Recognizing 10 Years of My MSAA Community

“I am so grateful for this community and the wonderful people here. It has been life-changing for me to have so much support, be able to help others, and to find great resources. Bravo, MSAA!” 

-My MSAA Community member 

This year, the Multiple Sclerosis Association of America (MSAA) is recognizing a very special milestone: the 10th anniversary of our online forum, My MSAA Community!  

Continue reading

Smart and Splendid Summers

As we dive into the bright and sun-filled days of summer, I find myself pondering just how wonderful this season feels in our lives. Probably the best part is the joy of spending time with loved ones and building meaningful connections. While travel is a big part of the season, it is important to plan mindfully—especially when living with MS. Since every individual’s MS journey is different, it is important to plan based on your needs. Make time for rest, listen to your body, and prepare ahead so you can truly cherish the holiday experience. Since travel can also be costly, there are several smart ways to reduce expenses without compromising on the comfort of the holidays.

Continue reading

Summer Plans on a Budget: How I Make the Most of Summer Living with MS

By Nicole Robinson

Summer looks a little different when you are living with multiple sclerosis. The heat, the fatigue, the unpredictability of symptoms – it all factors into how I plan, what I commit to, and how I protect my energy while still enjoying the season. Over the years I have learned that a meaningful summer does not require a big budget or an ambitious itinerary. It requires intention. And a little planning ahead never hurts either.

Continue reading

My Inner Cheerleader

By Stacie Prada

“The reward of a thing well done is having done it.” ~Ralph Waldo Emerson

Sure, Ralph. Sometimes, having something done well is enough. It’s a relief to have it off the to-do list. It’s not nagging at me, and I’m not stressing about doing it anymore. But sometimes I still need acknowledgment for my hard work. A quiet nod or smile to myself in recognition: a star or smiley face drawn in my journal.

A lot of living with multiple sclerosis for me is invisible, and the effort it takes to prevent or delay physical decline is huge.

Continue reading

You Are More Than What You Achieve

Celebrating our accomplishments is wonderful. Getting the promotion, reaching a milestone, and finishing a project are all worth celebrating, but somewhere along the way, many of us learned to connect our self-worth to what we accomplish and what we contribute. Because if worth is earned through achievement alone, it can also seem to disappear through failure, rest, or simply being human.

Continue reading

Letting Go as an Act of Self-Celebration 

There are versions of myself hidden everywhere: in the back of closets, in drawers, in storage bins I’ve never unpacked because some part of me was unwilling to let go. I’ve kept old clothes that no longer feel like me (and certainly don’t feel good on), photos I should have deleted years ago, and gifts tied to people I’ve long since outgrown, held onto out of nostalgia mixed with a fair amount of guilt. 

Overall, I’ve always been someone willing to purge things that no longer suit me, and I’ve done it regularly over the years. But even now, there are still plenty of things sitting around that I know I no longer need and will never use. Things I’ve kept because they belonged to another chapter of my life. Another version of me. 

Continue reading

May is Mental Health Month, but Mental Health Care Never Ends

By Monica Proctor Wilson

During National Mental Health Awareness Month, I reflected on how I first learned about the importance of mental health care. Growing up, I often felt misunderstood emotionally, but I did not know that therapy or emotional support were even options of assistance. In many black communities, especially during the 70’s and 80’s, mental health was heavily stigmatized, so I quietly carried out my struggles alone. Everything changed when I entered college and discovered counseling services on campus. For the first time, I felt understood and realized caring for my mental health was just as important as caring for my physical health. I hid going to therapy from my family until I was in my 30’s because I feared judgment. Today, I openly recognize mental health therapy and emotional wellness as necessary parts of living with multiple sclerosis.

Continue reading