Put Change in Your Pocket

By Doug Ankerman

Change is inevitable. It’s a part of life. Change is how we learn, cope and grow. Change excites, directs and motivates.

Me? Hmm, not so much. And for that I blame multiple sclerosis.

You see, pre-MS, I was casual. Nothing shook me up. Change was brushed off like crumbs on a table. But now after a couple Continue reading

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Multiple Sclerosis Changed My Life

Multiple Sclerosis Change

By Penelope Conway

Life changes. It changes things around you and it even changes you…more than you realize. When multiple sclerosis came into my life, it happened quickly. So quickly in fact that I didn’t even have an opportunity to blink before the tsunami hit. There weren’t months or years of unanswered symptoms. I had a healthy body one day and a non-functioning one the next. My diagnosis only took days where, for many, it can be a long and exhausting process.

The initial shock for me was Continue reading

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Living in Uncertainty When the Body Craves Routine

By Alene Brennan

Our bodies – more specifically our brains – are designed to crave routine. The more habits we create in our lives the less we have to think about and the easier it is for us to move throughout our day.

Yet living with a chronic illness can lead to anything but a routine, habit-filled day.

Depending upon how this “snowflake disease” presents itself in your body, each day can bring Continue reading

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My MS Number: We Became Experts at Adapting to Change Before We Knew We Had MS

By Stacie Prada

I’ve started thinking it should be the standard to have our time with multiple sclerosis described with two numbers. It would be similar to blood pressure readings where two numbers have meaning on their own but give a fuller picture of a person’s health when described together. Our time living with MS could be described as the number of years since we were diagnosed over the number of years we estimate we’ve been living with MS.

My MS Number: Adapting with Multiple SclerosisFor me, I was diagnosed Continue reading

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Love the Back-to-School Hate

By Lauren Kovacs

I have a love-hate relationship with back to school. Personally, I hate school supply shopping. I direct from my wheelchair, but I still hate it. It is frustrating and energy sucking.

The high schoolers are fairly easy now. They know what they want and some teachers do have their students get particular things. Mostly, it is hands off; however, I still have one that needs a list. He is also on a year round schedule.

Orchestrating the school supply trips can be no fun, when you have Continue reading

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My life with multiple sclerosis can be filled with chaos. It’s at those times I need to pause and take a break.

Multiple Sclerosis Chaos

By Penelope Conway

Chaos to someone living with multiple sclerosis is different than chaos to a healthy person. Our kind of chaos includes a world of broken nerves hidden deep inside our bodies. The only problem is that there seems to be a sign posted at the entrance to this grand attraction that reads “No admittance to the general public.”

We have no way of showing people Continue reading

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Recreationally resting and leisurely relaxing…

By Scott Cremeans

The idea of relaxation is simply subjective as everyone has their way of finding a happy hiatus. Some people find a benefit in working on tasks that they enjoy, yet others need to stop working altogether to find pure relaxation. Specific individuals need the assistance and support of good friends to find absolute cessation. Countless people require total solitude to attain relaxation, while many desire groups of friends to achieve an immersive intermission.

There is the idea of enjoying Continue reading

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Reaching a New Level of Rest

By Alene Brennan

I used to think I could proudly check off the “rest” category in my healthy lifestyle plan because I slept like a champ.

I would sleep about seven hours every night.

Rest is all about sleep, right?

Then my doctor would ask me what I do during the waking hours to rest… um… hmm… I never thought about that actually.

In my opinion there was always Continue reading

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Sound Advice

By Doug Ankerman

I’m a sound guy. I like to listen (though my wife would disagree). My affinity comes from a long background working in radio. Using words, sound effects and music to evoke emotions – that was my gig. It also helps having ears the size of a satellite dish. And no, I cannot get Direct TV – hardy har har.

Relaxing SoundsSince relaxation is the August theme of MS Conversations, I found it fitting to compile a list of Continue reading

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Strategies to Relax: Kick Back with MS

By Lauren Kovacs

That’s funny, relax with MS. Like being drawn and quartered is relaxing. It is possible, I think, to kick back. We often hear about not relaxing and it’s negative effects. Easier said than done. I know.

For me, I relax by trying several things. First, don’t beat yourself up. MS stinks for us all. Just acknowledge that fact. Distraction is a great way to relax.

I admit to putting myself in a “show-hole” frequently. I fall into those Continue reading

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