We are midway through the year, and what a year 2020 has been so far. We haven’t seen one like it before, and let’s hope the second half of the year brings better things. But each day we are now seeing the world slowly start to open back up. That helps instill hope, I think. Like maybe there’s light at the end of this winding, unpredictable tunnel. And while people are re-entering workplaces, stores are reopening, and beaches are populated again, hopefully safety measures and precautions will help keep people safe. Regardless, it looks like Continue reading
With the COVID-19 pandemic continuing to affect people and places all around the world, many of us are still staying at home and socially distancing from others. This has provided some people with more time they wouldn’t normally have at home. And honestly, a little boredom can come with that too. By staying home we’re doing our part to flatten the curve of the virus, which is great, but maybe just a little different from what we’re used to. So, trying to find Continue reading
Wow, can you believe it’s already May? Time feels like it’s flying by and we’ll be headed into the summer months before you know it! Many people spend time traveling and taking trips during the summertime, usually because kids have off from school and different attractions set-up shop and thrive during these warmer months. But many people aren’t able to travel abroad or from state to state for various reasons at times; so you may have to get a little more creative about how to spend these vacation days.
The word “staycation” is an expression that has increased usage within the past 10 years or so as a way to describe a vacation spent at home—spending time seeing local attractions, participating in activities close to home, or just hanging out in the backyard. What constantly amazes me is how many beautiful and remarkable sights so many people have right in their own cities! The world is filled with many extraordinary attractions and wonders, but sometimes it’s nice to be able to start at home with learning and appreciating what’s nearby. From parks and forests to museums and historical landmarks, there can be new things to explore and experience right near home. Traveling can be great, but a staycation can be just as satisfying. A staycation can also reduce stress because you don’t have to deal with long distance travel and spending excessive amounts of money; it may be more relaxing to just lay low and plan day trips and activities at your own leisure.
If you’re going to commit to a staycation, one of the most important things to do is to unplug. This means that if you are employed, disconnect from your email, and do not go into work just because you’re close to home! If you participate in daily groups or activities that you want to take a break from, this is the time to do just that. If you want to stray from your day to day and do something different, this is your opportunity. It’s tempting to stay connected because you’re not truly ‘away’ on a vacation elsewhere, but it’s still YOUR vacation, and you deserve this time as much as anyone. If you want to make other guidelines for your staycation like not using any electronics at all or not communicating to certain folks, that’s completely up to you! After all, it’s your time to do what you wish, and if your wish is for a restful staycation, then sit back and enjoy it!!
Have you ever had a staycation? What were some things you did to enjoy your time?
As we continue to pass through the summer months and find ourselves looking towards a change of season (hopefully soon!), there’s still some time for fun to be had during the remainder of the summer. At times it can be difficult to try to make plans or schedule activities if the uninvited MS decides to rear its head and join in. But there are some last minute ways to try and enjoy the rest of the season, without having to make elaborate plans that MS will try to outdo.
There are times when heat-excessive summer days call for indoor activities, so why not have a game day/night? Getting back to a time where playing board games and cards was all the rage can be fun and nostalgic, and a good way to find some last minute amusement with friends or family. And keeping with the indoor theme, how about a movie night? Gathering together to watch a good flick, even if coordinated last minute, can be relaxing and entertaining. Orchestrating a last minute trip to the movies or visiting a museum or aquarium can also be some fun activities that may not require excessive planning but an opportunity to enjoy events of the season.
Check with community offices and message boards in your area to find some local events being held during the rest of the summer. Concerts, festivals, shows and exhibitions are just some of the local activities your community may offer that you can take advantage of last minute. Sometimes trying to take part in an activity that’s more spur of the moment and last minute can work to your benefit, especially if it catches MS off guard and doesn’t give it the opportunity to invite itself!
Being halfway through July we can surely say the summer season is in full swing, and for those with MS it’s no secret that the heat and humidity of the season can be a real downer at times. MS heat sensitivity can result in aggravated or worsened MS symptoms and help to contribute to an overall disliking of the summer months. This can be disheartening because many individuals enjoy this time of year, with outdoor activities and events that beckon and get-togethers that warrant much time outside—shame on MS for trying to corrupt this. But there are things that can be done to try and overcome the cruel intentions MS may have during this time of year, and some may already find themselves doing them.
- It might be tricky at times, but when you can, get outdoors when the temperature is more manageable. Going outside earlier or later in the day/night can help you avoid the hotter temps throughout the day.
- When possible, engage in activities that are in cooler/air conditioned places. If you have to be outside, try to take breaks in shaded areas or indoors when you can.
- Wear cooling products like neck wraps or vests that can help to reduce heat sensitivity issues and keep your body temperature down.
- If you’re not in the mood to travel or go out due to the heat, have friends or family come to you for a visit.
- Explain MS and heat sensitivity issues to those close to you so they have an understanding of what you’re experiencing and why there may be some limitations during this time of year.
- Try to stay actively engaged in the activities and events you enjoy during these summer months. Adjusting the timing or setting of your interests or finding new things to participate in can help to combat the heat factors.
There’s a line you can draw with MS when it comes to your likes and interests. If you enjoy the summer season take part in things you’re able to or try new experiences, and let MS sizzle by itself under the summer sun.
The birds, the flowers, the sun and the showers! This season is a rejuvenating time where we can cast off the dusty winter and break out the cool breezes of spring. Over the winter all of our favorite outdoor activities close down in anticipation of cold weather (how rude). Park gates shut earlier, boardwalks are silent and activities in general slow to a standstill. Things take a break for winter and sleep waiting for this time of year to come back round again. Now that spring has started to reappear across the country, it’s a great time to get back out to some of your favorite spots. There are festivals and farmers markets. Concerts and exhibits. Parks reopen and stay open longer as the sunshine stretches well past 5 PM allowing you to explore your city or county well into the evening.
