An individual going through a chronic illness like MS may be hit with a multitude of emotions like loneliness, helplessness, confusion, anguish, anger, and sadness at different points in time. The uncertainty associated with MS can be immensely stressful. Having a support system, whether it be friends, family, coworkers, or therapists, can help you navigate through the toughest times. Reaching out for help from your support network is not a sign of weakness. Rather, it shows that you have a strong support system to back you up in hard times. Below are some tips to build a strong and thriving safety net:
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Building A Safety Net
By Monica Proctor Wilson
Hi warrior friends,
After living with MS for 18 years, one of the biggest lessons I’ve learned is the importance of building a safety net. I always encourage MS friends to: 1) Research their choice of DMT’s, 2) Find a Neurologist that specializes in MS, 3) Keep a Mental Health provider, and 4) Build a Safety Net.
Step 1- Understanding My Safety Net:
Safety net can mean different things to different people. Before I could start building my safety net, I went to the definition:
Safety net (noun): something that provides security against misfortune or difficulty.
At first, I thought I already had one. I had family and friends that loved me. After the first year, the “Let me know if you need anything” texts faded. Not because they didn’t care, but because MS is complicated—emotionally, physically, and invisibly. I realized not everyone could truly understand what I was going through. 🧡 This isn’t about blame. It’s about recognizing who I needed in my safety net.
Continue readingNo está solo: Cómo crear una red de apoyo con EM
Vivir con una enfermedad crónica como la esclerosis múltiple (EM) puede sentirse aislante. Aunque podemos ser nuestro propio sistema de apoyo mediante el amor propio y el autocuidado, no todos cuentan con vínculos familiares fuertes que brinden apoyo. Es posible que muchos de nosotros no tengamos un sistema de apoyo ya establecido. La buena noticia es que construir uno es completamente posible. Recuerde que no tiene por qué hacerlo solo.
Continue readingYou Are Not Alone: How to Build a Support System with MS
Living with a chronic illness like multiple sclerosis (MS) can feel isolating at times. While we can be our own support system through self-love and self-care, not everyone has strong family ties that bring support and comfort. Many of us may not have a built-in support system, and that’s okay. The good news is that building one is entirely possible. Know that you don’t have to do this alone.
Continue readingEstablishing Safety Nets
By Stacie Prada
Back-up plans and safety nets ease my worries. If I know I have options and support, my stresses for the future can be put on the back burner.
Which safety nets do I have control over? Which are vulnerable and might not be reliable? How strong are my safety nets, and where are the gaps?
Continue readingAcknowledging Your Safety Net
By Dr Eva Jackson
Let us take a moment and go back into time. Remember your life before multiple sclerosis. Now stop and take a big breath as you let your memories unfold. You may visualize the days of going to a theme park and riding all the rides, or running on a sandy beach, just having fun. The days before watching your steps to ensure that there were not any barriers that would create a fall hazard or looking at the handicap parking spaces at your local grocery store to ensure that you did not have far to walk.
Now smile, because if you can visualize this, just know that you are not alone. Most of us are very independent people. People who never relied on others when making plans to go places. Independent individuals who very seldom had to go to the doctor regularly or spent days researching healthcare plans because this work was often done by your jobs.
As you think about those days, I will tell you a little secret. I have not been to a Christmas parade in over 5 years. During my last parade, I experienced several falls and sustained a shoulder fracture the next year. The risk is not worth the fulfillment of watching a parade in person.
Now MS has created a need in you to find safety nets in your home, communities, and healthcare. A safety net that you may have never thought you would need. A safety net could be financial, healthcare, family, or community support.
Let’s look at different safety nets and how they may vary for you.
Continue readingCreating Your Safety Net: Living with MS
Life with MS can be full of ups and downs. Some days you feel strong and independent – others, you may need a little extra support. That’s completely normal. No one is meant to carry everything alone – MS or not.
Having a reliable support system – a personal safety net – can make daily challenges more manageable and help you feel more grounded, emotionally and physically. Whether you’re newly diagnosed or years into your MS journey, it’s never too late to build or strengthen that circle of support.
Continue readingWhat Does a Safety Net Look Like?
By Samuel Fitch
When you think of a safety net, what comes to mind? Is it a circus act—a high-flying trapeze artist soaring through the air or someone being launched from a cannon, hoping to land softly?
The truth is, safety nets come in many forms. At their core, they are tools that provide security, comfort, and confidence.
Continue readingEnhance Your Safety Net with My MSAA Community

Living with multiple sclerosis can bring about a number of uncertainties – from navigating symptom and treatment options to dealing with emotional and lifestyle changes. While every journey with MS is unique, one thing is universal: no one should have to face MS alone. This is why the Multiple Sclerosis Association of America (MSAA) created My MSAA Community.
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