Hidden and Invisible Problems with Multiple Sclerosis

Explaining Hidden and Invisible Symptoms of Multiple Sclerosis

By Penelope Conway

How do you explain the hidden and invisible problems with multiple sclerosis?

Every week when the nurse comes to my house I’m always asked the same questions. Am I experiencing any pain? What kind of pain? How does it feel? How’s my appetite? Bowel movements? Swallowing troubles? Breathing? It takes the entire visit to explain everything. Pain shifts moment by moment from Continue reading

Share Button

Summer: Once My Favorite Time of Year, But Not So Much Anymore

Summer with Multiple Sclerosis

By Penelope Conway

What can I say? Summertime is hot, muggy, sweltering, and sweaty. It used to be my favorite time of year for concerts in the park, trips to Six Flags to enjoy water rides and death defying trams that sent you into another universe altogether, cookouts, vacations, open windows with cool breezes blowing, family time, and relaxing by the pool. Continue reading

Share Button

I Don’t Have Problems Keeping Busy, I Have Problems Staying Focused

Staying Focused

By Penelope Conway

I don’t seem to have problems keeping busy. There is always something that needs to get done around the house. It’s trying to find the energy to get things done that seems to hinder me. Having physical therapy, occupational therapy, and speech therapy appointments each week at home has this way of Continue reading

Share Button

Keeping Positive in Challenging Times

Keeping Positive in Challenging TimesHope is made for the day that tries your understanding, when your blessings can’t be counted and the sky has changed to darkness.

By Penelope Conway

Living with multiple sclerosis can be challenging. Add the required social distancing and it can make life a bit more complicated and interesting. My groceries are now delivered to my front door making it a bit more challenging to put everything away on my own, my doctors appointments are taking place on the phone keeping me on my toes to remember everything we need to talk about, physical therapy is Continue reading

Share Button

A Life with Multiple Sclerosis Has Taught Me the Importance of Letting Go of Yesterday

Life with multiple sclerosis means letting go.

By Penelope Conway

I have a problem with expecting too much from myself which in turn hurts me more than helps. This year I have made it my purpose to evaluate my life and simplify everything I’m doing as much as I can. Is that even possible? There are things I want to do, things I need to do, and things I need to let go of. Multiple sclerosis has definitely changed my perspective about everything in life.

Some of the top priorities for me are Continue reading

Share Button

Multiple Sclerosis Changed My Life

Multiple Sclerosis Change

By Penelope Conway

Life changes. It changes things around you and it even changes you…more than you realize. When multiple sclerosis came into my life, it happened quickly. So quickly in fact that I didn’t even have an opportunity to blink before the tsunami hit. There weren’t months or years of unanswered symptoms. I had a healthy body one day and a non-functioning one the next. My diagnosis only took days where, for many, it can be a long and exhausting process.

The initial shock for me was Continue reading

Share Button

My life with multiple sclerosis can be filled with chaos. It’s at those times I need to pause and take a break.

Multiple Sclerosis Chaos

By Penelope Conway

Chaos to someone living with multiple sclerosis is different than chaos to a healthy person. Our kind of chaos includes a world of broken nerves hidden deep inside our bodies. The only problem is that there seems to be a sign posted at the entrance to this grand attraction that reads “No admittance to the general public.”

We have no way of showing people Continue reading

Share Button

It’s crazy getting exhausted just going to the mailbox

Mailbox during the summer heat - Penelope ConwayBy Penelope Conway

Summer used to be my favorite time of year. A time to spend in the sun, taking a trip to the beach, going fishing at the local fishing hole, spending time swimming at the lake, enjoying concerts in the park, and so many other activities that just pop up and sound fun to do. For me, those things are no longer something I look forward to being a part of. My summer has become one more of staying inside with the air conditioner blasting and me hoping for cool days to come soon.

My multiple sclerosis body has a Continue reading

Share Button

To the most influential people in my life

By Penelope Conway

Influential people in my life by Penelope Conway MS Conversations blogLife is a constant flow of people who come in and out of our lives. I have lost and gained many meaningful people over the years. Multiple sclerosis seems to have helped me in the weeding out process. It did that quicker than anything else I have ever faced. I’m not sure if it’s because of my constant unpredictable days or my need for help just to handle the simplest of things in life, but to the ones who have chosen to stick around, I’m forever grateful.

You are the ones Continue reading

Share Button

When You Get Diagnosed with Multiple Sclerosis So Does Everyone Close to You

How MS Affects Friendships

By Penelope Conway

I woke up this morning thinking about the past five years of my life. I get discouraged sometimes thinking about everything that has happened. I have days when I feel as if multiple sclerosis has flipped my world upside down and inside out. That my life, plans, dreams, and hopes have all changed more than I ever thought possible and I wasn’t prepared for the changes.

Many people go through life wishing they lived a life much like a scene from a movie where everything falls perfectly into place. Where they have Continue reading

Share Button