Team MSAA and runDisney Participant Highlight: Ashlei Brown

Four years ago, Ashlei Brown ran her first endurance event as part of Team MSAA. The view was about as good as it could get – EPCOT.

In July, Ashlei shared her struggles with a severe MS flare that she experienced in 2020.

“2020 I was in the biggest episode of my life, hardly able to walk. I was stressed about moving my family across state lines from Florida to Tennessee into unfamiliar territory with no extended family to lean on… in the middle of COVID. My MS is completely under control now, thanks to the amazing people at @VUMChealth.

I think it’s time to run again for @MSassociation

We wanted to hear more about Ashlei’s journey with Team MSAA, and what inspired her to run again at Disney.

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Embracing The Vacation

Travelling with MS can be overwhelming, especially if you are travelling to a new destination. Not knowing where the restrooms are or having a place to relax when your legs give way can cause a lot of anxiety for individuals with MS.  The unpredictability that comes with MS adds to the stress. Although unexpected hiccups can happen to anyone, planning your itinerary ahead of time will eliminate a great deal of anxiety. Below are some tips to keep in mind when you are planning for a vacation:

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How MS Messes with Speech

One frustrating symptom of multiple sclerosis (MS) is the cognitive impact. Those of us with MS often struggle with memory, recall, and speech. When words vanish, we get creative in communicating! 

MultipleSclerosis.net posted the following prompt to the community:

“MS can mess with our word recall and speech function, making remembering the names of people, places, and things difficult. If only there was 1 word for it all. We want to know, what would your word be? Example: ‘Can you please hand me the _____ over there?’ Philadelphia natives might throw the word ‘jawn’ in there!”

There was a lot of engagement with this topic!

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Team MSAA and runDisney Participant Highlight: Tiffany McCahill 

Completing a 10k endurance event last year wasn’t enough for Team MSAA participant Tiffany McCahill. She’s doing it again, but this time raising the bar and taking on the half marathon!  

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Consejos y trucos para las vacaciones en casa: relájese, explore y disfrute cerca de su propio hogar

Las vacaciones en casa o cerca de casa pueden ser agradables y económicas. Aunque a menudo se considera que carecen de aventura o son aburridas, no es así. Las vacaciones en casa pueden ofrecer experiencias únicas llenas de aventura. Unas vacaciones en casa bien planeadas pueden ser prácticas, creativas y ahorrarnos estrés y dinero.

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The AC Staycation

As I’ve mentioned in previous posts, I’m a single mom of two young boys (5 & 6) and we live in St. Augustine, FL. It’s hot here. Really hot. Typically, May through October are well into the 90s, and bouncing from one airconditioned space to another is essential even for my non-MSers brethren. To be fair, I like to escape north to the Blue Ridge Mountains when I can, but that only happens once or twice a summer, so I’ve had to get creative on how to spend all of that indoor time. I’m not great at generalizing how I think you should fill your time, so I’ve decided to list out a few things I’ve found to be highly enjoyable as an artsy nerd mom.

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Lisa Doggett – August 2024 Artist of the Month

MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Lisa Doggett as August’s Artist of the Month. Lisa is from Austin, TX.

“Underwater World”

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Stay Active and Keep Your Cool

As the summer heat continues to rise, staying active can be challenging, especially for those managing a chronic health condition like multiple sclerosis (MS). Personally, this summer has felt particularly hot. While staying active is crucial for our health, how can one exercise and keep moving when all they want to do is stay indoors and lie down in front of the fan? Here are some tips to help you remain active and thrive during the summer months:

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I can. I will. I Did.

Being active is hard. The thought of starting a fitness journey can be nerve-wracking, stressful, and tiring, amongst so many other things. As an individual with an auto immune disorder, staying consistent with a health and fitness regime can feel mentally and physically draining. Having the strength to start a workout and continue when your body constantly feels fatigued and weak is an obstacle like no other. But it is not impossible. As a matter of fact, the more I remain active, the stronger and more capable I feel of pushing my strength to its limits.

The thought of starting a fitness journey, especially in the heat of the summer months, may be daunting. Luckily, there are so many ways to be active while beating the heat – you just have to think creatively!

Here are some fun ideas that may assist you in remaining active this summer:

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To Drive or Not to Drive With MS

Living with multiple sclerosis (MS) changes many things in life. The impact of symptoms on the body makes certain tasks more difficult. For example, driving becomes more challenging as MS progresses. 

We recently asked the MultipleSclerosis.net community, “Has MS altered your driving habits?”

There were many insightful replies about how MS impacts whether and how a person continues driving. Some respondents still drive, and others do not. Here is some of the community’s perspective in their own words.

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