How I Find Laughter in the Face of MS

By Alene Brennan

Incurable. Degenerative. Chronic. The weight of the words is heavy. The reality of living with them is even heavier. We can easily sink into the quicksand of worries and struggles or… we can find acceptance in this beast of a disease and sprinkle in a heavy dose of laughter.

Laughter is Medicine

We hear it often that laughter is the best medicine, but what actually happens when we laugh? And is laughter strong enough to take on MS? Continue reading

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Flying With One Wing

By Doug Ankerman

For me, traveling with multiple sclerosis (and being in a wheelchair) has never been a problem.

I’ve rolled through airports with every conceivable three-letter combination in the entire alphabet.  And my latest trip to Phoenix (or should I say PHX) would be no exception.

But this trip WOULD be a challenge for two reasons. Continue reading

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Bon Voyage

By Lauren Kovacs

Most of us with MS see travel as a visit to an energy sucking monster.  At least, it is a trip I avoid. Ok, fine, my voyages include a trip to my couch most days. If I am adventurous, I might go to a drive-thru and get ice coffee.

There are handicapped-type plans you can make. When booking a hotel stay, ask for a handicapped accessible room. They generally have more room in the bathrooms and have shower grab bars. Grab bars in the shower are a must. I also found a travel shower chair. Continue reading

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Traveling with Multiple Sclerosis Isn’t Always Easy

By Penelope Conway

Before multiple sclerosis came along I was an avid traveler. At different times I even lived and worked In Germany, France, Mexico and Jamaica. I loved getting out and meeting new people, experiencing different customs and enjoying amazing new food.

When my mobility became a struggle, it was then that I realized just how inaccessible so much of the world truly is, both here in America and abroad. You never really think about those things until they affect you personally. Continue reading

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Top 3 Must-Have Travel Accessories this Summer

By Alene Brennan

Just because you have MS doesn’t mean you can’t have fun in the sun. MS or not, you want to enjoy summer vacations, barbeques and outdoor activities. So how can you achieve this without having the heat triggering or exacerbate your symptoms?

Check out these “accessories” that helped me manage MS during my mission trip to Haiti just one year after my diagnosis. Continue reading

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What do you do when you don’t know what to do?

By Penelope Conway

My life turned into a whirlwind of chaos after I was diagnosed with multiple sclerosis. I was faced with more choices than I knew what to do with. Which medications do I choose? What therapies are needed? What supplements help? What diets work? Is there really a cure? So many questions and so few answers. Continue reading

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Sneaky Alternatives

By Lauren Kovacs

Alternative approaches to MS are pretty personal. Many of us will try just about anything to add to our medication routine. Short of crazy stuff like putting fried eggs on my eyes or sleeping with spiders, I am guilty of trying lots of alternatives.

Some things might help some. I heard massage is great, but it turns me into a sleepy blob. Too relaxed? As if I don’t already fight the fatigue monster 24/7, massages rubs me into a sloth. Not for me. Continue reading

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What’s the Alternative?

By Doug Ankerman

As a twenty-two year member of the MS Club, I have tried more than my share of alternative approaches to treat multiple sclerosis.  From diets to massage to supplements like turmeric and aloe vera gel.  I’ve questioned my dentist about Mercury fillings.  Researched into CCSVI.  With secondary-progressive MS, I found myself grasping at anything and everything to slow the gradual downward slide.

Here are a few others I’ve dabbled with… Continue reading

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Beyond Doctor’s Orders: Considering Complementary and Alternative Treatments for Healing

By Stacie Prada

Living with an illness with no proven cure leads me to treat myself as a guinea pig.  I read about the latest studies and breakthroughs for MS and auto-immune diseases. I seek recommendations from people that are managing their health well.  I compare what I’m doing to the treatment and see if it makes sense for me. If the risk is low and I’m not doing it already, I’ll give it a shot.  It’s a very unscientific approach. But given I’m bumping up against an unknown date when my MS could progress, I’m not willing to wait until all the studies are in when it could be too late for me. Continue reading

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The Underground World of MS: Part 2

By Alene Brennan

How to Navigate the Underground World of MS

Being the invisible disease that it is, multiple sclerosis can make you feel like you’re living in an underground world. So let me lay out a roadmap to help you navigate to better understanding and better health. Continue reading

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