By Nicole Robinson
Living with multiple sclerosis has changed the way I look at a lot of things, especially what it means to celebrate myself.
For a long time, I didn’t think of myself as someone who needed to be celebrated. I associated celebration with big milestones, big wins, or moments that everyone could see. But living with a chronic illness has taught me that some of the most meaningful victories are the ones no one else sees.
Continue readingBy Dr. Eva Jackson
One of the most meaningful quotes I have read this year is, “Nothing amazing happens inside our comfort zone.” When you first hear that tests confirm a diagnosis of multiple sclerosis, your reaction may be shock, confusion, or disbelief. These are normal responses to news that can change the course of your life.
Over the past few years, I have spoken with many other MS warriors about the day they were diagnosed. Those diagnosed early often describe the experience differently from those diagnosed in later stages. I am among those who received a late diagnosis. Looking back, I realize my emotions followed a pattern similar to Elisabeth Kübler-Ross’s 1969 theory, the “Five Stages of Grief.” While the experience of living with MS is distinct, it often echoes a comparable emotional journey. I describe that journey as the 6 C’s of Mental Toughness and Resilience.
The 6 C’s are Coping, Courage, Care, Connection, Community, and Compassion. Here is a brief look at each stage.
Coping – This stage often carries you through the emotions commonly associated with grief, from denial and anger to eventual acceptance. For some, this process may be brief; for others, it may take much longer. I spent much of this stage feeling angry after investing significant time, money, and energy searching for answers. Even so, I remain grateful for the care team that helped guide me through the process and supported me along the way.
Courage – For many people, asking for help requires real courage. Using an assistive device or relying on others for support can also be difficult steps to take. Courage means weighing the risks and choosing what best protects your health and safety. As difficult as it may feel, using a walker, cane, or scooter can be a powerful act of strength rather than a sign of weakness.
Care – MS requires ongoing care and consistent attention. Keeping a health journal can help you prepare for appointments and communicate more effectively with your care team. Because many people with MS experience cognitive and memory challenges, having written notes can be especially valuable.
Connection – Connection reflects the relationships you maintain with family and friends. Strong, genuine bonds can make a meaningful difference throughout this journey. Support from the people closest to you can provide both stability and encouragement when you need it most.
Community – If you have not joined a support group, I strongly encourage you to consider it. Your MS community can offer meaningful relationships, practical resources, and a sense of belonging. No one should have to navigate this journey alone.
Compassion – The final stage of mental toughness and resilience is developing the compassion, knowledge, and clarity to support someone else living with MS. At this stage, your experience can become a source of strength and encouragement for others.
As an MS warrior, I hope everyone can move through these stages of mental toughness and resilience with strength, confidence, and hope.
About Dr. Eva Jackon:
Hello. My name is Dr. Eva Jackson, and I am currently a guest blogger for MSAA. I completed a Doctorate in Management, Organizational Development and Change at Colorado Technical University in Denver, Colorado. My academic background also includes a Master of Science in Leadership and a Bachelor of Art in Social Services from Belhaven College in Jackson, Mississippi. I have previously co-owned an event planning, catering, and decorating business called NikLiz Designs with my husband of 31 years Tim Jackson. After being diagnosed with MS, my career path changed, but I continue to provide management consulting services. In addition, I participate in crafting activities and volunteer as a Peer Connections Leader and an MS activist for the National MS Society.
By Samuel Fitch
When people hear the phrase “mental health,” they often think of major life changes, complicated routines, or dramatic breakthroughs. My experience has been much simpler.
For me, strong mental health is often built through small habits repeated consistently; habits that help me stay grounded before the demands of the day begin competing for my attention.
Living with multiple sclerosis has taught me how quickly your mind can drift if you’re not intentional. Some days bring fatigue. Other days bring stiffness or frustration. And if I’m not careful, my mind can start running toward questions about the future that don’t have answers yet.
Continue readingBy Nicole Robinson
Living with multiple sclerosis has taught me a lot, especially when it comes to protecting my mental and emotional well-being.
When I was first diagnosed, I didn’t have it all together. There were moments of confusion, frustration, and a lot of questions about what my life would look like moving forward. While I still don’t have all the answers, I’ve learned that small intentional habits can make a big difference in how I show up each day.
Continue readingBy Dr. Eva Jackson
Holistic wellness plays a critical role in improving the quality of life for individuals affected by multiple sclerosis (MS). This approach, recognized and studied by numerous organizations, focuses on treating the whole person rather than addressing symptoms in isolation.
