Ask the Expert: Heat Sensitivity

Featuring Barry A. Hendin, MD 

MSAA’s Chief Medical Officer 

Headshot of doctor Barry Hendin, chief medical officer for MSAA
Barry Hendin, MD

Question: What are the symptoms of heat sensitivity in MS, and how is it best treated?

Answer: Heat sensitivity, also known as Uhthoff’s Phenomenon, describes an increase in MS symptomatology caused by overheating. This could be due to external influences, when a person with multiple sclerosis is in an excessively hot environment. Alternatively, this can relate to an internal increase in body temperature due to exercise or infection with fever. Sometimes, of course, it’s a combination of the two when people are exercising in an overheated environment.

Continue reading
Share Button

Self-Advocacy: Challenges, Tips, Mentors and Allies

By Stacie Prada

Self-advocacy is hard work. We’re likely advocating for ourselves in tiny ways all the time, and we don’t notice when there’s little to no resistance.  Frustration grows when we meet opposition and live with pain and unmet needs.

Barriers to self-advocating: Sometimes, I don’t know what I need, I’m unsure of what resources exist that could help, or I’m not being heard by those who could help me. Even if they want to help, they might not know how.

Continue reading
Share Button

The Art of Asking for What You Need

I’ve realized that learning to ask for what I need is an art form. While this may come naturally to some, others may find it difficult to put into words. Advocating for ourselves takes self-awareness, clarity, and practice — but the good news is that these skills can be learned and strengthened over time.

At our core, humans are wired for connection and belonging. Advocating for ourselves and asking for what we need can feel risky because it carries the fear of being rejected, dismissed, or seen as “too much,” “too needy,” or “difficult.” And yet, we all have an innate need to feel heard, validated, and understood.

Continue reading
Share Button

Power of Empowerment

There are a lot of uncertainties one must face while battling MS, and its symptoms vary widely among individuals. For newly diagnosed individuals, this can be a scary and unsettling journey without knowing what to expect down the road. Below are a few things you can suggest to someone who has been recently diagnosed with MS:

Continue reading
Share Button

Proud Memories

By Bonnie Lynn Ellison

May is a good time to reflect on myself, and what my younger self would be proud of. When I was young, I thought life was a rodeo! I competed in the National Little Britches Rodeo from 8 to 18 years old, and was proud of my ribbons, buckles, and trophies! I learned, if you got thrown off, you got back on the horse!

When I was young, I also played my guitar and sang in talent shows, from 7th grade through high school. In college, I performed with the FAB Company. We toured nationally in the early 1970’s, recorded four albums, and were contracted with the major international talent agency, William Morris. I’m proud that we wrote our own original music, songs, and comedy. We did concerts! I thought I was Taylor Swift!

I fell in love, got married, and two years later, I was diagnosed with multiple sclerosis. I was 25. It affected me like a stroke, on the right side of my body. I had never heard of this disease, so it was like an old rodeo injury to me. It took about three years to recover enough to write, sing, and perform again. And there were no assurances that it wouldn’t return. I had always been athletic and healthy. It was shocking for me, and a struggle.

Continue reading
Share Button

Yesterday’s Seeds; Today’s Garden!

By Nana Opong-Owusu

They say the habits, values, and choices we’ve planted in our past, shape the garden we stand in today — the decisions we’ve made, the habits we’ve formed, the passions we’ve nurtured, and the values we’ve carried quietly in our hearts. I didn’t appreciate these types of thoughts as a child, but as an adult I oftentimes find myself reflecting.

Growing up, I was always drawn to movement. Sports weren’t just a hobby — they were a way of life. Whether it was the freedom associated with biking around the city with my childhood friends, the camaraderie of my basketball teams, or the adrenaline of soccer tournaments, exercise and movement have always grounded me. Now as an adult, I see it gave me structure, perseverance, and most importantly, a familiarity with pushing through adversity. But alongside that physical drive, I’ve always carried something else: a caring heart. A giving heart.

Continue reading
Share Button

How to Respond When People Ask, “How Are You?”

How are you?” is a standard greeting among friends and acquaintances. It can be a societal expectation or norm. Answering when living with a chronic disease like multiple sclerosis (MS) is anything but simple. Those with MS are rarely the standard answer of “fine.”

MultipleSclerosis.net published an article about navigating the How are you question with MS. The article resonated with many members, and it generated a number of comments! Here are some community insights. 

Continue reading
Share Button

Looking Back, Moving Forward

By Samuel Fitch

This is my first blog post—so I’m hoping readers will extend a little grace. I’m 44 years old at the time of writing, and lately I’ve been reflecting on the last two decades of my life. One question keeps coming to mind: Would my 24-year-old self be proud of the man I’ve become and the career I’ve chosen?

At 24, I was newly married—Jessica and I had tied the knot in 2003. We were less than a year into marriage, expecting our first child, and I was working full-time at my family’s restaurant. We hadn’t bought our first home yet, but I was riding high on love, youth, and big dreams. At the same time, I was still dealing with some self-destructive habits—drinking, gambling—trying to figure out who I wanted to be as an adult.

Fast forward twenty years, and life has taken some sharp, unexpected turns. Jessica and I have grown stronger together. We’re now parents to four incredible children—three daughters and our youngest, a son. But that early vision I had for my career didn’t quite pan out the way I imagined.

Continue reading
Share Button

Ask the Expert: Dizziness and Vertigo

Featuring Barry A. Hendin, MD 

MSAA’s Chief Medical Officer 

Headshot of doctor Barry Hendin, chief medical officer for MSAA
Barry Hendin, MD

Question: For people with multiple sclerosis, what can be the causes of dizziness and vertigo?

Answer: Dizziness and vertigo are common in the general population and even more common in people with MS. More than half of people with MS will experience dizziness or vertigo at some point.

Continue reading
Share Button

Mobility Changes With MS

Living with multiple sclerosis (MS) takes a huge toll on the body. One of the greatest challenges is mobility changes. Those living with MS often find their activity level changes. Things that once came easily, such as walking, cooking, gardening, and shopping, become difficult.

MultipleSclerosis.net published an article about coping with changes in mobility. Many community members responded by sharing their experiences. Here are some of their insights.

Continue reading
Share Button