Summer Hostage

By Lauren Kovacs

Let me see, MS has pretty much taken summer hostage for many MSers.  Some things we can in fact re-claim, with modifications.  We have to learn to put our own spin on things.

Plan, plan, plan. You kind of have to go into a situation knowing all your options and the “what if.”  The “Last-minute Lucy” folks won’t like this.  Know your own body.

With three Boy Scouts at home, the moto of “Always Be Prepared” rings true for most MS folks.  Remember the heat is usually not our friend. Summer means heat.  Heat means Continue reading

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Music Gets Me Through: Shaping My Outlook with Intention

By Stacie Prada

The artistry of words inspires me greatly. The ability to express ideas and emotions critically with nuance and creativity moves me to feel deeply. Add rhythm and melody to the poetry of song lyrics, and it becomes something I can use for managing my well-being.

Music is especially useful for coping with any challenge, because it has the ability to replace the thoughts going through my head. If I can recognize when looping thoughts are taking over my mind and mood, I can change my attitude and outlook with music.

Artistry that speaks to me changes Continue reading

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To the most influential people in my life

By Penelope Conway

Influential people in my life by Penelope Conway MS Conversations blogLife is a constant flow of people who come in and out of our lives. I have lost and gained many meaningful people over the years. Multiple sclerosis seems to have helped me in the weeding out process. It did that quicker than anything else I have ever faced. I’m not sure if it’s because of my constant unpredictable days or my need for help just to handle the simplest of things in life, but to the ones who have chosen to stick around, I’m forever grateful.

You are the ones Continue reading

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Individuals Inculcating Inspiration

By Scott Cremeans

Someone recently told me that I was an inspiration to them, but I do not feel like an inspiration. This person explained to me that I have a great attitude. They shared that I have an excellent positive disposition despite the numerous adversities that were placed in my path. They do not realize that my life is not pansies and puppies especially when dealing with my MS. These compliments make me think that the definition of inspiration might be nebulous. The following stories tell the tales of those who are inspirational individuals to me. Continue reading

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Most Influential Who?

By Lauren Kovacs

I have been fortunate to have several influential people through my MS journey. I reflect on them based on the struggle of the moment. Every moment with MS changes. Thus, influence changes.

I look to my mom who was a military wife for years. She carted four small kids all over to globe to meet my dad at his new duty station. I reflect on her when I combat new MS monsters. Fear of the unknown is not going to get me.

I look to a gymnastics coach I once Continue reading

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My Mother’s Lasting Influence

By Stacie Prada

As a young child wrapped in my mother’s arms, I’d hear her ask me, “What am I going to do with you?”

I’d answer in tempo with the script we’d created, “Hug me, and kiss me, and love me forever.” She’d squeeze me harder while kissing the top of my head, and I knew she would.

She died suddenly at the age of 47, and she never knew I had multiple sclerosis. This was 15 years before I was diagnosed with MS, yet she’s been a constant companion as I’ve navigated my life in general and the challenges I face living with MS.

Throughout the past 25 years, Continue reading

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Chaos Cannot Win

By Scott Cremeans

Staying organized in life is very important. It is beneficial to keep all of your doodads and doohickeys diligently divided so that you can reach them in an instant. The smart choice is to keep your selection of widgets neatly stacked for your convenience. It is essential to keep your entire calendar of events prominently posted for your perfunctory perusal.

As a person with multiple sclerosis, Continue reading

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Become a Creature of Habit

By Doug Ankerman

April’s theme of “Staying Organized” draws a collective “yeah right, when pigs fly” from most.

Adding your multiple sclerosis to the mix makes it even more overwhelming.

So, I say let’s break it down into something smaller. Something attainable. And simply become a “creature of habit.”

By that I mean make it a habit of putting your stuff in the same place every day.

Form a new habit - always put your wallet in the same placeHere on the counter is where Continue reading

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Getting Organized and Staying Organized: It’s a Lifesaver When Living with a Chronic Illness

By Stacie Prada

I love being organized. I love containers and labels. I love having my finances organized and being able to find paperwork when needed. It brings me a sense of peace to plan things, be prepared and know what to expect. When everything has a place and is put away, it brings me joy. Living with a chronic illness like multiple sclerosis can be the exact opposite of that. It’s unpredictable, it disrupts plans, it can be invisible, and often it doesn’t have a logical reason behind the symptoms it brings. It can be manageable, but it’s not curable. Unlike my belongings, it can’t be fixed and controlled.

I know not everyone Continue reading

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To be organized or not to be?

By Lauren Kovacs

This is the question.

I used to be super organized. Years ago an older MSer told me that I will learn to conserve energy in my own way. She was right. Being organized can cause energy conservation.

With three sons and a husband, organizing consists of piles. They usually have no idea where something is. When they ask me I say Continue reading

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