Happy Thanksgiving from MSAA

thanksgiving-ecard-cWishing you and your family a Happy Thanksgiving from all of us here at MSAA!

To send a Thanksgiving eCard to your friends and family, go to support.mymsaa.org/holidayecards.

Please note: MSAA will be closed on Thursday, November 24th and Friday, November 25th.  We will be back in the office on Monday, November 28th.

Happy Thanksgiving!

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Last Chance for Thanksgiving eCard Vote

2016-thanksgiving-ecardsHave you voted yet for your favorite MSAA Thanksgiving eCard?

There’s still time to cast your vote for your favorite holiday greeting! Voting closes on Friday, November 18th at 3:00 pm (Eastern) so make sure you get your vote in at support.mymsaa.org/voteforcard!

Didn’t get a chance to vote?  No problem!  We’ll be announcing the winner the week of Thanksgiving on Facebook and via email.

Be the first to know which Thanksgiving eCard was triumphant by following us on Facebook or signing up for email.

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Gifts From The Heart

My husband loves a good deal. Seriously, he hates paying more than he has to for anything and loves telling everyone how much he saves. He’s in his glory this time of year, scouring the newspaper and internet for low, low prices. On Thanksgiving Day, as I was agonizing (OK, maybe a bit of an exaggeration) over dinner, my husband was checking his e-mail inbox and came across the following.

Grey Friday

Yes, you read that correctly. Thanksgiving Day, a day to be grateful for all we have, is being swallowed up by the spending holiday of Black Friday. I even saw a few companies refer to the week as Black Friday Week! It’s crazy! The way we are going, in 20 or 30 years, we will have lost the original meaning of all of our holidays. All that will be left will be the sales and deals galore. Don’t laugh, it could happen!

With Christmas coming up, that got me thinking. Maybe we should embrace the saying that “It’s the thought that counts”; not the price tag. So, I’ve put together a list of gift ideas that show an added personal touch (and that don’t break the bank).

1. Bake cookies and send along the recipe for future use.
2. Make homemade holiday cards.
3. Give the gift of your time. For example, offer to babysit to give young parents a break.
4. Put together a book of “secret family recipes” and give it to all family members, young and old.
5. Use your talents (such as knitting) to create unique presents.
6. Craft gifts (like wreaths) out of recycled or repurposed materials.
7. Pass along a family heirloom to the next generation.
8. Regift; if you don’t think you’ll use something, give it to someone you know will.

Sometimes, the best gifts are the ones that come from the heart.

Wishing you a Happy and Healthy Holiday Season!!

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Giving Thanks

V2-2015-MSAA_Thanksgiving_Cards5This week many individuals around the country will celebrate Thanksgiving, a national holiday symbolizing the notions of graciousness and appreciation. This holiday and others represent different things to different people and hold varied meanings for all who celebrate them.  But a concept that can be universal and celebrated all year through is that of gratitude. Finding what you’re thankful for, no matter how big or small or different, is a part of this holiday tradition. Expressing your gratitude can help pay it forward and inspire others to do the same, and to hopefully further inspire acts of appreciation and kindness across our society. Celebrating the holiday can simply mean appreciating and reflecting on the words themselves-‘Thanks’ and ‘Giving.’

Please note that MSAA’s offices are closed for the Thanksgiving holiday on Thursday, November 26th and Friday, November 27th.

From all of us here at MSAA, please enjoy a safe and happy Thanksgiving!

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Lasting Holiday Memories

Having just polished off the leftover bird from the table, cranberry sauce and stuffing galore, you may be experiencing a sigh of relief or even a moment of anticipation as further holiday and end-of-year festivities abound.

Whether you had a pleasant or taxing Thanksgiving, you probably are not thinking about what creates a lasting holiday memory, but inevitably as the season progresses you may just think back on past holiday seasons and some of the stand-out moments which are meaningful to you. Over time, sometimes even the mishaps and anxieties which were so troublesome to you at the time may even win out for most re-counted and favored memories.

