By Dr. Eva Jackson
Seeking Answers and Facing Uncertainty
For many years, my health declined, and I found myself searching desperately for answers. I
reached out to my healthcare team, at times pleading for their help to uncover what was causing
my condition to worsen. Initially, I was diagnosed with dystonia, not multiple sclerosis (MS).
As I sought second opinions, it became clear to me that many people struggle to advocate for
themselves within the healthcare system. I also realized that healthcare professionals may feel
threatened when patients seek external advice or opinions.
The Diagnosis: A Turning Point
In November 2021, I received my first second opinion, and in July 2022, my second. These
consultations ultimately led to my diagnosis of secondary-progressive multiple sclerosis.
Receiving this diagnosis brought relief, fear, and anger. As I learned more about MS, I
discovered a widespread lack of understanding about the disease among healthcare professionals,
patients, caregivers, families, and the broader community. This motivated me to become an
advocate, to educate others about MS, and to help guide people through the complexities of
living with this illness. My mission became fighting for equality for everyone affected by MS.
Building Community Through Advocacy
After dedicating myself to advocacy, my community grew rapidly. I began connecting with new
people, both within the MS community and the broader disability community. The relationships
formed within these networks have proven to be more genuine than any others I have
experienced. My MS community now includes individuals living with MS, their families,
healthcare professionals, and advocates fighting for the rights of the disabled.
Finding Support and Understanding
Five years ago, if someone invited me to participate in a walk, I would have declined—not out of
lack of support, but because of the physical limitations I have faced throughout my life. Now, I
attend MS events because I know I will be surrounded by people who understand the challenges
of living with MS. They know what it feels like to be stared at for walking differently, using a
cane, walker, or scooter. The MS community is large, supportive, and authentic, and the
relationships formed at these events are lasting and empowering.
Empowering Others and Yourself
If you are reading this today, I encourage you to join an MS support group or attend an MS
event. Build your community with others who share the goal of living in a world free from MS.
As your community grows, you will find yourself empowered to support the well-being of others
and realize the strength you possess.
Hello. My name is Dr. Eva Jackson, and I am currently a guest blogger for MSAA. I completed a Doctorate in Management, Organizational Development and Change at Colorado Technical University in Denver, Colorado. My academic background also includes a Master of Science in Leadership and a Bachelor of Art in Social Services from Belhaven College in Jackson, Mississippi. I have previously co-owned an event planning, catering, and decorating business called NikLiz Designs with my husband of 31 years Tim Jackson. After being diagnosed with MS, my career path changed, but I continue to provide management consulting services. In addition, I participate in crafting activities and volunteer as a Peer Connections Leader and an MS activist for the National MS Society.
