Living with multiple sclerosis has its obstacles, but with a hopeful attitude, resourcefulness, and a strong support system, you can navigate these obstacles more effectively. Prioritizing your needs, budgeting wisely and cultivating a robust community are crucial elements in managing life with MS.
Continue readingFeaturing Barry A. Hendin, MD
MSAA’s Chief Medical Officer
Question: Are urinary tract infections (UTIs) more common in MS, and what are the symptoms and treatments?
Answer: Yes, urinary tract infections are more common in people with MS. Multiple sclerosis is often associated with bladder dysfunction and bladder dysfunction is often associated with urinary tract infections. The most common bladder problem associated with infections is urinary retention, which is incomplete emptying of the bladder. This creates an ideal incubator for bacteria to grow. Patients who catheterize may also be at an increased risk, particularly if not careful with their bladder technique.
Continue readingIt can be overwhelming managing doctor’s appointments, bills, medications, and all the many responsibilities that come with managing multiple sclerosis. However, prioritizing and strategizing tasks can help manage the stressors of it all to not feel so daunting.
First, prioritize the necessities. I like to think of Maslow’s Hierarchy of Needs when feeling overwhelmed with what needs to be prioritized. Food, necessary medications, rent/mortgage, and basic utilities always come first.
Living with multiple sclerosis (MS) is full of challenges. Those without MS may not realize the ways the disease impacts life.
MultipleSclerosis.net recently asked members of the community to “Fill in the blank: I wish more people understood ____ about MS.”
There were many insights from the responses!
Living with a chronic illness, like multiple sclerosis, presents a unique set of challenges. Managing finances can be one of them, with medical expenses, reduced work hours, job loss, or unexpected expenses straining budgets and causing disruptions. Financial worries can impact our emotional and physical wellbeing, and building a support network of friends, family, and others living with similar challenges can offer much-needed support. I heard a quote once saying, “Start where you are, use what you have, do what you can,” and I couldn’t agree more. Be resourceful and think outside the box.
Continue readingBy: Kate Durack
This month we are focused on staying positive while living with MS. I’ve written in the past about the positive outlook MS has provided me and I thought it might be interesting to pick the brain of someone (thing?) else on this topic to see if it generates anything new for me. So, I asked our new friend ChatGPT its thoughts on the matter. Here’s what it dished out:
Kate:
Why is it important to stay positive when living with multiple sclerosis?
ChatGPT:
Staying positive when living with multiple sclerosis (MS) is important for several reasons:
Continue readingAs usual, time slipped by me and before I knew it, we were already days into June.
It’s a common enough routine: laughing with colleagues or strangers and saying, “Can you believe it’s June already?” or “I forgot it’s not May!” Usually, this conversation ends with a chuckle, perhaps a little added hustle to catch up on work, but ultimately no trouble.
But there are some months that are just more stressful.
Continue readingMSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Nancy Garcia as June’s Artist of the Month. Nancy is from Chicago Heights, IL.
Continue readingBy Kate
My journey to motherhood was pushed into warp speed when I was diagnosed 8 years ago. In 2014, I had just gotten married and started having vision and grip issues which led to my eventual diagnosis of MS. Before any treatment was considered, my initial doctor (a lovely human) asked what it was I wanted for my life. I told him I wanted to be a mom. His response: “GREAT! You have 8 months to get pregnant, and if you don’t, I suggest we start treatment and reassess how and when to stop treatment in order to try again in the future.” This was good news, but like, no pressure, right?
Continue readingWhen a loved one receives a diagnosis of multiple sclerosis (MS), learning how to support them is vital. To learn what type of support people living with MS most value, we asked the MultipleSclerosis.net community:
“What advice would you give to friends and family who want to support someone receiving an MS diagnosis?”
The community shared lots of helpful insights!
Continue reading