Contribution and Coping – Don’t Stop

There will always be hard days, we simply cannot escape this. Have you ever woken up and felt so fatigued, but knew you had so much to accomplish that day? Or maybe your day was going well, and bam…you’re hit unexpectedly. It’s easy to feel defeated, but what would your day look like if you kept going?

Coping is the ability to deal “successfully” with a challenging situation. The successful part is the grey area. What does that mean to you? To me, successfully dealing with something hard is having a moment of clarity to keep going, even if it’s for a short period until we must cope again. It could also be continuing through our day-to-day while having something in the back of our mind that we are reminded of every so often.

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MS & Acceptance

By: Brittany Quiroz, “A Hot MS”

How do we really come to terms with accepting our new reality with an incurable progressive disability? Right off the bat we probably feel like we have been predisposed to failure. Self-acceptance requires us to really be comfortable with our present situation and let’s face it, there are plenty of parts about living with Multiple Sclerosis that are not considered “comfortable”. MS can present an abundance of changes and unexpected whiplash that we do our best to navigate through. 

The key to sustainable self-acceptance relies on our ability to stay present while not setting unrealistic expectations for ourselves. We can be really good at beating ourselves up, can’t we? It doesn’t help that we live in an era where competition is all around us. Our status in society can easily be determined based on how many likes we get. How many followers we have. What car we drive. What our zip code is. What job we have. It’s easy to feel we’re in constant competition with the world. 

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Infused

By Chernise Joseph

I wanted to do some corny joke like, ‘Yep, that’s me! I bet you’re wondering how I got here,” for the photo from my infusion on Friday, but it seemed a little too double-edged… badumtiss. No? That’s alright, infusion jokes are never funny unless they’re mixed up juuuust right. Ha, okay, in all seriousness – my multiple sclerosis said hello to me on Friday. Well, I suppose it always says hello, but it likes to do it in unique ways sometimes like in the form of an 8-hour infusion. Whew! You read that right. Eight hours of beeping, vitals, tubing, fluorescent lights, too-cold rooms…

I used to hate infusion days. They were long, yes, but they were mostly scary to me. I didn’t know what to expect, nor did I really understand just how important what I was doing was. Of course, I had done as much research as a 23-year-old with a humanities degree could do, but my brain still felt frazzled. What if I spontaneously combust? What if I grow an extra head? What if I’m patient zero for the zombie apocalypse? It was all I could think of going up to the infusion, during it, and even after for a while.

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Stay Connected

Having supportive connections is vital for coping and managing the daily struggles that come with MS. Establishing those connections early can greatly impact your well-being, especially during difficult times in your MS journey. Below are ways to make those connections that will help a great deal in feeling empowered and more confident to cope with challenges:

Connecting with MS support groups

Support groups can be a powerful tool as they can help you not feel lonely while navigating through the different facets of your MS journey. They can equip you with information, knowledge, and support. You can also find friends for life who share similar interests and passions as yourself. Such social networks provide a safe space to interact and learn from other MS warriors through their personal experiences and feedback.

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Competence and Confidence: Navigating Life with Multiple Sclerosis

MS Awareness Month is here and it’s crucial to acknowledge the unique challenges faced by individuals living with MS. From unpredictable symptoms to treatment decisions, individuals with MS navigate a complex landscape filled with uncertainties and obstacles. In light of these challenges, promoting both competence and confidence is essential for managing the condition and maintaining overall well-being.

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Ask the Expert – Mobility

Featuring Barry A. Hendin, MD 

MSAA’s Chief Medical Officer  

Headshot of doctor Barry Hendin, chief medical officer for MSAA
Barry Hendin, MD

Question: What types of exercises are best to help with mobility and walking issues in MS?  

Answer: A number of different exercises can improve and maintain walking and mobility skills along with safety. Many of these exercises can be learned through formal physical therapy or through online programs. They can include exercises focused on range of motion and flexibility. Alternatively, they may focus on strengthening through resistance training. Some exercises are directed toward general cardiovascular health and others focus primarily on balance. Although any of these forms of exercise may be useful, specific exercise for an individual should focus on an individual’s exact needs. 

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We Are More Than Meets the Eye

Multiple sclerosis is often a misunderstood diagnosis. Many people are unaware of the complexities of the disease, and those with an MS diagnosis frequently become advocates, whether they realize it or not. The resilience of those with an MS diagnosis never ceases to amaze me. Not only do they have to learn about the disease and all its intricacies, but they often must educate those around them about it as well. I wish people knew that those with an MS diagnosis are truly courageous, and every journey is unique.

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Lisa Domenic – February 2024 Artist of the Month

MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Lisa Domenic as February’s Artist of the Month. Lisa is from Philadelphia, PA.

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Black Herstory

By Chernise Joseph

For reasons unknown, forcing myself to sit and write lately has become increasingly difficult. The stresses of life coupled with just being sick have made one of my favorite hobbies intimidating to me. How do you write what you cannot see inside your own head?

Anyway, as I sat scrolling through some mind-numbing app, an informative blurb caught my attention. It told the story of Lake Lanier, a formerly thriving African American community in Georgia that was destroyed. That, of course, isn’t a tale new to any of us who have lived in America for any length of time, but it got me thinking about Black History Month or, more importantly, Black Herstory Month.

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Tablero de visión: una herramienta para el desarrollo personal

Enfocarse en el crecimiento personal es a menudo el tema del nuevo año. Implica identificar aquellas áreas de nuestras vidas que nos gustaría mejorar y dedicar tiempo y esfuerzo para que esos cambios ocurran. Invertir en nosotros mismos puede ser un desafío. ¿Cuántos de nosotros hemos establecido una meta solo para perder la motivación a mitad de año? Invertir en nosotros mismos es un esfuerzo continuo y valioso por razones personales y profesionales. Un tablero de visión es una de las herramientas que puedes utilizar para visualizar tus metas y encontrar la motivación para invertir en tu bienestar en 2024.

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