Romanticizing A Slow Summer

Ah, summer. This time of year tends to have connotations that having exciting plans, going on adventures, and traveling, is essential. Now don’t get me wrong, experiencing the season to its fullest can be fantastic, however, having a memorable summer doesn’t mean that traveling to lavish places or splurging on expensive excursions is necessary. In fact, you don’t need much to create a noteworthy summer. Focusing on the small things of life can really bring about so much joy and peace.  

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Staycation Tips and Tricks: Relax, Explore, and Enjoy Your Own Backyard

Staycations, or vacations spent at home or nearby, can be both enjoyable and cost-effective. While they are often perceived as lacking adventure or being boring, this is far from the truth. Staycations can offer unique experiences full of discovery and exploration. A well-planned staycation can be convenient, creative, and can save both stress and money.

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The AC Staycation

As I’ve mentioned in previous posts, I’m a single mom of two young boys (5 & 6) and we live in St. Augustine, FL. It’s hot here. Really hot. Typically, May through October are well into the 90s, and bouncing from one airconditioned space to another is essential even for my non-MSers brethren. To be fair, I like to escape north to the Blue Ridge Mountains when I can, but that only happens once or twice a summer, so I’ve had to get creative on how to spend all of that indoor time. I’m not great at generalizing how I think you should fill your time, so I’ve decided to list out a few things I’ve found to be highly enjoyable as an artsy nerd mom.

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It’s Cool to Be Cool 

The summer months are chock-full of fun activities, and most of these activities are outside. For those living with MS, being outdoors for an extended period of time can be taxing on both the body and mind. I have a list of things that I do in the summer months to stay calm, COOL, and collected when being outdoors, so I too can enjoy these fun activities with everyone else.  

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The MS Journey

By: Gina Ross Murdoch, MSAA President & CEO

Welcome to MS Awareness Month. Each year, MSAA dedicates the month of March to focusing on topics important to the MS community. This month, we will be exploring Life with MS: Different Stages of the Journey. Over the next few weeks, we will explore topics critical to living with MS at varying ages.

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Production Levels May Vary

By: Diana Cruz

Motivation is a gift that many people overlook. When motivation is lost, the momentum once encompassed to achieve your goals and accomplishments typically decreases. Loss of motivation and momentum can easily be viewed as laziness or lack of desire to truly go after what you want; however, it is much easier to judge from the outside looking in.

Remaining motivated to complete the goals you have set for yourself, even daily tasks, can be daunting when factors out of your control come into play. Having an impairment or sickness can take a toll like no other – one that can make you feel scared, unmotivated, and alone. It can feel like the universe is out to get you. As someone with an autoimmune disorder, experiencing flare-ups with my health can affect every aspect of my life. It becomes an impairment physically, mentally, and emotionally – making completing tasks and remaining motivated nearly impossible some days. 

When my disorder gets the best of me, I tend to remind myself of three things:

  • It is not only okay to take time to rest – it is necessary. Your body cannot do its best if it is in “Go” mode all the time. If your body needs time to recover, listen to it and respect that. You may find that taking time off will benefit your mind and body in an impactful way.
  • Doing your best looks different every day. Completing day-to-day tasks, regardless of how minor, are still accomplishments. It is unrealistic to always tackle the world.
  • Your weaknesses are your strengths. Nobody knows what it takes to be you, and that is your greatest superpower. Your ability to push through even your toughest of days is admirable and inspiring. Be proud of yourself.

Rather than judging the positions of others, praise those who are consistently putting in effort despite their circumstances. Be kind – you do not know everyone’s story. And lastly, please remember to eat, drink water, take care of yourself, and do your best – whatever that may look like today. Keep your support system close and remember that asking for help does not make you weak, it makes you resourceful.

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We Are All Artists

Art is an excellent way to improve your well-being, regardless of your artistic experience. It promotes self-expression, mindfulness, and the reduction of stress. Although all forms of art can be beneficial and promote peace and relaxation, it is important to find an activity that brings you joy and accommodates your lifestyle. Here are some examples of therapeutic art activities that you might like:

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Hello Spring!

In the spirit of spring cleaning, when is the last time you decluttered your emotional life? Spring cleaning isn’t just for the home. Did you know feelings and thoughts have a way of piling up and need decluttering too? Acknowledging our emotions can be the beginning to setting them free and releasing emotional baggage.

Think of those unhelpful thoughts that have been in the back of your mind lately. Am I holding on to anger, guilt, sadness, or resentment? Those thoughts generate feelings that impact the way we see ourselves and everything around us. Make a list or say them out loud and take some time to really acknowledge those feelings. Now ask yourself this question – are these feelings helping me with my wellbeing and goals? If the answer is no, it is time to tidy up!

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Introducing My MSAA Community for People Affected by Multiple Sclerosis

My MSAA Community (1)MSAA is excited to announce that, in partnership with HealthUnlocked, we have launched a new peer-to-peer online community called My MSAA Community! This free online forum is a safe place for anyone who has been affected by MS, whether they have been diagnosed or are a care partner, to share their stories and find information and support.

Sometimes when you are going through something personal and you try to share your feelings or your experience with someone who hasn’t been through the same thing, you can find yourself hitting an emotional wall.  The person you share your feelings with may be able to empathize and understand what you are sharing to a certain extent, but they may not fully appreciate what you are going through, since they haven’t experienced it themselves.  In these situations you can feel like you need to talk to someone who “gets it” and has been through what you are going through.

My MSAA Community is designed as an online community and forum for people whose lives have been affected by multiple sclerosis to find each other and share their experiences as a way of providing support and information.  This community allows members to post questions and get answers from others on the forum and contribute to other ongoing conversations.

Follow or join the community at: https://healthunlocked.com/mymsaa

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Building a Relationship with Your Healthcare Provider

Not long ago, patients expected their doctor to tell them what to do about their health and doctors expected patients to follow orders. With the growth and expansion of technology, individuals are given an opportunity to read medical journals, watch health-related television, and visit information sites regarding their specific condition.

With the expansion of medical knowledge, there has been a shift in the doctor-patient relationship. Patients are now expected and encouraged to ask questions and have medical discussions about their care. Some doctors are more open to this relationship than others, so how do you build a relationship with a doctor who may not be as open to this type of relationship?

Communication in any relationship is a key factor; having a discussion with your doctor about what you are and are not comfortable with is very important. By having this conversation, assumptions about what you may or may not know about your disease, or the treatment options is avoided. You have a right as a patient to receive appropriate medical care and the right to have your voice heard.

Just like any relationship, if you do not feel comfortable or feel as though your voice is not being heard you have two choices, leave the relationship or work to change it. Have you had to have a conversation with your doctor about your relationship? What was that like for you? Do you have any advice for others?

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