While summer heat can be exhausting for anyone, individuals with multiple sclerosis (MS) often face added challenges due to heat intolerance and fatigue. Heat sensitivity, also known as Uhthoff’s Phenomenon, refers to a temporary worsening of MS symptoms caused by overheating. Fortunately, there are proactive steps we can take to support our health and well-being while still enjoying all that summer has to offer.

For those living with MS, heat intolerance and fatigue can significantly impact daily activities. Something as simple as sitting in a warm car without air conditioning or spending just a few minutes in the sun can quickly drain energy levels. But with a little planning and self-awareness, it’s possible to make the most of summer while staying safe and comfortable.

Conserving energy is especially important during warmer months. Those with MS are encouraged to take extra steps to manage their energy so they can still participate in outdoor activities, go on that long-awaited vacation, or simply enjoy life to the fullest. Here are some practical strategies to help you conserve energy and make the most of summer:

• Plan Ahead: Avoid peak sun hours by scheduling activities in the morning or late afternoon. Don’t hesitate to talk with your loved ones about adjusting plans. Running errands during cooler times of the day and keeping a fatigue or heat journal can also help identify which activities impact your energy the most, allowing you to plan accordingly.
• Prioritize and Pace Yourself: Budget your energy throughout the day. Everyday tasks, such as brushing your teeth, cooking, or showering, can be done while seated to reduce exertion. If walking or being in the sun is particularly draining, consider using adaptive equipment, take breaks in shaded areas, and alternate activity with rest.
• Stay Hydrated and Nourished: Keep cool water on hand and eat hydrating foods like fruits and salads. Try to limit caffeine during the hottest parts of the day. You might also consider using mobile apps to set hydration reminders or track your intake.
• Listen to Your Body: Pay attention to early signs of fatigue or heat stress, such as dizziness, rapid heartbeat, or muscle cramps. Taking breaks and resting when needed is not a weakness; it is a vital part of self-care. Let your family or friends know when you need to pause with simple statements like, “I need a break,” or “I’m feeling overheated.” Respecting your body’s limits helps create a more enjoyable and sustainable experience.

Summer may bring unique challenges, but it also offers opportunities for joy and connection. The goal isn’t to withdraw; it’s to adapt. By planning ahead, practicing self-compassion, and prioritizing your health, you can embrace the season with confidence.

For additional support in understanding and managing fatigue and heat sensitivity with MS, explore these helpful resources from MSAA: Fatigue and Heat Sensitivity.