About MSAA

As a national nonprofit organization, the Multiple Sclerosis Association of America is a leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a toll-free Helpline; award-winning publications including a magazine, The Motivator; website featuring educational videos and research updates; S.E.A.R.C.H.™ program to assist the MS community with learning about different treatment choices; a mobile phone app, My MS Manager™; a resource database, My MS Resource Locator; equipment distribution ranging from grab bars to wheelchairs; cooling accessories for heat-sensitive individuals; educational events and activities; MRI funding and insurance advocacy; and more. For additional information, please visit http://www.mymsaa.org or call (800) 532-7667.

Staying Organized with Medicine

By Alene Brennan

Medicine, vitamins and supplements are crucial components to Continue reading

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Surrounding Yourself

By Doug Ankerman

Okay, I hear you saying “you got this”… “no problem”… or the hackneyed, overused phrase “I have MS but it doesn’t have me.”

Yeah, I hear you tough guy/tough gal.

I hear you because I used to say the same. When I was diagnosed back in 1996, I thought MS didn’t know what it was messing with. I didn’t need any help. Didn’t need advice. Didn’t need to talk about it and burden someone else with my belly-aching. Continue reading

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Loved One in Denial?

By Jarely Meza

Some of us have been in the situation where a loved one has experienced a health problem, a sickness, addiction, or recent medical diagnosis and they are too stubborn or proud to admit this, let alone ask for help. As care partners we feel that it is our responsibility to push them to get help – to remind them about setting up an appointment, or to even try and convince them to go see someone about their situation.

Often someone who may be in denial will Continue reading

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The People Who Surround Me: Those I Keep and Seek

By Stacie Prada

As I age, I’m getting more intentional about who I spend time with and how I shape interactions. We can’t always completely avoid people who drain us, but we can shift how we approach our interactions. We can’t always spend enough time with the people we love, but we can shape our relationships to maximize our joy and connection. A lot of our daily lives involve acquaintances who with a small amount of attention can become friends. Our friends and family won’t always have the skills or perspective to meet our needs, but we can find circles of friends who will fill the gaps.

People who drain me: If I can Continue reading

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Who do you surround yourself with?

By Lauren Kovacs

It is tough when dealing with MS. You don’t want to be the burden and the boil on someone’s bum. But, you also don’t want to seem stubborn in not asking for help. The winds of MS are blowing at each other. I get it.

Sadly we have to buffer the winds. Bad hair days from those winds are common. Keeping calm in the wind storm is hard. MS is a strong contender. Being calm can help avoid a flare.

Not easy to please others by asking for help, keeping your Continue reading

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When You Get Diagnosed with Multiple Sclerosis So Does Everyone Close to You

How MS Affects Friendships

By Penelope Conway

I woke up this morning thinking about the past five years of my life. I get discouraged sometimes thinking about everything that has happened. I have days when I feel as if multiple sclerosis has flipped my world upside down and inside out. That my life, plans, dreams, and hopes have all changed more than I ever thought possible and I wasn’t prepared for the changes.

Many people go through life wishing they lived a life much like a scene from a movie where everything falls perfectly into place. Where they have Continue reading

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Sometimes I Feel Guilty for Having MS

By Alene Brennan

Living with a chronic illness is not easy. Living with an invisible disease is not easy. Living with an unpredictable disease is not easy.

Living with MS is hard.

To add insult to injury, I sometimes feel guilty for the extra burden it places on my family and friends.

After my diagnosis I felt like I lost the certainty I believed I had over my health. Of course, none of us has a guarantee with health, but an MS diagnosis definitely Continue reading

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Redefining Caregiver to Care Partner

Redefining Caregiver to Care PartnerIn recent years, MSAA and other organizations have adopted the term care partner vs. caregiver to help reflect the grown team approach people use to understand and navigate life with MS. Join us, as we present:

“The Partnership of Care: Redefining Caregiver to Care Partner”
Monday, March 18, 2019
8:00 pm (Eastern)

From helping someone newly diagnosed learn about treatment decisions, to making Continue reading

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Load Your Quiver

By Scott Cremeans

A friend told me one time that life is war. It is a battle between good and evil a fight between right and wrong. If that is the case, then multiple sclerosis is a beefed-up war on steroids AKA Solu-Medrol. This situation means that you should not go into battle with just anyone by your side.

You should load your ranks with individuals who will Continue reading

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Bean Fairbanks – March 2019 Artist of the Month

Each year, MSAA features the work of artists affected by multiple sclerosis in the annual MS Ability and Four Seasons Art Showcases, including highlighting one artist each month as our Artist of the Month. This month, we are proud to feature Bean Fairbanks of Seattle, WA:

Bean Fairbanks - Into the Deep

“Into the Deep”

About the Artist Continue reading

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