Consider a Staycation!

Wow, can you believe it’s already May? Time feels like it’s flying by and we’ll be headed into the summer months before you know it! Many people spend time traveling and taking trips during the summertime, usually because kids have off from school and different attractions set-up shop and thrive during these warmer months. But many people aren’t able to travel abroad or from state to state for various reasons at times; so you may have to get a little more creative about how to spend these vacation days.

The word “staycation” is an expression that has increased usage within the past 10 years or so as a way to describe a vacation spent at home—spending time seeing local attractions, participating in activities close to home, or just hanging out in the backyard. What constantly amazes me is how many beautiful and remarkable sights so many people have right in their own cities! The world is filled with many extraordinary attractions and wonders, but sometimes it’s nice to be able to start at home with learning and appreciating what’s nearby. From parks and forests to museums and historical landmarks, there can be new things to explore and experience right near home. Traveling can be great, but a staycation can be just as satisfying. A staycation can also reduce stress because you don’t have to deal with long distance travel and spending excessive amounts of money; it may be more relaxing to just lay low and plan day trips and activities at your own leisure.

If you’re going to commit to a staycation, one of the most important things to do is to unplug. This means that if you are employed, disconnect from your email, and do not go into work just because you’re close to home! If you participate in daily groups or activities that you want to take a break from, this is the time to do just that. If you want to stray from your day to day and do something different, this is your opportunity. It’s tempting to stay connected because you’re not truly ‘away’ on a vacation elsewhere, but it’s still YOUR vacation, and you deserve this time as much as anyone. If you want to make other guidelines for your staycation like not using any electronics at all or not communicating to certain folks, that’s completely up to you! After all, it’s your time to do what you wish, and if your wish is for a restful staycation, then sit back and enjoy it!!

Have you ever had a staycation? What were some things you did to enjoy your time?

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(Last Minute) Summer Fun

As we continue to pass through the summer months and find ourselves looking towards a change of season (hopefully soon!), there’s still some time for fun to be had during the remainder of the summer. At times it can be difficult to try to make plans or schedule activities if the uninvited MS decides to rear its head and join in. But there are some last minute ways to try and enjoy the rest of the season, without having to make elaborate plans that MS will try to outdo.

There are times when heat-excessive summer days call for indoor activities, so why not have a game day/night? Getting back to a time where playing board games and cards was all the rage can be fun and nostalgic, and a good way to find some last minute amusement with friends or family. And keeping with the indoor theme, how about a movie night? Gathering together to watch a good flick, even if coordinated last minute, can be relaxing and entertaining. Orchestrating a last minute trip to the movies or visiting a museum or aquarium can also be some fun activities that may not require excessive planning but an opportunity to enjoy events of the season.

Check with community offices and message boards in your area to find some local events being held during the rest of the summer. Concerts, festivals, shows and exhibitions are just some of the local activities your community may offer that you can take advantage of last minute. Sometimes trying to take part in an activity that’s more spur of the moment and last minute can work to your benefit, especially if it catches MS off guard and doesn’t give it the opportunity to invite itself!

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Getting Back to Nature

Did you know that across our country there are amazing State Parks you can visit and enjoy?  What a great way to explore new parts of the country or even a local state park in your own back yard.

NPS-Centennial-ImageNow that summer is here, hopefully you have a little extra free time.  A great way to use that free time is to get out and enjoy nature.  Whether sitting in your backyard or going to a local park, taking in the sights, sounds, and smells of nature can be very relaxing and  therapeutic.

State Parks are also a great place to become one with nature.  While they might be a little further away, they are well worth the trip.

The state park entrance pass system works differently in each state. Many states offer some sort of pass that allows for unlimited entry at most state parks, while others offer park passes on a park-by-park basis. A few states do not charge entry fees to their state parks at all if you are a resident of that state.  Most states even offer a Disability Discount Pass for people who have documented disabilities.   All fifty states are listed below, with a link to their official state park website and information on their state park entrance pass program. Find your state, order an entrance pass, and enjoy unlimited access to the natural beauty your state has to offer!

 

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Summer Love

By Lauren Kovacs

Summer is a double edged sword for many with MS.  Making the monster happy is a battle.  While winning the war may not come until a cure, small victories can be celebrated.

Heat is a battle most of us fight.   Staying cool is essential.  Cooling vests with the ice packs work well.  I don’t enjoy looking like someone on safari suffering from some weird allergic reaction, but it is better than the alternative.  Lumpy ice packs stuffed into a vest are not a fashion statement anyone wants to make.

Stick to a routine, as much as possible.  I know having kids home for the summer is like herding drunken cats.  As a mother of three boys and being a frequent wheelchair user, I am very familiar with the struggle.  Pick an activity indoors, like bowling.  It is cheap and you can bask in the A/C with caffeine and cheese fries. You can still participate from a comfy chair.

Fatigue it my number one enemy.  It cuts me down with one swoop and then stabs me to be sure I stay down.  Coffee and soda are the poison of choice for many.  But, as caffeine is a diuretic and liquids have to exit the premises, these are not always good options for those of us dealing with tight time limits on the bladder.  The caffeine crash is another unsavory blow.

