Here I Go Again

By Samuel Fitch

Ten years! After about ten years away from the gym, I decided to walk back in the door. In that time, I’ve been living with multiple sclerosis (MS) and staying active, but not in the way most people think. My life is full: busy professionally, engaged in the family business, raising four kids, and supporting a wonderful wife. That kind of activity keeps me moving, but at times it carries its own stress. 

About a month ago, I felt a strong pull to return to structured exercise, first to safeguard my cardiovascular health and then to gradually reintroduce weight training. Not for huge muscular gain, but to strengthen and preserve what I already have. My mother’s passing at age 65 from a ruptured brain aneurysm after decades of smoking played a major role in that decision. Seeing mortality up close made me realize I want to be here long enough to watch my grandchildren grow, to enjoy years with family and meaningful work. 

So each day I’ve headed to the treadmill. Thirty minutes, heart rate up near 150 beats per minute. The result has been therapeutic both mentally and physically. There’s pain in inertia but power in motion. 

For my fellow men and women living with MS, I know our journeys differ. Some face greater physical challenges, while others may have more flexibility or energy to work with. My belief is that doing something, even small steps with the ability you have, can still produce a meaningful impact on well-being. Research supports this truth. Studies show that aerobic and resistance exercise improve mobility, reduce fatigue, and enhance quality of life in people living with MS (National Institutes of Health). Even more encouraging, exercise in MS is considered safe and does not worsen disease activity when properly managed (Cleveland Clinic). 

If I had known how good I would feel simply by walking on the treadmill three times a week and steadily elevating my heart rate, I might have started sooner. But hindsight is a teacher, and the best time to begin is right now. 

So that’s the invitation: whether you’re managing MS or simply navigating the busy demands of life, choose to move. Protect your heart, support your brain, and honor those you’ve loved and lost by caring for the life you still have before you. 

Stay strong, inside and out. 

Share Button

Trying Your Best to Catch Some ZZ’s

Sleep…. This word can generate a mixture of feelings for many. Some people find it so easy to just lay their head down, turn off the inside chatter of their mind for a bit, and fall into a good snooze. But for others, sleep is a tease- a taunting pleasure just out of reach, and for various reasons. For those living with MS, it’s very common fatigue symptom can be in constant conflict with sleep. Those who need to rest but find they can’t, or getting sleep at unwanted/inconvenient times, etc. We know that sleep is extremely important for our minds and bodies, but it’s not always easy to attain. 

Continue reading
Share Button

Refresh, Rewind, Release

By Monica Proctor Wilson

Self-care is not selfish.

Self-care is self-love.

It took me many years to not only understand that self-care was not selfish, but self-care was self-love and to also accept this. Of course, I had to learn the hard way. For years, I was the person burning the candle at both ends… and in the middle. I made sure everyone else was taken care of, I checked all the boxes, and I filled in all the roles. My personal theme song was “I’m Every Woman” by Chaka Khan, which I played on repeat in my head. Say amen if you relate.

Then reality hit me. Hard. One day at work, I ran out of spoons before the day even started. I had a relapse due to complete exhaustion and extreme fatigue. After a coworker drove me home, I crawled into bed screaming “I don’t have time for a relapse!! I have to make dinner and be ready for the kids to get home to help with homework.” After taking a quick 16-hour nap, I woke the next morning to find dishes in the sink and clothes on the floor… and you know what? Life kept moving while I was resting and the world had not ended. The earth did not spin off its axis and I did not get sucked into another universe.

Building a Reset Routine

That was the “Ah-Ha” moment that I realized something had to change. I decided to take one day each month to do absolutely nothing. And when I say nothing, I mean nothing. I marked the date on the calendar so everyone knew I would not be available for events, errands, or obligations. That day was reserved for me to sleep, get a massage, binge-watch shows, or literally watch the paint dry on the wall. My body would decide.

My first attempt left me with feelings of complete guilt. It was difficult ignoring that voice in my head suggesting I was letting my family down. But after several attempts, the guilt turned into something else: a requirement that I would set for myself. A promise that I would take time to refresh, rewind, and release.

That was many years ago. My children are now grown, and my husband understands my promise to myself. But each month, I continue scheduling my mental health day because that’s what my body requires. A chance to recharge before the fatigue, stress, or symptoms stack up and force me to rest the hard way.

Why It Matters Especially with MS

Living with MS means we don’t always get to choose how our bodies feel day-to-day. But we can choose to respect our limits and plan recovery time before we crash. By putting a mental health day on the calendar, I shifted from reacting to my body’s emergencies to proactively giving it what it needs.

Your Turn

I know understand that self-care isn’t selfish…It’s self-love. It’s about survival and strength. Taking care of yourself allows you to give more to others. Remember the airline rule: mask on you first, then others.

