Life Beyond the Relapse: Real Stories of Living with SPMS

Posted on May 11, 2026 by MultipleSclerosis.net

If you are living with secondary progressive multiple sclerosis (SPMS), you know that life feels different from how it used to be. For years, you might have lived in the RRMS world, waiting for an attack, treating it, and mostly bouncing back. But SPMS changes the rules. It’s less about the sudden storms and more about a slow, steady tide.

We looked at stories and forum posts from people walking this same path. Here is what they say life with SPMS is really like, in their own words.

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Bittersweet Advocacy

Posted on March 27, 2026 by MSAA

By Stacie Prada

I’m proud to advocate on behalf of multiple sclerosis issues, and I aim to normalize discussing human health experiences without shame. If we live long enough, almost all of us will experience big health issues, and learning from others is a huge help for navigating them.

I’ve participated in Bike MS, Meat Fight, Walk MS, and self-help group leadership. I write openly about my MS experience, I contribute regularly to MSAA’s blog MS Conversations, and I let my community, colleagues, and legislators know that I have MS. I’m happy to answer questions and have spoken to newly diagnosed people and family members quite a few times over the years. If I’m the only person they know with MS and they would like to chat, I’m there for them. They’ll have a unique MS experience, and I want to support them in their journey. I’m eager to encourage kinship, help where I can, and remove any cloak of shame regarding health issues.

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Connection and Compassion: My MS Journey

Posted on February 23, 2026 by MSAA

By Dr. Eva Jackson

Seeking Answers and Facing Uncertainty

For many years, my health declined, and I found myself searching desperately for answers. I reached out to my healthcare team, at times pleading for their help to uncover what was causing my condition to worsen. Initially, I was diagnosed with dystonia, not multiple sclerosis (MS). As I sought second opinions, it became clear to me that many people struggle to advocate for themselves within the healthcare system. I also realized that healthcare professionals may feel threatened when patients seek external advice or opinions.

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Intention & Expectations

Posted on February 20, 2026 by MSAA

By Stacie Prada

Lately, I’ve been pausing periodically throughout each day to ask myself, “How do I want to show up today?”

It only takes a moment, just enough time for a brief inhale and exhale. It allows me to shake loose whatever thoughts are running through my mind and start fresh. I like to imagine I’m shaking a marked-up Etch-A-Sketch toy to create a clean surface ready for whatever I want to draw.

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Self-Connection

Posted on February 18, 2026 by MSAA

By Angel Blair

When we hear the word relationships we often think about the connections we have to others. Bonds with our family, friends, significant others, etc. So we tend to forget one of the most important but commonly overlooked relationships we have, and that’s the one we hold with ourselves. We work hard to maintain and foster the relationships that we have with other people in our lives, but the relationship we have with ourselves deserves the same attention and compassion. This is a concept that can get lost in the shuffle of juggling life’s demands, but it has earned the right to be found.

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Reset and Focus

Posted on September 10, 2025 by MSAA

By Samuel Fitch

When we think of the word reset, we often picture restarting a computer or a phone. Most problems on a device can be fixed with a simple restart. But when it comes to us—our physical, human selves—we don’t have that option. We can’t just shut down and start over.

What we can do, however, is reset.

Sometimes that means taking a few moments to clear your mind, breathe with intention, and refocus on the task at hand.

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