This is a quote from one of my all-time favorite Christmas movies, The Santa Clause. When I heard the quote again this week watching the movie for the millionth time, it got me thinking. What does this really mean? For purposes of the movie plot they’re talking about it in terms of jolly old St. Nicholas and the happenings at the North Pole. But I started to think Continue reading
The holidays can be a joyous time of celebration and cheer. But they can also be stressful and challenging. When it comes to expectations of what should be done throughout the holiday season, financial limitations can be especially difficult. For those who could use some extra holiday help Continue reading
Wow, I can’t believe its November already! I don’t know where this year has gone, but its end is quickly approaching and with it, the holiday season. Any time of year can be hectic and stressful. For many, the holidays bring an added helping of overload and chaos a lot of the time. While some are able to focus on Continue reading
Everyone’s lives are very different and unique. But when it comes to certain experiences we can all relate to one another in some way. Many have had the unfortunate and shared experience of moments that are unexpected, uninvited, and honestly, unwanted during the course of life.
For individuals diagnosed with a chronic illness like MS, acceptance is not often the first thing on their mind. Questions, doubts, Continue reading
September is here! Now let’s hope that it brings with it some cooler temps. Summer was especially cruel around the country this year with multiple heat waves, rain, devastating fires and other challenges. I don’t think I’m alone when I say I’m glad to see it go. But just because it’s September doesn’t mean it’s autumn-like weather just yet either. It’s been Continue reading
Working on the MSAA helpline we often hear different types of client experiences when it comes to working with one’s healthcare team. Some rave about their doctors and specialists and cannot say enough good things about the care they receive. Others don’t have quite the same positive reviews in their circumstances. Continue reading
I think we can agree that life is very serious a lot of the time. We all encounter situations or predicaments that require much thoughtful attention and focus, and many moments that elicit extremely strong feelings that can get overwhelming. Life can shell out some pretty unpredictable obstacles and experiences and it’s hard not to feel overcome and bogged down with the heaviness of it. That’s why it’s so important to reap the benefits of positivity, especially humor, when we can. Because dealing with illness, loss, and change can be physically, emotionally, and mentally exhausting we have to find and take advantage of moments of joy in between. Continue reading
Can you believe that it’s already June? Time is flying and we’re heading into the summer season full steam ahead. With the way the weather changes it feels like we hardly get a spring season anymore—winter tends to lead right into summer with the blink of an eye. For some folks this time of year marks a busy travel season-making plans for trips and creating itineraries of activities. For those living with disabilities, the idea of planning a trip can be taxing; making sure travel sites are accessible, packing the appropriate necessities, organizing each route to be taken—it can be exhausting before you even head out the door! But it’s important to know that there are different resources available to help you plan your trip, so hopefully you can enjoy the journey as well as the destination.
As someone who is usually hesitant to try new things I’ve found that if you give something new a try, it could result in some really nice benefits and rewards. A few years ago I wrote about trying yoga classes for the first time, and as it turns out it’s something that has really helped my pain issues when they come on. I attend hot yoga classes, and I know for many with MS this style is not an option if heat sensitivity symptoms are an issue with the disease, but yoga in other formats can be beneficial too. It’s more about the movements and mindset it creates that can be valuable to all. Continue reading
Care partners are a vital source of support and assistance to those living with chronic illnesses like MS, and it’s important to realize that they need just as much care and support for themselves in order to maintain that role of care partner to others. Self-care often falls by the wayside as burnout and exhaustion from daily caregiving tasks overpowers all else; that is why calling out some of the crucial resources and services available to care partners is so important. In a previous post we talked about some of MSAA’s resources for care partners, so we thought it would help to expand on this to include some other types of community sources of assistance.
Offices of Aging and Disability Services:
These offices provide resources and services for caregivers that include respite care, homecare assistance and other community programs. Individuals can search by location for this office contact:
Centers for Independent Living:
These centers offer information and referral services as well as some direct programs to those living with disabilities and are a good source of information to caregivers. To find one’s nearest location they can search by state/city/county here:
ARCH National Respite Network:
Resource providing a respite services locator, funding and caregiver support contacts, webinars and publications for caregiver needs:
Family Caregiver Alliance:
Organization that does policy and advocacy work for caregiver needs; they also offer caregiver education, online support groups and links to state by state resources:
Caregiver Action Network:
An organization providing education, peer support, and resources to family caregivers across the country:
Veterans Caregiver Support:
Support resources and tools are provided to those caring for veterans. Resources are also provided for specific conditions that include MS: