Here I Go Again

By Samuel Fitch

Ten years! After about ten years away from the gym, I decided to walk back in the door. In that time, I’ve been living with multiple sclerosis (MS) and staying active, but not in the way most people think. My life is full: busy professionally, engaged in the family business, raising four kids, and supporting a wonderful wife. That kind of activity keeps me moving, but at times it carries its own stress. 

About a month ago, I felt a strong pull to return to structured exercise, first to safeguard my cardiovascular health and then to gradually reintroduce weight training. Not for huge muscular gain, but to strengthen and preserve what I already have. My mother’s passing at age 65 from a ruptured brain aneurysm after decades of smoking played a major role in that decision. Seeing mortality up close made me realize I want to be here long enough to watch my grandchildren grow, to enjoy years with family and meaningful work. 

So each day I’ve headed to the treadmill. Thirty minutes, heart rate up near 150 beats per minute. The result has been therapeutic both mentally and physically. There’s pain in inertia but power in motion. 

For my fellow men and women living with MS, I know our journeys differ. Some face greater physical challenges, while others may have more flexibility or energy to work with. My belief is that doing something, even small steps with the ability you have, can still produce a meaningful impact on well-being. Research supports this truth. Studies show that aerobic and resistance exercise improve mobility, reduce fatigue, and enhance quality of life in people living with MS (National Institutes of Health). Even more encouraging, exercise in MS is considered safe and does not worsen disease activity when properly managed (Cleveland Clinic). 

If I had known how good I would feel simply by walking on the treadmill three times a week and steadily elevating my heart rate, I might have started sooner. But hindsight is a teacher, and the best time to begin is right now. 

So that’s the invitation: whether you’re managing MS or simply navigating the busy demands of life, choose to move. Protect your heart, support your brain, and honor those you’ve loved and lost by caring for the life you still have before you. 

Stay strong, inside and out. 

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Ashley’s Journey: Team MSAA and Ironman World Championship

In 2017, Ashley Norton received a diagnosis of multiple sclerosis and set a remarkable goal: to compete in the Ironman World Championship – all 140.4 miles of it.

This dream of swimming 2.4 miles, biking 112 miles, and running 26.2 miles naturally required her to manage significant challenges. As a single mother living with MS, she was navigating this new diagnosis and motherhood while also having undergone six heart surgeries and requiring two pacemakers due to lifelong heart complications.

Her journey was defined by resilience, persistence, and unwavering determination. This past October, Ashley achieved her goal by crossing the finish line at the Ironman World Championship in Kona, Hawaii. MSAA had the opportunity to speak with Ashley about her diagnosis, her journey to Ironman, and her experiences being on Team MSAA.

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Making the Most of Summer to Improve Your Overall Health

By Dr. Eva Jackson

Summer is often marked by joy, laughter, family traditions, and road trips. Taking a moment to sit on your porch and listening to birdsong can provide an effective respite from the stresses and demands of a busy day. A simple walk around the outside of your home to get a daily dose of nature can provide someone living with multiple sclerosis a simple dose of much needed Vitamin D and improve overall health. These activities are also great for meditating and mindfulness exercises.

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Team MSAA and runDisney Participant Highlight: Tiffany McCahill 

Completing a 10k endurance event last year wasn’t enough for Team MSAA participant Tiffany McCahill. She’s doing it again, but this time raising the bar and taking on the half marathon!  

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Beat the Heat While Staying Active

Summer brings longer days and the perfect opportunity to enjoy outdoor activities. However, the heat can be a challenge, making it essential to find ways to stay active while remaining safe. Here are some tips to help you make the most of your summer workouts:

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Manténgase activo y fresco

Mantenerse activo puede ser un reto a medida que aumenta el calor del verano, especialmente para quienes padecen una enfermedad crónica como la esclerosis múltiple (EM). Personalmente, este verano ha sido particularmente caluroso. Aunque mantenerse activo es fundamental para nuestra salud, ¿cómo puedo hacer ejercicio y mantenerme activo cuando lo único que quiero hacer es quedarme en casa y acostarme frente al ventilador? A continuación, le ofrezco algunos consejos que le ayudarán a mantenerse activo durante el verano:

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Stay Active and Keep Your Cool

As the summer heat continues to rise, staying active can be challenging, especially for those managing a chronic health condition like multiple sclerosis (MS). Personally, this summer has felt particularly hot. While staying active is crucial for our health, how can one exercise and keep moving when all they want to do is stay indoors and lie down in front of the fan? Here are some tips to help you remain active and thrive during the summer months:

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Surviving Summer

This summer has been incredibly hot across the nation. Possibly due to global warming. Heat waves have been unusually common this year. Staying active in summer can be a challenging task but there are ways you can beat the heat. With some of the tips below, these tips may ensure you are able to continue with your daily routines and exercise regimes. 

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Keep Moving

By: Stacie Prada

If you can’t run, then walk, if you can’t walk then crawl, stretch, or flex. Just keep moving.

Living an active lifestyle can be a challenge in the best of circumstances. Add living with multiple sclerosis symptoms such as fatigue, foot drop, and heat sensitivity, and it’s generally frustrating and takes more effort to stay motivated. Factor in adverse weather conditions, and it’s a huge undertaking to override the urge to be sedentary.

With MS, it’s common for symptoms to act up when the body temperature increases. That’s why hot weather is one of the many obstacles to staying active. When I was still learning how MS affected my body, it was scary when a jog led to body numbness from the neck down and an inability to control my feet reliably. Over time, I learned to differentiate between heat and exertion-induced pseudo-exacerbations that would subside within an hour or so after I cooled down and disease-progressing exacerbations that last much longer.

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Remaining Active in the Summer Heat

Exercise and staying active has so many benefits such as improved mental health and wellbeing. However, for many, the extreme summer weather we have been experiencing can make it hard to stay active. Heat sensitivity is a common problem among people with multiple sclerosis, often aggravating common symptoms.

Here are helpful tips on ways to keep your body cool and remain active this summer!

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