Setting goals is easy, but holding ourselves accountable is where the real work begins. We often imagine that achieving a goal is simply about motivation, but it also involves structure, self-awareness, and creating the right environment. Accountability isn’t about pressure or perfection; it is about building habits that support the version of ourselves we are trying to become.
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The wheels have turned again, bringing us to the beginning of a brand-new year. This is the perfect time to reflect on the past year and identify the changes one would like to make this year to bring more growth and fulfillment to their life. Setting resolutions for yourself can give a sense of accomplishment and boost your self-esteem when positive results are achieved.
Continue readingBy Stacie Prada
I created a vision board years ago that included images of women doing yoga poses I couldn’t do. I attended yoga classes weekly, and I loved how it combined calming breathwork with some of the gymnastics, athleticism, and flexibility that my multiple sclerosis issues had curtailed.
I placed the collage vision board near my makeup vanity, and I didn’t put a lot of effort into tracking it. About a year later, I looked up, and I was startled to realize I could do all the poses on my vision board! Without realizing it, I slowly worked my way toward poses that seemed completely out of reach a year prior. Dancer, feathered peacock, and crane pose had become regular movements in my yoga practice without any periodic notice or celebration. With this realization, my glee absolutely overflowed.
Looking back, I think about how dreaming and acknowledging my aspirations, combined with regularly showing up to yoga class, were the key. They helped me achieve things I hadn’t been convinced I would ever do.
Continue readingBy Angel Blair
I always considered myself a planner. I constantly made lists; I carefully thought out decisions, big or small, to get to the most optimal outcome. I loved comparing the pros and cons of possibilities for things to come. Though I have to say since having kids, the planner in me has changed a bit. I still try to plan and prepare the best that I can, but I’ve had to come to the very real fact that plans change – no matter how much you prepare otherwise.
Continue readingBy Doug Ankerman
Time management? When one has multiple sclerosis?
Good one!
That’s like asking if you would rather walk on broken glass…or hot coals?
You see, I HAVE the time. I no longer work and my obligations are few, so time is no prob-lemmo. Management, on the other hand, well that’s where MS fudges things up.
Because despite all my pre-planning, organization and visual run-throughs, I am always behind. Or so it seems.
Always longest in the shower. Pokiest to get dressed. Last to the car.
Trying my darndest, MS is the speedbump I struggle stepping over.
Continue readingBy Stacie Prada
Time is fixed and passes at its own pace. Goals can grow, contract, adjust and evolve.
Often advice for time management includes instructions to make lists, dedicate time for tasks, be organized, get up early, multitask, do more, and just generally be different than you’ve been. While some are good suggestions, the attempt to fit an individual’s unique experience into a fixed and uncontrollable passage of time can miss the mark. It can be overwhelming and unrealistic when not considering a person’s specific life circumstances, obligations and health. When already feeling like there isn’t enough time, the advice to do more can feel offensive.
Time management seems to inherently approach the future from a perspective of scarcity. It is true there is only so much time in the day, the week, the year, and a lifetime. Each moment passes whether we’ve spent it intentionally or not. Even so, I’d rather approach the future with a feeling of abundance. There is limited time, I have limited energy and abilities, and I also have the opportunity to fill that time in ways that fulfill my needs and goals. I can do this by being clear about my immediate and long-term needs as well as my goals in each moment and for my life.
Time management advice recognizes that it can be a project to fit everything in, but it often forgets it can be effort to fill the time. I’ve had both in my life, and at times they’ve paradoxically co-existed. There were fast-paced workdays where dedicated, productive accomplishments never seemed to put a dent in the backlog, and there were evenings with long stretches of solitude where loneliness was at the ready to dominate my head space. The daily schedule of surge and stagnation with such severe contrast was exhausting. That experience is telling for how different needs and goals dictate different choices and solutions.
Continue readingTime stops for no one. We often do not realize how fast the clock is ticking. But soon days turn to months and months to years and valuable time is long gone by. It is important that we use time wisely and set our priorities right. Here are some tips on how to accomplish your work and use time in the most effective way:
Continue readingI think it’s safe to say that this summer, so far, is shaping up to look a lot different than last years. Being in the height of the pandemic and COVID cases still on the rise at that time, the summer was just another period to get through living in a changed world. With individuals having the opportunity to be vaccinated this year, the summer months are being celebrated once again. And hopefully in a safe manner. For some this will mean getting the chance to travel again and thinking about their accessibility needs in doing so.
Traveling can be an exciting and exhilarating experience for those who enjoy it. So, making plans and preparations that will ensure the trip is a great one is an important step. For those living with a disability, having the right accessibility measures in place for travel is imperative. From the planning stages to the endpoint of the journey there are different factors to consider. The destination itself, the mode of transport, accessibility of sites and attractions, and accommodations are all elements significant to the plan. It can sound tedious and like a lot of work but making sure the trip will be safe and enjoyable is the ultimate goal.
For those making travel plans, COVID has unfortunately added another layer to the planning piece this season. Checking with destinations on their COVID policies and procedures and with the mode of transport you plan to take are additional steps now to ensure safety. If able, working with a travel agent for assistance planning your trip can help in this initial phase. For many destinations they have websites for visitors and tourists traveling to their area and offer helpful information and resources online.
If you plan to travel this summer, be sure to consider what your travel and care needs look like. Are you using a mobility device, do you need your accommodations to have specific accessibility features? Would you be traveling with medications and need documentation from your doctor? Are the sites you’re visiting accessible? What about restroom accessibility? Trails, walking paths, street and sidewalk access? Are you heat sensitive with your MS symptoms and need to think of climate? These are just some aspects to think of when making plans for your journey. It can be fun but making sure it’s also safe and accommodating for you is key.
Wishing you a safe and pleasant journey!
Can you believe that it’s already June? Time is flying and we’re heading into the summer season full steam ahead. With the way the weather changes it feels like we hardly get a spring season anymore—winter tends to lead right into summer with the blink of an eye. For some folks this time of year marks a busy travel season-making plans for trips and creating itineraries of activities. For those living with disabilities, the idea of planning a trip can be taxing; making sure travel sites are accessible, packing the appropriate necessities, organizing each route to be taken—it can be exhausting before you even head out the door! But it’s important to know that there are different resources available to help you plan your trip, so hopefully you can enjoy the journey as well as the destination.
The holiday season is fast approaching. This time of year brings lots of great things like family traditions, fun activities, and opportunities to celebrate with friends. Unfortunately, holidays can also be stressful and unpredictable. Dealing with fatigue and managing your MS symptoms can add to your stress if you aren’t careful.
So, here are four tips to help you manage the stresses of the season so you can have happy holidays!
Plan ahead
Planning your holiday schedule of activities in advance can help to reduce anxiety and limit fatigue. Planning ahead will also help you identify the things you really want or need to do and weed out anything unnecessary or unpleasant.
Relax
It is important during the holidays to take time for YOU. Even just a few minutes to relax and recharge can reduce stress levels and help you cope with all of the chaos.
Eat healthy
We all know that holidays bring sweet and savory treats, late nights and unusual schedules. Be sure to stick to a healthy eating plan and reward yourself by having a few treats during the holidays.
Support
If you are feeling lonely or stressed, make sure you have a close friend, family member or someone you trust that you can call on. Maybe attend a local support group or call the MS Friends helpline to talk about how you are feeling. Multiple Sclerosis Friends: 1-866-673-7436
The holidays don’t have to be stressful. Take a step back and organize your schedule for the holidays, and make sure to take time for yourself. By doing so, you can enjoy time with family and friends.