My Life with Multiple Sclerosis… I Got This

Life with Multiple Sclerosis...I Got This

By Penelope Conway

No one likes to think about where multiple sclerosis may lead…not even me. But I can tell you from my own experience, ignoring the possibilities of progression is to live in denial and will only set you up for defeat. Trust me, I lived there my first year after diagnosis.

I chose to deny what was happening in my life because I was afraid of the unknown. Continue reading

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Acceptance is a Myth

Accepting multiple sclerosisBy Doug Ankerman

Wearing the sash as one newly diagnosed with multiple sclerosis is an overwhelming experience.

Mind spins. Heart races. Limbs tremble (that being the MS part).

Diagnosis may bring closure to some questions. But now new challenges arise. Continue reading

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What to Expect When You’re Not Expecting…

By Scott Cremeans

As a seventeen-year veteran MSer, I am sometimes asked to advise the newly diagnosed. Sometimes I am the one to welcome the recently initiated into the fraternity or sorority of MSers. Questions get posed to me all of the time typically asking the same queries in different forms. Is MS a death sentence?  No. You have MS, how do you look so good?  Oil of Olay. What now? Live your life.

Then one gentleman’s query put me in a quandary. Continue reading

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Accepting Your Diagnosis – Welcome the Beast?

By Lauren Kovacs

This is a process that is very different for everyone. It is not easy to face the monster. It is often a lonely quest. Questions, nervousness, unknowns, anger and shock tend to be its odor. Stinky.

My story is too long to write. You would get bored. It was so long ago and re-living it does not help me much. It changes and we change with it. Faith, for me, has been my only rock.

It started when I was 16 and involved nine months of Continue reading

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Repeatedly Accepting My Health Condition: It’s Not One and Done

By Stacie Prada

Living with multiple sclerosis, I find I repeatedly need to accept my diagnosis and reality. I have moments where I feel great and totally at ease with my health, life and possible future decline. Other times I have symptoms ramp up, and frustration and fear can leave me rattled.

I’ve been living with my diagnosis ten years, have likely had MS at least another 15, and Continue reading

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An Uncomfortable Hug

The MS hug is a symptom many individuals with multiple sclerosis are all too familiar with. It’s a hug that is not only uncomfortable but also undesired. The MS hug can be described as chest pain, rib pain, or a band of tightness around the chest and/or torso. It can be felt anywhere between the neck and the waist, and might occasionally feel so tight, that the individual experiencing it has pain or difficulty breathing. For many, it can be excruciating, frightening, and resilient. Recently, Continue reading

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Bring it On

By Doug Ankerman

As a MSer, I’m not one for change. Change brings uncertainty, anxiety and undue stress that my tattered nerves don’t need. But this change in season, I welcome.

Welcome the Change in SeasonI LOVE fall. And so does my multiple sclerosis. Cooler temps. Tolerable humidity. And stable barometric pressure that isn’t Continue reading

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My Multiple Sclerosis Life is Filled with Seasons of Change

MS changes

By Penelope Conway

This morning I made an absolute mess of things. I was making my morning coffee, and for the umpteenth time, I spilled the coffee grounds all over the floor and myself because my hands fumbled and wouldn’t cooperate. I cleaned myself up and turned the coffee pot on so it could brew me a cup, but left the mess all over the floor for later.

As I’m writing this, I’m sipping on a freshly brewed cup of coffee while sitting in my bed knowing that there’s a mess in the kitchen waiting for me to tackle, but do you know what? Continue reading

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Life Goals: Checking in When the Seasons Change

By Stacie Prada

When summer turns to fall, a sense of routine and normalcy seems to return to my life. Kids are back in school, my coworkers and I are done with big vacations, and we’re all ready to get back to work. This year it occurred to me to start reflecting on this year and planning for next year earlier than usual. I think this might be Continue reading

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School is in the Air

By Lauren Kovacs

Here it comes! Cooler weather (hopefully) and the munchkins go back to school, as fall arrives. Smell the crispy leaves (or not) and hear the silence. It also means for many of us, no help.

Most of us are masters at adaptation. Embrace the Continue reading

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