There are events both small and large to be attended and taking a look at your state, county or city website can give you an idea of what activities or happenings are going on in your neck of the woods. You may find a new concert series you didn’t know was happening, an art or food festival near by or something new your town is trying out for the first time. Here in Philadelphia we are gearing up to host our first ever Chinese Lantern Festival at the end of the month. In DC the cherry blossoms are all the rage while in Texas the rodeo is kicking up. Seattle is getting expressive with their art festivals and the Wisconsin Film Festival starts at the end of the week.
This spring make yourself a promise to get out and explore one new activity your area offers, you may be surprised by what you find!
Boy oh boy, what a winter we’ve had this year! There wasn’t a part of the country that didn’t experience some effect of this peculiar and extraordinary season – whether it was ice, snow, freezing rain or just downright frigid temperatures, we’ve all had a taste of the season! I think at this point spring will be a welcomed phase of the year – even though that means some sweltering summer temps are right behind it. But until then, why not take advantage of the weather change (whenever it does occur), and do some things to enjoy the season?
Spring is a great time to get back outdoors after winter’s hibernation; no matter what type of activity, just breathing in some fresh outdoor air can awaken the senses. Traveling, gardening, walking, exercising, riding or sitting outside are all ventures that can be explored during this period. Spring is a good time to clean things out and get organized – to throw away the old and make room for the new in order to help you keep track of what’s needed.
Explore opportunities within your community – there may be different events and activities occurring during spring that you can participate in. It may also help to talk with your doctor about different activities you can do to help with any MS symptom management issues or finding a task that is appropriate for your needs. Every individual has their own preferences and favorite things they enjoy, so the arrival of spring provides a chance to do something new and start the season with novel hope and promise.
What will you do this spring?
So it’s getting warmer, the sun is out a bit longer in the evenings, and the school kiddies are getting that familiar itch that the school year is coming to a close. Summer is almost officially here! But what is there to do during those long summer days and nights? Let’s be creative. Think outside the box for activities that could be carried out during this time. Too hot to go outdoors? Why not try a museum, the movies, the mall or some other cool, indoor event? Summer travel can be a challenge when it’s too warm, so how about carrying a cool snack with you, like fruit for a little pick-me-up, or wearing lighter layers of clothing to be more comfortable when traveling. Summer nights can be a little cooler than the days, so gardening, attending a sporting event, reading outside or taking a walk during these cooler times can be refreshing. It can be fun just taking a look at the activities going on in your neighborhood; different community events and occasions may also mark these summer days. Take a look at your local church calendar or the community posting board at your local grocery store to get an idea of local events.
No matter the activity, just remember to enjoy the times shared with friends and family, and do what’s fun for you!
When planning a summer vacation (or any trip for that matter) a great deal of detail is required to figure out the best place to stay, the quickest and easiest way to travel, and what activities you want to do. The list goes on and on.
When you also need to plan for accessibility or special accommodations, it adds extra steps to the traveling process. Sometimes you may even want to throw in the towel if planning the vacation becomes so hectic or frustrating that it causes increased stress or anxiety.
Depending upon your needs, creating a plan of action or checklist of sorts may be a good first step in alleviating frustrations. Here are a few ideas to get you started on your list:
1) What places might be fun to visit/where do I want to go?
2) How much do I have budgeted to spend?
3) Will I need to fly, drive, or take a train/ bus (and what are the benefits and challenges for me getting on a plane, bus, etc.)?
4) Do I want to go as part of a guided tour with a set itinerary and is there an accessible travel option?
5) Where will I stay, and do I need to call ahead to confirm accessible accommodations?
Once you begin to narrow down your choices of budget, location, and means of travel, you can then begin to focus on planning for specific accommodations (picking the seat closest to the bathroom or coordinating with your flight attendant to offer wheelchair assistance) and the fun activities you want to participate in on your trip.
Wherever you go, even if it is a day trip, try to have some fun this summer!
I am not nor have I even been a “gym rat.” The one year in school I did a sport I picked track. Each person had to pick three events. I picked discus, hurdle jumping, and the long jump. Most of my time was spent lounging on the grass with my friends while we talked and let the real runners go around the track (you could only throw discus or do hurdles when the areas were set up).
Nowadays when I read fitness articles about people running marathons or races I am glad for the people involved and happy to hear about them meeting their own goals and objectives. But I know I am no runner and never will be. In fact, running causes me exercise induced headaches.
But here is the important thing, after trying many activities over the years I don’t let the gym intimidate me anymore. While there are things I know I don’t want to do or that don’t make me feel good (i.e. running) I have also found activities which make me feel strong, and competent, and healthy.
Yes, my arms might be the equivalent of small twigs, but put me on the rowing machine and I am a goddess. For 20 minutes on the rowing machine I can glide back and forth and feel l that I am powerful and going somewhere with my fitness.
I have also learned not to let other people’s perceptions impact my choices. For a tiny person I also enjoy lifting. Yes I might max out at lifting 30 lbs., but 30 lbs. for me is really good. I’m not trying to be a body builder, just improve my own health and wellness, so I’m not going to care if I’m the only woman on the lifting machines or that my weight limits are low.
Finding a fitness activity or plan that works for you is the most important thing in maintaining a plan, and by choosing something that makes you feel strong and powerful and energized you have a built-in incentive to keep going back.
What activities motivate you?