By: Ashley Ringstaff
I know there are a lot of questions many people with MS ask themselves… and some of those questions are based upon being involved in the MS Community. How can we get involved? How can we make a difference?
I thought I would try and share my thought on this subject, for the month of March, which is recognized by many as Multiple Sclerosis Awareness Month. There are a lot of events that you may see online, on social media, and many other places. But how can we get involved?
I do a lot of advocacy for multiple sclerosis all year round, and I don’t usually attend huge MS events in order to do so. I do small, but meaningful things to raise awareness about multiple sclerosis.
The obvious one, is that I blog… but before I even started writing; I became a volunteer with MSWorld.org where I am a part of an Online Support Group for MS Patients & their Caregivers.
However, I feel that advocating really needs to go BEYOND just the MS Community, and advocated to the general public. When I have been out in public, someone will ask me what MS stands for, because I was wearing an MS t-shirt. So I explained to them what it was. Just passing along information to a few people can spread the word. Once you have given the person information, they will probably relay it to someone else they know.
I use my social media outlets to raise awareness about multiple sclerosis. I’ve done lobbying before; I do as much as I can. However, we can’t just depend on a few people to raise awareness for MS. We ALL need to take part in some sort of way.
Do you remember hearing/seeing about the ALS Ice Bucket Challenge? I saw a lot of people with MS wanting to do something like that, to bring awareness for MS. While it’s a good idea, it’s very hard to ‘copy cat’ an awareness project. But ALS is also a neurological illness with no cure, so the research being done for ALS, is most likely going to benefit the MS community in some way or another.
I’ve seen videos online of people at the mall putting up a booth, and having people who are shopping at the mall, “Try on MS”. There are so many things being done to raise awareness for MS around the World. I don’t feel like we all have to have a ‘theme’ to raise awareness, just spreading the word can do a lot.
However, I will be contacting my local news stations, letting them know that March is MS Awareness Month – and if they can do some sort of coverage on it. I’m going to make a shirt that says, “Ask me about multiple sclerosis” … original right? But it will get people wondering. Even if they don’t come up and ask me, more than likely, they will look it up on their phone.
Get involved with your local organizations group… whether that’s with MSAA, NMSS, or just something you and others you know with MS in your area get together once a month. Discuss with each other how you can make a difference in your community.
At MSWorld, we made a campaign to “Live Beyond MS: Breaking the Silence”. When I speak to people that have MS as well as their loved ones, they all want to know when a cure will be available for us. That’s a good question… but I’m not going to sit around and just wait for researchers to give me the answers we are looking for. Why? Because the bottom line is, the more people who know about multiple sclerosis, the more funding we will get for research, the closer we are to a cure, re-myelination, Stem Cell… the list goes on and on.
So, what is the conclusion to this article? Don’t wait for someone else to do something to bring awareness to MS… start doing it yourself, every bit you do makes a difference, whether you believe it or not.