About MSAA

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization and leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a Helpline with trained specialists; award-winning publications, including, The Motivator; MSAA’s nationally recognized website, featuring educational videos, webinars, and research updates; a mobile phone app, My MS Manager™; safety and mobility equipment products; cooling accessories for heat-sensitive individuals; MRI funding; My MSAA Community, a peer-to-peer online support forum; MS Conversations blog; a clinical trial search tool; podcasts; and more. For additional information, please visit www.mymsaa.org or call (800) 532-7667.

Building A Safety Net

By Monica Proctor Wilson

Hi warrior friends,

After living with MS for 18 years, one of the biggest lessons I’ve learned is the importance of building a safety net. I always encourage MS friends to: 1) Research their choice of DMT’s, 2) Find a Neurologist that specializes in MS, 3) Keep a Mental Health provider, and 4) Build a Safety Net.

Step 1- Understanding My Safety Net:
Safety net can mean different things to different people. Before I could start building my safety net, I went to the definition:

Safety net (noun): something that provides security against misfortune or difficulty.

At first, I thought I already had one. I had family and friends that loved me. After the first year, the “Let me know if you need anything” texts faded. Not because they didn’t care, but because MS is complicated—emotionally, physically, and invisibly. I realized not everyone could truly understand what I was going through. 🧡 This isn’t about blame. It’s about recognizing who I needed in my safety net.

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Establishing Safety Nets

By Stacie Prada

Back-up plans and safety nets ease my worries. If I know I have options and support, my stresses for the future can be put on the back burner.

Which safety nets do I have control over? Which are vulnerable and might not be reliable? How strong are my safety nets, and where are the gaps?

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Acknowledging Your Safety Net

By Dr Eva Jackson

Let us take a moment and go back into time. Remember your life before multiple sclerosis. Now stop and take a big breath as you let your memories unfold. You may visualize the days of going to a theme park and riding all the rides, or running on a sandy beach, just having fun. The days before watching your steps to ensure that there were not any barriers that would create a fall hazard or looking at the handicap parking spaces at your local grocery store to ensure that you did not have far to walk.

Now smile, because if you can visualize this, just know that you are not alone. Most of us are very independent people. People who never relied on others when making plans to go places. Independent individuals who very seldom had to go to the doctor regularly or spent days researching healthcare plans because this work was often done by your jobs.

As you think about those days, I will tell you a little secret. I have not been to a Christmas parade in over 5 years. During my last parade, I experienced several falls and sustained a shoulder fracture the next year. The risk is not worth the fulfillment of watching a parade in person.

Now MS has created a need in you to find safety nets in your home, communities, and healthcare. A safety net that you may have never thought you would need. A safety net could be financial, healthcare, family, or community support.

Let’s look at different safety nets and how they may vary for you.

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What Does a Safety Net Look Like?

By Samuel Fitch

When you think of a safety net, what comes to mind? Is it a circus act—a high-flying trapeze artist soaring through the air or someone being launched from a cannon, hoping to land softly?

The truth is, safety nets come in many forms. At their core, they are tools that provide security, comfort, and confidence.

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Benjamin Roma – MSAA’s August 2025 Artist of the Month

MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Benjamin Roma as August’s Artist of the Month. Benjamin is from Seattle, Washington.  

Beauty in a Field 

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Making the Most of Summer to Improve Your Overall Health

By Dr. Eva Jackson

Summer is often marked by joy, laughter, family traditions, and road trips. Taking a moment to sit on your porch and listening to birdsong can provide an effective respite from the stresses and demands of a busy day. A simple walk around the outside of your home to get a daily dose of nature can provide someone living with multiple sclerosis a simple dose of much needed Vitamin D and improve overall health. These activities are also great for meditating and mindfulness exercises.

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Being Cool

By Stacie Prada

More than any other time of year, summer shares my not-so-secret secrets. I’m not as thin, flexible, or strong as I used to be. It’s easier to disguise and ignore in colder weather when clothing is bulkier and outdoor activities are less promising.

This time of year encourages reality checks for how I look, feel, what I’m able to do, and how things that used to be easy now require more effort. While natural aging is challenging, multiple sclerosis adds even more difficulty to living well in later years.

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Beating the Heat with MS: Lessons from the Walk-In Freezer

By Samuel Fitch

Before my multiple sclerosis (MS) diagnosis, I never understood why I always felt so warm—especially compared to others. Looking back, I realize how fortunate I was to work in my family’s restaurant. One unexpected benefit? A built-in cooling station. On particularly hot days, the walk-in freezer or refrigerator offered immediate relief when my body felt overwhelmed by the heat.

Like many of my fellow MS warriors, managing body temperature—especially in the heat—is a constant challenge. For me, warm weather isn’t just uncomfortable; it can completely derail my ability to function the next day. It’s frustrating because, here in Western New York, beautiful sunny days are few and far between. When I miss them, I feel guilty. I want to be outside enjoying them with my family—but sometimes, the risk just isn’t worth it.

So what’s my advice for managing the heat when you live with MS?

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April Yamamura – MSAA’s July 2025 Artist of the Month

MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate April Yamamura as July’s Artist of the Month. April is from Niagara Falls, NY.

“Summer Scene”

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Ask the Expert: Heat Sensitivity

Featuring Barry A. Hendin, MD 

MSAA’s Chief Medical Officer 

Headshot of doctor Barry Hendin, chief medical officer for MSAA
Barry Hendin, MD

Question: What are the symptoms of heat sensitivity in MS, and how is it best treated?

Answer: Heat sensitivity, also known as Uhthoff’s Phenomenon, describes an increase in MS symptomatology caused by overheating. This could be due to external influences, when a person with multiple sclerosis is in an excessively hot environment. Alternatively, this can relate to an internal increase in body temperature due to exercise or infection with fever. Sometimes, of course, it’s a combination of the two when people are exercising in an overheated environment.

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