Living with multiple sclerosis (MS) can be full of surprises. One of the toughest challenges for many people is dealing with bladder and bowel issues. These are things we don’t always feel comfortable talking about, but they’re a very real part of the disease. 

This article, which brings together stories and advice from people who are living with MS, is here to help you feel less alone and more in control. It’s all about sharing what we’ve learned to manage these often-secret symptoms.

Understanding the “why”

It’s good to know that if you’re dealing with these issues, you’re definitely not alone. About 80 percent of people with MS have bladder problems, and many people also struggle with bowel issues. (1,2)

These problems happen because MS damages the nerves that send messages between your brain and your bladder or bowels. This can lead to a few different symptoms, like: (1,2)

• Having to rush to the bathroom all the time
• Leaking urine
• Having a hard time emptying your bladder
• Dealing with constipation

The power of talking about it

Many people feel embarrassed or ashamed about these symptoms and don’t want to talk about them, not even with their doctor. As one Health Leader said, “I work full time…This is very embarrassing when I have to make an excuse, practically run from the room, and then return in different clothes.” 

But as we see in the MS community, it is so important to be open. Talking about it, even just online with other people who get it, can make a huge difference. 

Another community member shared, “I can’t tell when I need to urinate. I put myself on a bathroom schedule. I have not had any accidents, but am wondering, is this a common problem?” 

This simple, honest question helped others feel safe to share their own stories. The result? They quickly realized they weren’t alone.

Smart ways to cope

While the emotional part is tough, people have found many clever ways to manage the physical symptoms. A big one is planning ahead. 

One Health Leader’s motto is, “Never pass up a restroom,” and another keeps trash bags in their car just in case. Using products like pads and special underwear is also a very common and practical way to feel more confident. 

As one community member said, “I make sure to wear panty liners and underwear. I keep track of times when it occurs and then can almost expect it.”

For constipation, there are many tips beyond just drinking more water and eating more fiber. Many people find that things like magnesium, probiotics, and stool softeners can help. Regular exercise can also get your bowels moving. One Health Leader said they had great luck with a common laxative, while another found that eating mixed nuts every day worked wonders.

Getting help and finding support

The shared stories from the MS community make one thing clear: You are not on this journey by yourself. While these symptoms can feel isolating, the support and understanding from others who are experiencing the same things can be invaluable. 

By leaning on the community, being open about your struggles, and working closely with your healthcare team, it’s possible to take back control and live a more confident and comfortable life.

References:

1. Bladder Dysfunction. Multiple Sclerosis Association of America. Available at https://mymsaa.org/ms-information/symptoms/bladder-dysfunction/. Accessed 9/16/2025. 

2. Bowel Problems. Multiple Sclerosis Association of America. Available at https://mymsaa.org/ms-information/symptoms/bowel-problems/. Accessed 9/16/2025.