I have found timing is everything.  Time medication and naps to your daily needs.  My secret weapon is caffeine gum.  Chewing caulk-like gum is gross, but it gives me a wee kick without frequent trips to the potty.  Using the potty, for me, has its own gymnastic routine.  It also means using precious energy.  I feel like a gnat in winter already.  I cannot afford to use energy on potty breaks.

Take summer slow.  Summer days drift away so fast, but enjoy it too.  MSers are great at balancing.  Enjoy what you can, when you can and however you can.  Sitting in a lumpy cooling vest chewing caffeine gum is far better than missing out.

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5 Reasons to Give Swimming a Try

Aquatics PhotoNow that summer is in full swing, are you looking for alternative ways to stay cool while getting in some exercise? Head to the pool! Swimming and other water-based exercise can help with many symptoms of MS, including loss of mobility, balance and coordination, as well as fatigue. And the cool temperature of water can help prevent overheating, which can worsen MS symptoms.

Even if you’re not confident in your swimming abilities or you just don’t like dunking your head underwater, there are plenty of other ways to exercise in the pool.  Many fitness centers and area municipal pools offer aquatic classes including water aerobics, walking, and aquatic treadmill.

Swimming is an aerobic activity, so it’s good for your heart and your muscles. Here are more reasons why you should consider giving swimming a try:

  1. Buoyancy: Water supports 90% of a person’s body weight, reducing joint stress, pain, and fear of falling
  2. Resistance: Water-based exercise builds muscle and enhances stability, flexibility, and balance
  3. Pressure: Swimming allows the heart to work with less stress, reducing swelling and pain in lower extremities
  4. Temperature: Water transfers heat energy more efficiently than air, which can help moderate body temperature
  5. Overall Wellness: Socializing at the pool, having fun, and relating to other individuals can have psychological benefits.

Find more tips, resources, and inspiration to get started on MSAA’s Swim for MS Online Aquatic Center at aquatics.mymsaa.org and check out our Aquatic Exercise and MS – Tip Sheet.

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Hot, Hot, Hot

Being halfway through July we can surely say the summer season is in full swing, and for those with MS it’s no secret that the heat and humidity of the season can be a real downer at times. MS heat sensitivity can result in aggravated or worsened MS symptoms and help to contribute to an overall disliking of the summer months. This can be disheartening because many individuals enjoy this time of year, with outdoor activities and events that beckon and get-togethers that warrant much time outside—shame on MS for trying to corrupt this. But there are things that can be done to try and overcome the cruel intentions MS may have during this time of year, and some may already find themselves doing them.

  • It might be tricky at times, but when you can, get outdoors when the temperature is more manageable. Going outside earlier or later in the day/night can help you avoid the hotter temps throughout the day.
  • When possible, engage in activities that are in cooler/air conditioned places. If you have to be outside, try to take breaks in shaded areas or indoors when you can.
  • Wear cooling products like neck wraps or vests that can help to reduce heat sensitivity issues and keep your body temperature down.
  • If you’re not in the mood to travel or go out due to the heat, have friends or family come to you for a visit.
  • Explain MS and heat sensitivity issues to those close to you so they have an understanding of what you’re experiencing and why there may be some limitations during this time of year.
  • Try to stay actively engaged in the activities and events you enjoy during these summer months. Adjusting the timing or setting of your interests or finding new things to participate in can help to combat the heat factors.

There’s a line you can draw with MS when it comes to your likes and interests. If you enjoy the summer season take part in things you’re able to or try new experiences, and let MS sizzle by itself under the summer sun.

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Introducing Susan Russo – Artist & MS Conversations Newest Guest Blogger

By Susan Russo

My name is Susan Russo and I was diagnosed with Relapsing Remitting Multiple Sclerosis back in 2001. I live just outside of Houston, Texas in the town of Pearland. I recall when I first moved here, the local folks said there are three seasons in Texas – Summer, July, and August! And there’s never been a truer statement made. Living in the Texas heat is a challenge for anyone, but when you have multiple sclerosis, a “typical, fun in the sun summer” simply does not exist, as least in my world.

Growing up in Northeast Ohio, my summers consisted of camping in the backyard, catching fireflies, and playing blind-man’s-bluff until midnight. How I remember, the endless days spent swimming in the local pool while munching on frozen Zero candy bars and chasing all the cute boys.

In Texas, my summers are spent primarily indoors, but that is not necessarily a bad thing.

I love my solitude. But I also appreciate being around people and staying active. I schedule my grocery shopping for later in the day, towards dusk, because carrying a few bags from my car to my front door in 100 degree heat can make me feel like I’m going home to Jesus at any moment! Thank you Lord for air conditioning.

I also love to swim. The Pearland Natatorium has an incredible indoor lap pool. My favorite days are when the Houston Texans football team show up for their Spring Training workout schedule. Best day ever! Nothing like beautiful eye candy to keep you motivated! Yup, I still chase cute guys.

Here’s the thing about multiple sclerosis. Just because it’s summer, doesn’t mean you cannot have fun, indoors or out. It took me a long time to understand this simple concept. You just have to choose what is right and most comfortable for you. Work “with” your disease. Not “against” it. Make sense?

