Acknowledging Your Safety Net

By Dr Eva Jackson

Let us take a moment and go back into time. Remember your life before multiple sclerosis. Now stop and take a big breath as you let your memories unfold. You may visualize the days of going to a theme park and riding all the rides, or running on a sandy beach, just having fun. The days before watching your steps to ensure that there were not any barriers that would create a fall hazard or looking at the handicap parking spaces at your local grocery store to ensure that you did not have far to walk.

Now smile, because if you can visualize this, just know that you are not alone. Most of us are very independent people. People who never relied on others when making plans to go places. Independent individuals who very seldom had to go to the doctor regularly or spent days researching healthcare plans because this work was often done by your jobs.

As you think about those days, I will tell you a little secret. I have not been to a Christmas parade in over 5 years. During my last parade, I experienced several falls and sustained a shoulder fracture the next year. The risk is not worth the fulfillment of watching a parade in person.

Now MS has created a need in you to find safety nets in your home, communities, and healthcare. A safety net that you may have never thought you would need. A safety net could be financial, healthcare, family, or community support.

Let’s look at different safety nets and how they may vary for you.

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Creating Your Safety Net: Living with MS

Life with MS can be full of ups and downs. Some days you feel strong and independent – others, you may need a little extra support. That’s completely normal. No one is meant to carry everything alone – MS or not.

Having a reliable support system – a personal safety net – can make daily challenges more manageable and help you feel more grounded, emotionally and physically. Whether you’re newly diagnosed or years into your MS journey, it’s never too late to build or strengthen that circle of support.

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What Does a Safety Net Look Like?

By Samuel Fitch

When you think of a safety net, what comes to mind? Is it a circus act—a high-flying trapeze artist soaring through the air or someone being launched from a cannon, hoping to land softly?

The truth is, safety nets come in many forms. At their core, they are tools that provide security, comfort, and confidence.

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Enhance Your Safety Net with My MSAA Community

Living with multiple sclerosis can bring about a number of uncertainties – from navigating symptom and treatment options to dealing with emotional and lifestyle changes. While every journey with MS is unique, one thing is universal: no one should have to face MS alone. This is why the Multiple Sclerosis Association of America (MSAA) created My MSAA Community.

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Benjamin Roma – MSAA’s August 2025 Artist of the Month

MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Benjamin Roma as August’s Artist of the Month. Benjamin is from Seattle, Washington.  

Beauty in a Field 

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Soak Up the Sun

Living with MS comes with a unique set of challenges. Heat intolerance can cause setbacks that can lead to a lot of discomfort for those experiencing it. Hot weather can exacerbate MS symptoms and lead to potential flare-ups. As the core body temperature increases, one may notice increased fatigue, weakness, changes in vision, tremors, and more. Heat-related changes are usually temporary and could get better as the body cools down.

Below are some strategies to beat the heat and manage symptoms:

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Making the Most of Summer to Improve Your Overall Health

By Dr. Eva Jackson

Summer is often marked by joy, laughter, family traditions, and road trips. Taking a moment to sit on your porch and listening to birdsong can provide an effective respite from the stresses and demands of a busy day. A simple walk around the outside of your home to get a daily dose of nature can provide someone living with multiple sclerosis a simple dose of much needed Vitamin D and improve overall health. These activities are also great for meditating and mindfulness exercises.

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Being Cool

By Stacie Prada

More than any other time of year, summer shares my not-so-secret secrets. I’m not as thin, flexible, or strong as I used to be. It’s easier to disguise and ignore in colder weather when clothing is bulkier and outdoor activities are less promising.

This time of year encourages reality checks for how I look, feel, what I’m able to do, and how things that used to be easy now require more effort. While natural aging is challenging, multiple sclerosis adds even more difficulty to living well in later years.

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Adaptarse, no retirarse: Disfrutando del verano con esclerosis múltiple

A pesar de que el calor del verano puede ser agotador para todos, las personas con esclerosis múltiple (EM) suelen enfrentarse a dificultades adicionales debido a la fatiga y a su sensibilidad al calor. La sensibilidad al calor, también conocida como Fenómeno de Uhthoff, se refiere a un empeoramiento temporal de los síntomas de la EM causado por la temperatura corporal demasiado elevada. Afortunadamente, hay medidas proactivas que podemos tomar para cuidar nuestra salud y bienestar mientras disfrutamos de todo lo que el verano tiene para ofrecer.

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Adapting, Not Withdrawing: Enjoying Summer with Multiple Sclerosis

While summer heat can be exhausting for anyone, individuals with multiple sclerosis (MS) often face added challenges due to heat intolerance and fatigue. Heat sensitivity, also known as Uhthoff’s Phenomenon, refers to a temporary worsening of MS symptoms caused by overheating. Fortunately, there are proactive steps we can take to support our health and well-being while still enjoying all that summer has to offer.

For those living with MS, heat intolerance and fatigue can significantly impact daily activities. Something as simple as sitting in a warm car without air conditioning or spending just a few minutes in the sun can quickly drain energy levels. But with a little planning and self-awareness, it’s possible to make the most of summer while staying safe and comfortable.

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