By Samuel Fitch
When we think of the word reset, we often picture restarting a computer or a phone. Most problems on a device can be fixed with a simple restart. But when it comes to us—our physical, human selves—we don’t have that option. We can’t just shut down and start over.
What we can do, however, is reset.
Sometimes that means taking a few moments to clear your mind, breathe with intention, and refocus on the task at hand.
Continue readingOur blog theme this month is transitions, and that feels very appropriately timed for me. My kids are back in school (HOW IS MY BABY IN 1st GRADE?!) and I’ve recently found myself single. So, this is a tough post and maybe a little too vulnerable, but here we are.
Needless to say, there’s been a lot of reflection (and therapy) lately, and honestly, I’m feeling pretty darn good about it. Every time life throws me a curveball (see also: MS diagnosis), I’m given an opportunity to step back and really evaluate my life, my relationships, the roles I play, how I spend my time, and the attitude I bring to all of it.
Continue readingMSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Karen Pagen Cruz as September’s Artist of the Month. Karen is from Manchester, NH.
Grounded Roots
Continue readingFeaturing Barry A. Hendin, MD
MSAA’s Chief Medical Officer
Question: In what ways are exercise, environment, and equipment involved with balance for individuals with MS?
Continue readingAn individual going through a chronic illness like MS may be hit with a multitude of emotions like loneliness, helplessness, confusion, anguish, anger, and sadness at different points in time. The uncertainty associated with MS can be immensely stressful. Having a support system, whether it be friends, family, coworkers, or therapists, can help you navigate through the toughest times. Reaching out for help from your support network is not a sign of weakness. Rather, it shows that you have a strong support system to back you up in hard times. Below are some tips to build a strong and thriving safety net:
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As the air begins to cool and the trees start trading green for gold, there’s something
comforting about leaning into the flavors of early fall. These Baked Cinnamon Apple Chips
are the perfect way to savor the season—crisp, naturally sweet, and made with just a few
simple ingredients you probably already have in your kitchen. They’re a light, wholesome
snack that’s great for school lunches, cozy afternoons, or whenever you’re craving a crunchy
bite without the guilt.
By Monica Proctor Wilson
Hi warrior friends,
After living with MS for 18 years, one of the biggest lessons I’ve learned is the importance of building a safety net. I always encourage MS friends to: 1) Research their choice of DMT’s, 2) Find a Neurologist that specializes in MS, 3) Keep a Mental Health provider, and 4) Build a Safety Net.
Step 1- Understanding My Safety Net:
Safety net can mean different things to different people. Before I could start building my safety net, I went to the definition:
Safety net (noun): something that provides security against misfortune or difficulty.
At first, I thought I already had one. I had family and friends that loved me. After the first year, the “Let me know if you need anything” texts faded. Not because they didn’t care, but because MS is complicated—emotionally, physically, and invisibly. I realized not everyone could truly understand what I was going through. 🧡 This isn’t about blame. It’s about recognizing who I needed in my safety net.
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Vivir con una enfermedad crónica como la esclerosis múltiple (EM) puede sentirse aislante. Aunque podemos ser nuestro propio sistema de apoyo mediante el amor propio y el autocuidado, no todos cuentan con vínculos familiares fuertes que brinden apoyo. Es posible que muchos de nosotros no tengamos un sistema de apoyo ya establecido. La buena noticia es que construir uno es completamente posible. Recuerde que no tiene por qué hacerlo solo.
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Living with a chronic illness like multiple sclerosis (MS) can feel isolating at times. While we can be our own support system through self-love and self-care, not everyone has strong family ties that bring support and comfort. Many of us may not have a built-in support system, and that’s okay. The good news is that building one is entirely possible. Know that you don’t have to do this alone.
Continue readingBy Stacie Prada
Back-up plans and safety nets ease my worries. If I know I have options and support, my stresses for the future can be put on the back burner.
Which safety nets do I have control over? Which are vulnerable and might not be reliable? How strong are my safety nets, and where are the gaps?
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