MS.

This study alone is not enough to make a Continue reading

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Young and Disabled with MS

Multiple sclerosis is one of the most unpredictable diseases there is, especially when it comes to young people. Symptoms vary widely, and the time it takes to progress can be long or very little at all.

A difficult condition to understand

In large part because it shows up so differently for so many in the community, it’s a difficult disease to understand. But, anyone living with it Continue reading

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How Winter Can Affect MS

For most of you, there is one certainty when it comes to winter and MS: the colder weather and gray days have an effect on you. But how the weather affects you is a toss-up.

We reached out on the MultipleSclerosis.net Facebook page to ask: “Do the darker, gray days of late fall and winter impact your emotional symptoms?”

In the community, 925 members voted. An overwhelming majority Continue reading

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Busy Fighting Progressive MS

Woman peacefully sitting in blue chair with a dog on her lap

Over on MultipleSclerosis.net, we recently shared an article by Dianne Scott about fighting the secondary progressive stage of MS (SPMS). Her words generated a lot of discussion in our community about how MS looks from the outside compared to how it can feel from the inside! The many thoughtful responses added so much to the article and the conversation about life with MS that we decided to compile some of the comments and share them here. Continue reading

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