Speaking Up Is Self Care

Speaking up. Standing up for myself. These are all things that you learn as you grow and mature in life. Advocating for my health though, piece of cake. I know my body like no one else. I understand how my body responds, reacts, and refuses. 

When I think of self-advocating for myself, I also think of speaking up not just in the medical sense, but also when something, or someone is not filling my cup. I think back on all of the instances in my younger adult life, and get angry with myself for not speaking up to say “no, my body cannot afford to go out tonight.” Or simply say something along the lines of “I’m sorry you don’t understand why I put my body and my health first, but it’s necessary for me to stay healthy.” 

Continue reading
Share Button

Self-Advocacy: Challenges, Tips, Mentors and Allies

By Stacie Prada

Self-advocacy is hard work. We’re likely advocating for ourselves in tiny ways all the time, and we don’t notice when there’s little to no resistance.  Frustration grows when we meet opposition and live with pain and unmet needs.

Barriers to self-advocating: Sometimes, I don’t know what I need, I’m unsure of what resources exist that could help, or I’m not being heard by those who could help me. Even if they want to help, they might not know how.

Continue reading
Share Button

The Power of Being Your Own Advocate 

By Samuel Fitch

The word advocate means “a person who publicly supports or recommends a particular cause or policy.” But when it comes to self-advocacy, it means something even more personal—speaking up for yourself when no one else can. 

As I sit down to write this, I find myself in a unique place. On one hand, I’m celebrating a beautiful milestone: my daughter graduated from ministry school this week. On the other hand, I feel completely worn out. We spent 24 of the 72 hours on the road just getting to and from her graduation, and the exhaustion has caught up with me. Add in the personal demands of life, a career that requires a lot of me, and countless other responsibilities, and it’s no wonder I’m feeling drained. 

But here’s what I’ve learned: it’s OK to speak up for yourself. It’s OK to set boundaries with your time. It’s OK to give yourself permission to rest. That is self-advocacy. 

And for those of us living with something like MS, self-advocacy isn’t just helpful—it’s essential. After a diagnosis, the floodgates open. Well-meaning friends and family start offering opinions, articles, and advice. But being your own advocate means having confidence in the path you’ve chosen with your medical team. Even in the early days, when things aren’t going smoothly or symptoms don’t seem to improve, you have to trust your team—and yourself. 

Being a self-advocate means standing firm in the face of uncertainty. It means honoring your own voice even when your body feels weak. It means saying, “I’m not OK right now,” and knowing that’s a powerful, healthy thing to do. 

As I look at the picture of my wife and our four kids on the wall, I’m reminded how blessed I am to have a support system. But even with that support, I’ve learned to listen to my body when it says, “Enough.” And in those moments, I have to speak up—not just for my health, but for my future. 

Because sometimes, the strongest thing you can do… is rest. 

About Sam:

Sam Fitch is a financial advisor based in Jamestown, New York, where he helps individuals and families build stronger financial futures through planning focused on cash flow, protection, and long-term goals. Before entering financial services, he spent 25 years working in his family’s restaurant business, which helped shape his strong connection to community and service.

Sam also lives with multiple sclerosis and is passionate about supporting others navigating similar challenges. Through his writing and advocacy work, he hopes to encourage people living with MS to pursue strength, resilience, and a meaningful life despite the obstacles the disease can bring. He is a husband, father of four, and active supporter of the MS community.

Share Button