For example, I’ll never forget the Thanksgiving my dog snatched a turkey leg right off my nephew’s plate (why he had a giant turkey leg, I have no idea). I chased the dog around the dining room and battled for it. When I finally broke his hold on the greasy turkey leg, riotous laughter erupted around the table.  At the moment he stole the food, my thought was, “Oh no, he ruined Thanksgiving,” but the reality was there was plenty of food to go around and everyone delighted in some comic relief. A few years later, and it has become a story we re-count when we talk about all being together and what we are thankful for (which does, in fact, include our dog).

Lasting Holiday Memories

So as the year winds down and you anticipate even more hoopla, remember that even the crazy, wild, and hectic moments can turn into those lasting, laughter-filled, or meaningful moments. Events may not turn out exactly as planned, but the love, support, and laughter of those that surround us and support us are what the holidays are all about.

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Happy Thanksgiving to the MS Community from MSAA!

The votes are in and we have a new MSAA Thanksgiving Card winner! The competition was a close one, but our big winner is…

Happy Thanksgiving

Pumpkin Floral Arrangement!

Coming in a close second place were cards showing a puppy and a kitten, a candle centerpiece, and a festive candy turkey with two small pumpkins. Sadly, our determined and colorful turkey was also defeated, but we’re sure he at least ruffled a few feathers in the process!

We would like to thank the more than 1,200 people who took part in this year’s fun election to select MSAA’s official Thanksgiving Card for 2014! MSAA’s winning online card “Pumpkin Floral Arrangement” is now available for you to select and send electronically to everyone you know. And since the other candidates received many votes as well, MSAA is offering all six cards for you to send!

Send a Thanksgiving eCard

This is a great way to send Thanksgiving greetings, while showing your support of MSAA, a leading resource for the entire MS community, improving lives today through vital services and support. At this time of giving thanks, we also want to express our sincere gratitude to the many individuals who have so generously contributed to support our vital mission.

Please note that MSAA’s offices are closed for the Thanksgiving holiday on Thursday, November 27th and Friday, November 28th. 

From all of us here at MSAA, please enjoy a safe and happy Thanksgiving!

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Planning for a Stress-Free Holiday

With Thanksgiving a little over a week away, many families have already started planning for the holiday season. Who is hosting, who’s making the turkey, and who will be opening their home to holiday guests this season? As if the actual day wasn’t hectic enough, with the shuffling around of foods, the constant chatter, and all of the hugs and kisses; why stress this upcoming week in preparation?

The following tips may help keep this holiday season a little less stressful:

1. Make a plan: Start by listing out each of the tasks that need to be accomplished. Breaking them down into groups can help keep things organized (i.e. cleaning, shopping, cooking).

2. Ask for help: Be prepared to delegate tasks to others. Go through the list and identify tasks that can easily be accomplished by someone else. Family and friends are usually asking, “What can we do or what can we bring?” Use this opportunity to check something off that list.

3. Practice self-care: Take breaks throughout the day; do not push through to finish a check list. Find a good mix of tasks that you enjoy with ones that are less pleasurable; when it comes down to choosing one or the other, always choose the one that makes you happy.

In what ways do you plan for a stress-free holiday?

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2010 – An MS Relapse for the Holidays Part Two – Recovery

By Matt Cavallo

As I sat in an infusion suite chair to treat my holiday relapse, I started to feel really sorry for myself.  I wasn’t sure what I had done to deserve this MS fate. I thought about my young boys and how unfair it was to them that their dad was having another relapse. I thought about the additional burden that this relapse was putting on my wife, having to care for two toddlers on her own.  All this was happening during the holidays, just two months after I had gone through an anterior cervical fusion. To top it off, I was experiencing these uncontrollable emotional outbursts, or PBA as my neurologist called it, which were embarrassing me to the point of not wanting to go out in public.

