MS Awareness Month Program Highlight: MSAA Podcast Episodes

As MSAA continues to highlight MS Awareness Month this March through the campaign theme of “Empowered from the Start with MSAA,” our efforts to raise awareness and provide vital support to the MS community remains our priority. This month specifically, we are spotlighting both educational and supportive resources that may be of use to those who are newly diagnosed and navigating their MS journey. With this in mind, MSAA would like to present one of the many free resources available to the community – MSAA’s Podcast.

This month, MSAA has released a three-part podcast series titled, “If I Knew Then: Reflecting on an MS Diagnosis.” This special series highlights expert insights for newly diagnosed individuals, as well as the personal stories and experiences from community members with MS.

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Being An MS Warrior

Being diagnosed with MS can be disheartening news for many since the road ahead can be so scary and unpredictable. If left undiagnosed, it can lead to severe disability over time.

It is of utmost importance that you schedule your appointments with your neurologists and other care providers regularly so that they can help with managing your symptoms and keeping your MS at bay. The high costs associated with the treatment make medical coverage crucial as over time, MS may unfortunately place a financial strain on individuals and families. Fortunately, there are organizations like the Multiple Sclerosis Association of America (MSAA) can direct you to valuable resources while navigating the bumps along the way.

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A Letter to a Friend: So You’ve Just been Diagnosed with MS…

Dear Friend,

I’ve been thinking about you so much since you shared your recent diagnosis of MS. I know this probably feels like a lot – like the ground has shifted under your feet – and I wish I could be there in person to give you the biggest hug. Since I can’t, I wanted to write you this letter instead.

I don’t have all the answers (who does?), but I want to share a few things that I’ve come to learn about MS. Just remember, you are not alone. Not now, not ever. I am here for you, and so are your closest friends and family.

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Balancing Health and Career: Key Insights for Those New to MS

A new diagnosis of multiple sclerosis (MS) can be overwhelming, with the potential to disrupt nearly every aspect of our lives, including our career and financial stability. MS symptoms vary widely from person to person, so each individual’s experience can be unique. A new diagnosis marks the beginning of a period of learning, adjusting, and navigating changes. While health becomes the central focus, it’s important to recognize that many other aspects of life are also affected. Concerns about career, job stability, and financial security often arise as we try to find balance in this new and uncertain reality.

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Equilibrando la salud y la carrera: Perspectivas clave para personas recién diagnosticadas con EM

Un diagnóstico reciente de esclerosis múltiple (EM) puede ser alarmante, y tiene el potencial de alterar casi todos los aspectos de nuestra vida, incluyendo nuestra vida laboral y la estabilidad financiera. Los síntomas de la EM varían de una persona a otra, por lo que la experiencia de cada individuo es única. Un nuevo diagnóstico marca el inicio de un período de aprendizaje, adaptación y gestión a los cambios. Mientras que la salud se convierte en el centro de atención, es importante reconocer que muchos otros aspectos de la vida también se ven afectados. Con frecuencia surgen preocupaciones sobre la carrera profesional, la estabilidad laboral y la seguridad económica al intentar encontrar el equilibrio en esta realidad nueva e incierta.

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A Love Letter to My Younger Self

By: Emily Carlin

Understanding life with a chronic disease diagnosis is a long-term experience. For me, it took years to come to terms with the fact that I have MS. The journey was not easy but looking back I am proud of myself for how I handled that situation so early in my adulthood. 

For some background, I was 23 when I was diagnosed with MS. Unfortunately, I am very familiar with how this condition can impact your life, as some of my family members have lived with MS for many years. To write this piece, I’m going to take you on a little journey with me. Join me as I take you back to the time when I was first diagnosed as I pretend to take myself out for coffee as the 35-year-old woman, wife, and mother I am now.

I asked my younger self out to coffee. She showed up with glowing skin, long hair, vibrant, and full of life. She was also well rested (darn, I was jealous of that, being I’m now a mom of two toddlers). She asked me how my day was going with a cheerful smile. I paused for a second, I looked right in her eyes and told her she was beautiful before I answered. I softly smiled, and told her my day was going well, but I had some things I’d like to share with her.

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MS Awareness Month Program Highlight: My MSAA Community

As we continue to highlight MS Awareness Month this March, the Multiple Sclerosis Association of America (MSAA) remains dedicated to raising awareness of multiple sclerosis while also providing vital resources and support for the community. MSAA recognizes that this month is especially powerful for the MS community as we reflect on how far we’ve come, the challenges that remain, and the importance of supporting one another. In honor of this special time, MSAA would like to bring attention to the many free programs and services offered that are designed to improve the quality of life for those affected by MS. One of the many free tools MSAA provides is My MSAA Community, a peer-to-peer online forum for individuals with MS.

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Burdens Shared

By Stacie Prada

March is MS awareness month, and it’s a good time to reflect on the lessons I’ve learned while navigating life with Multiple Sclerosis for 16 years. Of all of the lessons I’ve had to learn, the hardest has been accepting my MS is not just my problem.

When I was diagnosed with MS, I firmly wanted to be able to deal with it myself. I saw it as my problem, and I didn’t want it to affect those around me. I saw it as solely my responsibility, and I thought it would be unfair for me to let it burden anyone else.

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Life After an MS Diagnosis

A multiple sclerosis (MS) diagnosis can stir up many emotions. Fear, anger, relief, denial, and confusion are common. Each person’s experience is unique.

The team at MultipleSclerosis.net invited the community to “Share what life with MS after diagnosis really feels like.” Respondents provided their insights into life after diagnosis.

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You Got This!

Receiving a multiple sclerosis (MS) diagnosis can be overwhelming, but it’s also the beginning of a journey where you can take charge of your health and future. While MS comes with uncertainties, empowering yourself with knowledge and a proactive mindset can make a world of difference. Start by educating yourself about MS through the Multiple Sclerosis Association of America (MSAA). Understanding your diagnosis helps you make informed decisions about treatment, symptom management, and lifestyle changes.

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