The artistry of words inspires me greatly. The ability to express ideas and emotions critically with nuance and creativity moves me to feel deeply. Add rhythm and melody to the poetry of song lyrics, and it becomes something I can use for managing my well-being.
Music is especially useful for coping with any challenge, because it has the ability to replace the thoughts going through my head. If I can recognize when looping thoughts are taking over my mind and mood, I can change my attitude and outlook with music.
Life is a constant flow of people who come in and out of our lives. I have lost and gained many meaningful people over the years. Multiple sclerosis seems to have helped me in the weeding out process. It did that quicker than anything else I have ever faced. I’m not sure if it’s because of my constant unpredictable days or my need for help just to handle the simplest of things in life, but to the ones who have chosen to stick around, I’m forever grateful.
Someone recently told me that I was an inspiration to them, but I do not feel like an inspiration. This person explained to me that I have a great attitude. They shared that I have an excellent positive disposition despite the numerous adversities that were placed in my path. They do not realize that my life is not pansies and puppies especially when dealing with my MS. These compliments make me think that the definition of inspiration might be nebulous. The following stories tell the tales of those who are inspirational individuals to me. Continue reading →
I have been fortunate to have several influential people through my MS journey. I reflect on them based on the struggle of the moment. Every moment with MS changes. Thus, influence changes.
I look to my mom who was a military wife for years. She carted four small kids all over to globe to meet my dad at his new duty station. I reflect on her when I combat new MS monsters. Fear of the unknown is not going to get me.
As a young child wrapped in my mother’s arms, I’d hear her ask me, “What am I going to do with you?”
I’d answer in tempo with the script we’d created, “Hug me, and kiss me, and love me forever.” She’d squeeze me harder while kissing the top of my head, and I knew she would.
She died suddenly at the age of 47, and she never knew I had multiple sclerosis. This was 15 years before I was diagnosed with MS, yet she’s been a constant companion as I’ve navigated my life in general and the challenges I face living with MS.
Staying organized in life is very important. It is beneficial to keep all of your doodads and doohickeys diligently divided so that you can reach them in an instant. The smart choice is to keep your selection of widgets neatly stacked for your convenience. It is essential to keep your entire calendar of events prominently posted for your perfunctory perusal.
I love being organized. I love containers and labels. I love having my finances organized and being able to find paperwork when needed. It brings me a sense of peace to plan things, be prepared and know what to expect. When everything has a place and is put away, it brings me joy. Living with a chronic illness like multiple sclerosis can be the exact opposite of that. It’s unpredictable, it disrupts plans, it can be invisible, and often it doesn’t have a logical reason behind the symptoms it brings. It can be manageable, but it’s not curable. Unlike my belongings, it can’t be fixed and controlled.