Then my thoughts changed. I knew at that moment that instead of feeling bad for myself that I was going to have to reach deep down and pull myself together for my wife and kids. My wife is a stay-at- home mom and I am the sole provider, so I knew that if I didn’t get my act together, our quality of life as a family was going to go downhill and fast. I needed a plan.

Steps to Recovery

  1. Be honest – During this relapse, I had convinced myself that it was every factor besides MS. I let the symptoms go on for too long and they were affecting my home and work life. I was going to have to be honest with myself and others about what I was experiencing and that it was related to my MS.
  2. Reduce additional holiday stress – The holidays add stress to an already stressful life. If I had to go food shopping or present shopping, I would go at off hours like late at night to avoid the stress of a crowd. I made lists to prioritize my tasks and would check items off the list. For a list of more ways to reduce holiday stress, check out Angel’s Holiday Hustle Blog.
  3. Gain control – When my emotions began to get the best of me, I would take a break. MS emotional outbursts can come on at any time. A good way to manage emotional outbursts is to remove yourself from the situation, take deep breaths or find a distraction. My favorite distraction is to walk my dog.
  4. Do not take on too much – I have a habit of overdoing. During the 2010 holiday relapse, I learned to enjoy the simple things. Holidays are about spending time with family and friends;try to relax and enjoy that time without overdoing it.
  5. Talk to your doctor – I waited too long to see my doctor. If you are experiencing symptoms, you should contact your doctor as soon as possible.

As the calendar turned to December in 2010, I was feeling like the worst was over. The medicine had run its course. I was feeling back to my normal self. Gone were the emotional outbursts, weakness and fatigue. I was back to normal at work and home life now returned to the joy of watching my boys. I didn’t bother with the stress of trying to compete for deals on Black Friday or hanging Christmas lights from the rafters. Instead, I realized that the true meaning of the holidays was to be there in good spirits for the ones you love. As Thanksgiving 2013 approaches, I am thankful for everyone in my life and continue to enjoy simple stress-free holidays with the ones I love.

Happy Thanksgiving, everyone!!!

References:

https://blog.mymsaa.org/holiday-hustle-and-bustle-tips-for-people-living-with-multiple-sclerosis/

http://www.healthline.com/health-slideshow/pseudobulbar-affect-multiple-sclerosis

*Matt Cavallo was diagnosed with multiple sclerosis in 2005. Matt is an MS blogger, author, patient advocate, and motivational speaker. Matt also has his Master’s degree in Public Health Administration. Matt is the proud father of his two sons, loving husband to his wife, Jocelyn, and best friend to his dog, Teddy. Originally from the Boston suburbs, Matt currently resides in Arizona with his family. To learn more about Matt, please visit him at : http://mattcavallo.com/blog/

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Vote for your Favorite Thanksgiving Card & spread awareness about Multiple Sclerosis

For the third year in a row, MSAA is conducting a Thanksgiving Card Competition! We have six online Thanksgiving Card candidates (shown below), all vying for the top spot as MSAA’s most-popular Thanksgiving Card for 2013.

Vote for your favorite Thanksgiving card

 

 

 

 

 

 

Please vote and then watch to see if your favorite card will emerge victorious! Once the voting is over next week and the selections are tallied, we’ll let everyone know which card is the top choice to email to friends and family, wishing everyone a Happy Thanksgiving!

To vote for your favorite online card design, please visit our Thanksgiving election poll (or go to support.mymsaa.org/voteforcard).

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2010 – An MS Relapse for the Holidays Part One – Relapse

By Matt Cavallo

In November of 2010, I was still recovering from neck surgery. My neck had been a problem since 2005, when Transverse Myelitis made my spine swell up. The swelling pushed my vertebrae and discs out of alignment. Eventually, just the stress of daily activities caused a piece of vertebrae to fracture causing severe stenosis of the spine. My neurologist told me that if I didn’t consider surgery that there was a pretty good chance that I might become quadriplegic.