If you’ve been pushing yourself beyond the limits, burning your candle at both ends, or just need time to recharge, consider this your permission slip to rest. I challenge you to schedule a day on the calendar that belongs only to you. No apologies. No guilt. It may be difficult, and the first attempt may only last 3 hours. But try again and again until you are able to refresh, rewind and release. You have my permission.

I’m Monica Proctor Wilson, and I’ve been living with multiple sclerosis for 19 years. I facilitate a self-help group called SPEAK MS, where we Share Personal Experience and Knowledge of MS, connect, and keep each other uplifted. I’m also an MS advocate and serve on the Government Relations Advisory Council, working to make sure the voices of people with MS are heard at every level. In 2023, I was honored to receive the National MS Society’s Inspiration Award. My passion is helping others find strength, purpose, and community while navigating life with MS.

Share Button

Reset with Intention: Embracing Routine After Summer

Getting back into a routine can be challenging, whether you’re returning to school, coming off a summer break, or simply craving more structure. The transition into a new season, especially back-to-school time, can feel overwhelming. But it doesn’t have to be abrupt or exhausting. It can be intentional, gentle, and even energizing.

Continue reading
Share Button

When Breaking the Routine Becomes Essential

I have always been a fan of organization and routines. Staying organized and up-to-date on my to-do list makes life feel manageable and productive. Having a good routine has always provided a sense of structure and control, even more so during busy seasons. But there have been plenty of times, especially as a remote worker, where my routine has felt extremely repetitive, unamusing, and tiring. When this feeling begins creeping up, it personally becomes essential to step away from my day-to-day norm and do something less traditionally productive. But first – it’s important to recognize your emotions and the signs of burnout approaching.

Continue reading
Share Button

Reclaim Your Power

Being diagnosed with a rare autoimmune disorder comes with many challenges- one of the most common and often more difficult is learning to become your own advocate. More often than not, the people and healthcare professionals I encounter are not familiar with my condition, which frequently means they do not know the symptoms that accompany the diagnosis and the treatment options that work best for me. This is when speaking up for myself becomes vital.

Continue reading
Share Button

Knowledge is Power, and so is Self-Advocacy

Living with multiple sclerosis often means navigating a complex healthcare system, where self-advocacy becomes essential. Recently, I experienced firsthand how crucial it is to stand up for yourself in medical settings.

About 6 months ago, I made the decision to switch to a new neurologist, mostly due to the cost of my annual MRIs. I did my research and found an MS specialist 1.5 hours away and decided to give him a try. I arrived at the office, was pre-screened, and all seemed well until the doctor came in and I found myself being questioned and patronized in a way I have never experienced in a medical setting (or any setting really). Despite living with MS since 2016, doing well on the same DMT for 6 years, and working for MSAA for the past 3 years, the doctor asked me to justify my treatment and explain its benefits in detail before he was willing to continuing the conversation. I never received a physical examination, he never once asked about my lifestyle, and the entire interaction felt like a test. I guess I passed because he did end up ordering my next MRI and continuing with the same treatment path I was already on. The experience left me feeling unheard and disrespected.

Continue reading
Share Button

The Growth She Couldn’t Yet See

Once in a while, I face challenges that remind me just how much I’ve grown over the years. I’ve come to understand that challenges are actually opportunities for personal growth—and that some setbacks are blessings in disguise. Looking back, my younger self could never have imagined how resilient I would become.

She would be proud of how much my perspective has shifted as I’ve grown older and wiser. I used to cling so tightly to people, places, and things that I ended up suffocating the very opportunities life was offering me—to explore, to learn, and to flourish in unfamiliar territory. It was hard to say no to things that drained my energy and happiness. But over time, I’ve learned that while life can be unpredictable and full of obstacles, I have the power to choose my perspective. And today, I choose to believe in myself and trust that I can handle whatever comes my way.

Continue reading
Share Button

An Attitude of Gratitude

Life is one roller coaster of a ride. I realize that each life experience has a mix of emotions attached to it. At this point in life, I think I have experienced it all – anger, frustration, joy, happiness, embarrassment, peace, sadness, laughter, grief, and so forth. I have been overwhelmed many times, not knowing how to handle it all.

Having a good support system has always been my foundation, and it has helped me get through those tough times. I am proud of the little victories and the small successes that I have encountered in my journey through life.

Continue reading
Share Button

Learning to Love Yourself

I truly believe that the more I care about my needs, the more effectively I can take care of others around me. The more compassion I show myself, the more empathy I can show to others. This means that if I want fruitful relationships with others around me, the transformation must start from within me. Taking care of oneself is not selfish and it often translates to prioritizing yourself. Below are some things to keep in mind while learning to love yourself.

Continue reading
Share Button