When I was first introduced to life with MS, my care team did not clearly explain the importance of whole-person care. Yet, despite this lack of explanation, that is exactly the model they implemented. Soon after my diagnosis, a comprehensive and coordinated plan was developed to manage my symptoms. My care team included a neuro-ophthalmologist, urologist, MS specialist, sleep medicine specialist, and a physical therapist specializing in multiple sclerosis. At the time, this fast-paced, multidisciplinary approach felt overwhelming. In retrospect, I deeply appreciate how effectively each provider worked together. This coordinated care exemplifies the essence of holistic wellness and addressing physical, emotional, and functional needs simultaneously.
Continue readingBy Stacie Prada
Last year, my naturopath suggested I take deep breaths each day, and I agreed it would be good for me. I approached it like a prescription and made sure to do it. I followed guided meditations, and they were fine. I’d set a timer and count deep breaths in and out to meet the goal. It seemed good for me, but I didn’t love it or look forward to it.
Then I had an “aha moment.” I’ve long wanted to improve my singing, and I realized I could make progress with singing AND practice breathwork in a way I’d enjoy.
My inspiration was a music app. It would allow me to do breathwork and improve my musical knowledge and skills. Most importantly, it could be fun. I’ve now been doing singing lessons for a few minutes each day for 22 weeks. Because I want to keep my streak, I make sure I do it every day. I love that it’s a bite-sized daily commitment, and it’s doable.
Continue readingBy Angel Blair
When it comes to wellness and how we take care of our minds and bodies, there’s definitely some leeway as to what works for each person and what type of wellness is being referred to. If we’re being honest, I was never a big fan of physical exercise and fitness for myself. Not that I don’t think it’s important, because it truly is. I just never had enough drive or motivation to stick to a particular exercise regimen. I don’t take physical wellness for granted or disregard it in any way. It just took me some time to realize that physical wellness is merely one cog that makes up the wellness machine.
Mental and emotional wellness are two other vital pieces in the realm, and I found that these are the ones I can get on board with. Without knowledge of it, I was fostering these facets of wellness with things that I do in my day-to-day. And they’re things that I enjoy, go figure! They may not be obvious examples of wellness but that’s the great part about this theory. It can look so different and represent various things to people. There’s no “right” way to achieve wellness goals. What matters is that they support your body’s needs and promote good health.
I’ve always enjoyed writing, ever since I was young. It helps me to process things and allows me a space to be creative and honest. I also love to read. This activity provides a quiet restfulness and a chance to slow things down. The other surprising endeavor that I found nurtures my personal wellness is cleaning. I know, it sounds odd and a bit atypical compared to other wellness activities. But there’s something familiar and relaxing about it. I like the feeling of accomplishment it provides, and it also lets me jam out to my favorite music.
Maybe these activities wouldn’t work for you, or maybe they would. You may already have certain routines or tasks that bring you joy, positive physical effects, or a sense of purpose and accomplishment. But you may not have realized that these satisfying ventures are concurrently supporting your personal wellness too. Perhaps because you thought wellness had to look a certain way. What a pleasant surprise!
My name is Angel Blair, I am a mom to beautiful twin girls and hold degrees in counseling from schools outside of the Philadelphia area. I’ve worked with the MS community in the past, and am grateful for the opportunities I’ve had in helping others. I enjoy spending time with my family, writing, reading, and traveling.
For the average person, catching a cold is a minor inconvenience—a few days of tissues and cough syrup before bouncing back to work. But for those of us living with multiple sclerosis (MS), the narrative is often drastically different. We know that a “simple” bug can feel like a seismic event. As one community member vividly shared, “mundane ailments can knock us down for the count.” What might be a fleeting annoyance for our friends and family can hit us with the force of a freight train, leaving us drained and vulnerable.
Continue readingBy Stacie Prada
I created a vision board years ago that included images of women doing yoga poses I couldn’t do. I attended yoga classes weekly, and I loved how it combined calming breathwork with some of the gymnastics, athleticism, and flexibility that my multiple sclerosis issues had curtailed.
I placed the collage vision board near my makeup vanity, and I didn’t put a lot of effort into tracking it. About a year later, I looked up, and I was startled to realize I could do all the poses on my vision board! Without realizing it, I slowly worked my way toward poses that seemed completely out of reach a year prior. Dancer, feathered peacock, and crane pose had become regular movements in my yoga practice without any periodic notice or celebration. With this realization, my glee absolutely overflowed.
Looking back, I think about how dreaming and acknowledging my aspirations, combined with regularly showing up to yoga class, were the key. They helped me achieve things I hadn’t been convinced I would ever do.
Continue readingBy Angel Blair
I always considered myself a planner. I constantly made lists; I carefully thought out decisions, big or small, to get to the most optimal outcome. I loved comparing the pros and cons of possibilities for things to come. Though I have to say since having kids, the planner in me has changed a bit. I still try to plan and prepare the best that I can, but I’ve had to come to the very real fact that plans change – no matter how much you prepare otherwise.
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