Here is what I finally realized:

  • My favorite, year-round footwear are flip flops with glitter
  • I am addicted to binge watching on Netflix, for real, people. ( I think I may need therapy)
  • My Thursdays are spent watching the Blue Bloods marathon
  • I can have all the popsicles and vanilla ice cream cones I want (with sprinkles on top), without it dripping down my shirt and pooling into a huge glob of melted goop, before I even take my first bite
  • I can volunteer for my local community or sign up for interesting summer courses
  • I can see a movie at the local theater with absolutely no crowds, long lines, or someone’s big hair style up-do blocking my view.
  • Did I mention, I can eat all the popsicles I want?

And of course, there is always my precious art. For those who know me, and for those who do not, I am an artist. My creativity is my saving grace, especially during the mundane summer months along the Texas Gulf Coast.

Summer is going to arrive, every year; hot, super hot, or indifferent. That’s a given. But do not despair my fellow MS warriors. The days sprawled outside in my lawn chair, sipping iced tea with lime, under the glorious blue skies and feeling the semi-brown prickly grass under my feet, (along with the mounds of fire ants) are not gone forever.

When autumn and winter arrive in Houston, that is when my true “All Things Summer Event” begins. Just imagine 70 degree days, bright amazing sunshine and no humidity along with crisp, cool breezes that lasts for days and sometimes even weeks. Yes, even weeks.

Oh…and sometimes it even snows. Yup, it snows. My “favorite” time of year, besides summer, of course.

"Seasons of Summer" by Susan Russo

“Seasons of Summer” by Susan Russo

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The Best Part of Summer – Barbecues!

Summer is finally here! Unfortunately, in most parts of the country, that also means the heat is here too. This can obviously put a damper on the season. But there are many positive, enjoyable things about the summer time. Family vacations. Travel. Baseball games. The 4th of July. Fireworks. And barbecues!

For me, barbecues are the best part of the summer. Whether I am entertaining or attending as a guest, I really enjoy spending time with family and friends in a relaxed setting. Plus, barbecues can be enjoyed in many ways. My husband and his friends man the grill. The kids play in the pool, play wiffle ball, and create their own games. My mom sits in the shade with her friends and they talk about the “good old days”. As host, it’s my duty to make sure everyone is comfortable and well fed.

In that spirit, here is a recipe for one of my favorite barbecue side dishes: Deviled Eggs!

Easy Deviled Eggsdeviled-eggs1

6 hard-boiled eggs
salt and pepper
2 tablespoons mayonnaise
1 tablespoon yellow mustard
2 tablespoons dill pickle relish (you can also use sweet pickle relish)
paprika

Directions

Peel shells off of the hard boiled eggs and slice in half (lengthwise).
Using a spoon, gently remove the yolks from the whites and place all the yolks in a small bowl. Mash the yolks into small pieces. Add the mayonnaise, mustard, and relish to the yolks and mix until well combined and creamy. Fill the empty egg white shells with yolk mixture and sprinkle with paprika.

What is your favorite food to serve or bring to a barbecue or picnic?

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July 2015 Artist of the Month: Celebrating the Work of Artists Affected by Multiple Sclerosis

MSAA is very proud to present our 2015 Art Showcase – celebrating the work of artists affected by MS.

We have received many wonderful submissions from across the country and are delighted to share their work and their stories with you. Please visit our online gallery to view all of the new submissions.

July Artist of the Month:
David Desjardins – Union, ME

 David Desjardins - Jody on the Beach

About the Artist:
“I think like most artists here, I am using my artwork to show that even though MS has slowed me down and has limited what I can do, I am proving to myself and others that I am still capable of creating something beautiful and unique. When I finish a project, and my framed painting is hung, I have such a feeling of accomplishment and satisfaction – “I created that!”

I’m not as prolific a painter as I once was, but I find that concentrating and losing myself in my current painting is a great way to spend an afternoon while creating something of beauty.”
Read more about the Artist of the Month

Be inspired – please send an online card featuring artwork by MS artist David Desjardins and spread awareness of MS and MSAA.

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Summer Planning and Travel Resources: An MSAA Blog Re-cap

As planning begins for summer vacations or trips, many are left searching or wondering what resources may be available to help with planning. MSAA guest bloggers Matt Cavallo and Jeri Burtchell have written over the years to provide some helpful tips for the travelling MS community.

In Air Travel Tips for the MS Community; Matt, a seasoned traveler, provides his Five Steps to Stress-Free Air Travel for People Living with MS. Matt writes, “Travel is stressful for everyone. Airports are big, busy and fast-paced. Security lines can be long and the thought of standing, unpacking, and repacking at TSA is enough to unravel even the most seasoned traveler”.

Often times the smaller details are those which are overlooked when planning a trip. Those small details such as the size of your carry-on, or the snacks packed in your bag can often make or break a trip. In Jeri’s Summer Travel Tips for Flying with MS Part 1 and Part 2, she identifies some of those smaller details that should be thought of ahead of time in order for smooth sailing….or flying in that matter.

We often learn through the experiences of others. Please share your flying or travel tips in the comments below.

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