By Monica Proctor Wilson
Dear MS,
I began gardening five years ago, growing vegetables and fruits. Gardening is harder than I expected, but there is something about it that reminds me of who I am and how I got here. My roots formed long before you (MS), entered my life.
Continue readingBy Monica Proctor Wilson
During National Mental Health Awareness Month, I reflected on how I first learned about the importance of mental health care. Growing up, I often felt misunderstood emotionally, but I did not know that therapy or emotional support were even options of assistance. In many black communities, especially during the 70’s and 80’s, mental health was heavily stigmatized, so I quietly carried out my struggles alone. Everything changed when I entered college and discovered counseling services on campus. For the first time, I felt understood and realized caring for my mental health was just as important as caring for my physical health. I hid going to therapy from my family until I was in my 30’s because I feared judgment. Today, I openly recognize mental health therapy and emotional wellness as necessary parts of living with multiple sclerosis.
Continue readingAs we approach the season of giving, the Multiple Sclerosis Association of America (MSAA) would like to bring special attention to the many wonderful community members that we serve. With our mission of Improving Lives Today, MSAA genuinely strives to advocate for and prioritize the well-being of all individuals who have been affected by multiple sclerosis. Over the years, we have collaborated with so many inspiring people, and we are honored to be able to highlight their stories.
In the spirit of the holiday season, we would like to share the heartfelt story of mother and son, Monica and Brian, who both live with multiple sclerosis.
“I’ve learned that in any situation, if you are not advocating for yourself, you’re not going to get anything. My name is Monica Proctor Wilson, and I was diagnosed with multiple sclerosis on my 40th birthday after spending several years seeking answers to my symptoms. For four or five years, doctors kept saying that it was fatigue, and that I was overworked and needed to take a break. I believed it was multiple sclerosis, and I started asking about it. People would ask me, ‘Why would you want MS?’ I did not want MS. I just wanted to know what was going on with me,” Monica shared.
Continue readingBy Monica Proctor Wilson
Continue readingSelf-care is not selfish.
Self-care is self-love.
It took me many years to not only understand that self-care was not selfish, but self-care was self-love and to also accept this. Of course, I had to learn the hard way. For years, I was the person burning the candle at both ends… and in the middle. I made sure everyone else was taken care of, I checked all the boxes, and I filled in all the roles. My personal theme song was “I’m Every Woman” by Chaka Khan, which I played on repeat in my head. Say amen if you relate.
By Monica Proctor Wilson
Hi warrior friends,
After living with MS for 18 years, one of the biggest lessons I’ve learned is the importance of building a safety net. I always encourage MS friends to: 1) Research their choice of DMT’s, 2) Find a Neurologist that specializes in MS, 3) Keep a Mental Health provider, and 4) Build a Safety Net.
Step 1- Understanding My Safety Net:
Safety net can mean different things to different people. Before I could start building my safety net, I went to the definition:
Safety net (noun): something that provides security against misfortune or difficulty.
At first, I thought I already had one. I had family and friends that loved me. After the first year, the “Let me know if you need anything” texts faded. Not because they didn’t care, but because MS is complicated—emotionally, physically, and invisibly. I realized not everyone could truly understand what I was going through. 🧡 This isn’t about blame. It’s about recognizing who I needed in my safety net.
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