I worked for a Neuroscience clinic at the time and was friends with the neurologists at the clinic. I had them each independently look at my MRI films. All of them agreed with my neurologist- surgery was inevitable. I had my cervical spinal fusion surgery in early September of 2010.  In order to prepare for the surgery, I had to stop taking my MS medicine.  I was also instructed to stay off my medication after the surgery while my body was recovering.  During my recovery period, I became less concerned with getting back on my medication and continuing treatment. I had hit my breaking point, and I just didn’t feel like fighting anymore.

As the calendar approached Thanksgiving, I started to become symptomatic. I hadn’t been on any MS treatment for ninety days and was noticing increased fatigue and weakness. At the time, I attributed my symptoms to working fulltime while enrolled in a Master’s program along with raising two boys, ages three and one, who weren’t exactly allowing for a full night’s sleep.

While the weakness and fatigue were troubling, I also started experiencing uncontrollable mood swings. I would break into hysterical laughter at inappropriate times and then break down and start crying and become inconsolable. I am not a person who typically shows intense emotion, so these kinds of outbursts were completely out of character for me.

Still, I didn’t think that anything was seriously wrong with me. I thought that the lack of sleep with a teething one-year old coupled with my ongoing recovery from spinal cord surgery was why my emotions wer running rampant. Then I started forgetting tasks at work that I typically would complete automatically. I was also dragging my leg and having problems with vision in my right eye.

During the week of Thanksgiving, the clinic was slow. The nurses had become worried about me. The day before Thanksgiving, we had very few patients and my practice manager called my neurologist and got me an order for an MRI. I was resistant. I attributed my symptoms to the stress that I was experiencing at work and at home, saying that having to prepare Thanksgiving dinner tomorrow was the cherry on top of the cake. Still, she persisted and took me over to radiology at the hospital and got me a follow up appointment with my neurologist the following Monday.

My MRI studies came back with my lesions glowing like lights on a Christmas tree. I was defeated. When was MS going to let up? Now, I had to tell my wife on the day before Thanksgiving that I was having yet another relapse. However, when I talked to her about it, instead of crying, I started to laugh uncontrollably. During Thanksgiving dinner with her family, I was having emotional outbursts and crying about how beautiful the Turkey and potatoes looked. After dinner, Jocelyn talked to me and she wanted me to talk to my neurologist about my emotions, along with my other symptoms.

That following Monday, I found myself in the familiar chair of my neurologist’s office. He confirmed that I was having a relapse. He prescribed three days’ IV Solu-medrol to help with the exacerbation. I told the doctor that I was having these weird emotional outbursts and was concerned that the IV steroids would further complicate my already emotionally unstable state.

He told me that it sounded like I was having something called Pseudobulbar affect or PBA. According to a Healthline article, “Pseudobulbar affect (PBA) is a condition in which you suddenly start to laugh or cry. The reaction isn’t triggered by anything—like a funny joke or sad movie. You just burst into laughter or tears without any real cause, and you can’t stop laughing or crying.” He wanted to stay on course with the treatment because the PBA seemed to be related to my MS relapse, but to call him if I started to feel out of control.

Tune in for my next blog to find out how I was able to recover from my holiday relapse and strategies I used to gain control of my emotions and stress levels.

Reference:

http://www.healthline.com/health-slideshow/pseudobulbar-affect-multiple-sclerosis

*Matt Cavallo was diagnosed with multiple sclerosis in 2005. Matt is an MS blogger, author, patient advocate, and motivational speaker. Matt also has his Master’s degree in Public Health Administration. Matt is the proud father of his two sons, loving husband to his wife, Jocelyn, and best friend to his dog, Teddy. Originally from the Boston suburbs, Matt currently resides in Arizona with his family. To learn more about Matt, please visit him at : http://mattcavallo.com/blog/

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