Living with multiple sclerosis often means navigating a lot of unpredictability. While a lot of time is spent focusing on treatments and doctor appointments, there is one massive factor affecting daily life that is completely out of anyone’s control: the weather. From a sudden spike in humidity to the geographic location called home, the environment plays a huge role in how people feel from day to day.
Continue readingBy Stacie Prada
“The reward of a thing well done is having done it.” ~Ralph Waldo Emerson
Sure, Ralph. Sometimes, having something done well is enough. It’s a relief to have it off the to-do list. It’s not nagging at me, and I’m not stressing about doing it anymore. But sometimes I still need acknowledgment for my hard work. A quiet nod or smile to myself in recognition: a star or smiley face drawn in my journal.
A lot of living with multiple sclerosis for me is invisible, and the effort it takes to prevent or delay physical decline is huge.
Continue readingBy Dr. Eva Jackson
Like many people, I was raised to believe that pride and boasting were wrong. As an adult, however, I am learning that recognizing my accomplishments is not the same as bragging. No matter how big or small the achievement is, I am learning to celebrate doing a good job.
For me, being kind and doing good comes naturally, but I am realizing that it is also important to celebrate myself. Sometimes that means simply giving myself credit, patting myself on the back, or treating myself to something special just for being me. I am learning that self-celebration is not about putting myself above anyone else. It is about acknowledging my efforts and my growth and giving myself permission to feel good about the progress I have made.
Continue readingLiving with MS brings many unexpected changes. While much focus is placed on physical symptoms, one of the biggest impacts of MS can be on our social circles. Relationships, marriages, and friendships might undergo a massive shift after a diagnosis, though everyone’s journey looks different.
People from the MS community have shared their raw, realistic, and hopeful experiences regarding how multiple sclerosis has reshaped their connections with others. Their stories show both the potential hardships and the relationship wins of navigating these shifts.
Continue readingMSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Chris Pero as June’s Artist of the Month. Chris is from Portland, OR.
By Nicole Robinson
Living with multiple sclerosis has taught me a lot, especially when it comes to protecting my mental and emotional well-being.
When I was first diagnosed, I didn’t have it all together. There were moments of confusion, frustration, and a lot of questions about what my life would look like moving forward. While I still don’t have all the answers, I’ve learned that small intentional habits can make a big difference in how I show up each day.
Continue readingMSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Bryanna McManus as April’s Artist of the Month. Bryanna is from High Springs, FL.
MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Shana Stern as February’s Artist of the Month. Shana is from Los Angeles, CA.
Feels Like Lightning
Continue readingBy: Dr. Eva Jackson
For the past 15 years, members of my community have routinely organized vision board parties toward the end of the year or at the start of the new year, with an emphasis on goal setting. Personally, I have often felt uncomfortable during this period, as traditional goal setting has never resonated with me. I tend to set ambitious goals but frequently find myself unable to achieve them, despite starting with clear intentions. This recurring pattern leads me to believe that perhaps my goals are often unrealistic.
Continue readingWe often talk about the “summer slide” when the heat wipes us out, but winter is just as complicated for our community. Some of us are celebrating the drop in temperatures, while others are dreading the daily pain. It really shows how different MS can be for everyone. We are all just trying to figure out how to handle the thermostat without losing our minds.
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